Welcome to Brainwaves, Epilepsy Ottawa's semi-monthly newsletter with the latest in epilepsy and agency news.
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March 2017
Letter from the Director

Epilepsy Action Day at Queen's ParkI had the pleasure and privilege of joining epilepsy agencies from across Ontario for Epilepsy Action Day at Queen's Park on February 28.

Kicking off Epilepsy Awareness Month, we met with our representatives to discuss the provincial epilepsy strategy - which has made Ontario an international leader in the field of epilepsy. This strategy included increasing the number of beds at Epilepsy Monitoring Units at CHEO and The Civic, as well as the provincial guidelines for epilepsy care.

We encouraged our MPPs to support efforts to distribute the guidelines where they are needed most and ensure that no matter where in Ontario a person with epilepsy lives, they get a consistent basic level of care. We also asked them to help us access funding for the one piece of the epilepsy strategy they have not yet financed - the Community Epilepsy Liaison who would help connect families living with epilepsy to much needed services and resources in the community. All in all, it was a successful day - but this is just the beginning. I'm looking forward to the follow up meetings I have with local MPPs in the coming weeks.

We're now a few days in to Epilepsy Awareness Month. Have you decided what you'll do to raise awareness in the community? We have a list of suggestions here.

Please take photos of your Epilepsy Awareness Month and Purple Day events and email them to so we can share them on our website and on social media.

We have some interesting and exciting events planned this month. I hope to see you there.

A quick note about our Parents Supporting Parents Group: I'm sorry to report that we've lost our regular meeting space. We've been hard at work to find a replacement but haven't yet been successful. If you know of a community space west of Pinecrest Mall available for an hour at 7pm one Sunday a month at an economic rate (or, even better, free), please email

Have a wonderful Epilepsy Awareness Month!
Nikki Porter, PhD
Executive Director

Public Information Meeting

Tuesday, March 14
Bronson Centre
211 Bronson Ave, Room 109

Meet Ottawa’s new epileptologist, Dr. Tadeau Fantaneanu and find out about the Epilepsy Monitoring Unit at The Ottawa Hospital.

Guest Speakers:
Dr. Tadeau Fantaneanu, M.D., The Ottawa Hospital
Gillian Reid-MacDonald, Advanced Practice Nurse of the Ottawa Hospital Epilepsy Team,  Neurosciences Manager

Purple Day Celebration 2017
Sunday, March 26
2:00 – 4:00 PM
Ottawa City Hall
110 Laurier Avenue West


Grab your loved ones, your ice skates and your favourite purple clothes, then join us for our Purple Day Celebration at Ottawa City Hall.

  • Mayor Jim Watson presenting a Purple Day proclamation
  • City Councillor Mathieu Fleury will help us launch our Shine Light on Epilepsy immersive project.
  • Ice skating on Rink of Dreams (Don’t forget to bring your skates!)
  • Shriners Clowns
  • Ruby’s Cotton Candy Club with specialty flavour Purple Day Rocks!
  • Epilepsy trivia games
  • Thumbs Up for Epilepsy nail painting station
  • Shine Light on Epilepsy photo booth
And more!

We will have Purple Day T-shirts available as free souvenirs for those attending the party. The t-shirts will be dark purple with a white Purple Day logo on the front. The numbers and sizes will be limited, but we will take size requests until Wednesday, March 8. Simply complete the RSVP form at the page linked below.

Specials thanks to our event sponsor, UCB Canada.

Updates and RSVP
Shine Light on Epilepsy

Our #ShineLightOnEpilepsy campaign is back. Help us SHINE LIGHT ON EPILEPSY to raise awareness and show solidarity with people affected by epilepsy and seizure disorders.

Purple Lights

Light a purple candle, install a purple lightbulb, or take a picture of something lit up in purple and post it on social media with the hashtag #ShineLightOnEpilepsy.

Social Media Q&A

Throughout March, we’ll circulate a series of epilepsy facts and questions on social media with the hashtag #ShineLightOnEpilepsy. Participate in the Q&A. Share the facts. Help us spread the word about epilepsy this Epilepsy Awareness Month.

2017 Immersive Project at Ottawa City Hall

March 26-31

City Councillor Mathieu Fleury will host our Shine Light on Epilepsy immersive project at Ottawa City Hall over the last week of Epilepsy Awareness Month. He’ll help us launch the project during our Purple Day Celebration.

Inspired by the Subway Therapy project in New York City, our Shine Light on Epilepsy project is an opportunity for anyone in our community to show support for people and families living with epilepsy. Stop by Ottawa City Hall the last week of March to add your voice.

Upcoming Activities
Social Group:
Activity TBD

Monday, April 3
6:30 - 8:30 PM
Bronson Centre
211 Bronson Ave., Suite 212
Social Group:
Activity TBD

Monday,June 5
6:30 - 8:30 PM
Bronson Centre
211 Bronson Ave., Suite 212
Copyright © 2017 Epilepsy Ottawa, All rights reserved.

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