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Welcome to Brainwaves, Epilepsy Ottawa's semi-monthly newsletter with the latest in epilepsy and agency news.
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November 2016
Letter from the Director

 
Every week at Epilepsy Ottawa brings something new. Last week, I traveled to Toronto for a workshop about the new provincial guidelines for epilepsy care. The meeting with epilepsy agencies across the province, the Epilepsy Implementation Task Force, and EpLink was enlightening. The guidelines cover topics such as the next steps for people struggling with epileptic seizure control after trying two anti-seizure medications, and a seizure management plan for women with epilepsy who are trying to get pregnant. If you're interested in learning more, the guidelines are featured on our homepage or you can read them here.

Have you seen the new infographic designed by our talented summer student Victoria? It highlights facts about epilepsy and seizure first aid along with some challenges of living with epilepsy. You can read more details at epilepsyottawa.ca/info. The infographic is now available on our website and as part of our new agency brochure. Feel free to share it and help us raise epilepsy awareness.

The 2016 return of Sip N Style was a great success! We raised $20,000 to support epilepsy services in our community. 100% of the profits go directly to Epilepsy Ottawa’s much needed programs and services. Check out our photos and along with the people and companies responsible for making making this such a great night.

In October, our social group got together for a potluck dinner filled with great food and conversation. After about 10 minutes, we noticed that we'd fallen into silence as we savoured each delicious bite. Then we launched back into the usual banter and laughter that dominate our meetings. The social group now meets every other month, with the next meeting in December. (See below for details.) New faces are always welcome.
 
Read on to find out more about the activities and opportunities on the horizon.

Enjoy!
Nikki Porter, PhD
Director

In this issue:
Giving Tuesday

In the middle of a London, Ontario mall during the busy Christmas rush, a man had a convulsive seizure. People stopped and stared, but the only person who knew what to do was a 10-year-old girl who had been there shopping with her grandmother. The young girl immediately took over and instructed the adults around her how to provide seizure first aid. Later that day, her grandmother asked her how she knew what to do. “I learned it at school,” she answered. The local epilepsy agency had presented Thinking About Epilepsy to her Grade 5 classroom.


With your help, Ottawa area classrooms can become more inclusive of kids with epilepsy and children will learn to save lives.
 
Thinking About Epilepsy is an interactive epilepsy education program tied to Ontario’s Grade 5 health and science curriculum. It is proven to increase children’s knowledge of seizures and seizure first aid, and change their attitudes towards people with epilepsy.
 
You've heard of Black Friday and Cyber Monday, but did you know that it's followed by Giving Tuesday, the start of the giving season? On Tuesday, November 29th help us kick off the giving season with our campaign to bring Thinking About Epilepsy to Ottawa and the surrounding regions.

Seeking Participants for EpUp Study

 
Do you have epilepsy?
Do you feel sad or stressed out?
Would you like to participate in a study?

 
EpLink is conducting a study called EpUp to examine whether an educational program will improve emotional well-being in adults with epilepsy. They are looking for participants to take part in an 8-week program in one-hour weekly sessions over the phone. The program may improve participants' emotional well-being. The findings of the study may help researchers better understand coping responses with epilepsy which may lead to better treatment programs in the future. Participants will be reimbursed for their involvement.
 
If you’re interested in participating, contact Kathryn at 416-978-0779 or khum@uhnresearch.ca.
 
Spaces are limited, so act soon.
International Art Competition Puts Epilepsy in the Picture

To celebrate International Epilepsy Day 2017, the International Bureau for Epilepsy announced 'Putting Epilepsy in the Picture’ as their theme for this year's art competition.

There will be two competitions – one for those under 12 years of age, and and one for those over 12 years of age. The competitions are open to everyone! For each age bracket, there is one first place prize of $500US and two runner up prizes of $250US each.

All entries will be placed in a gallery on the International Epilepsy Day website.

Read the competition rules here. To enter, download the entry form, complete it and return it to ibeexecdir@gmail.com by December 31, 2016.

 
 
Upcoming Events
Social Group:
Bowling Night

Tuesday, December 6
6:30 - 8:00 PM
Walkley Bowling Centre
2092 Walkley Rd.

Cost: $2/game; $2 shoe rental
RSVP
Public Information Meeting:
Navigating the Healthcare System

Guest Speakers: Susan Hagar, Marian Meade, and Lynn Joseph (RNs with Nurse on Board)

Monday, January 16
6:30-8:30 PM
The Bronson Centre
211 Bronson Ave., Room 212
RSVP
Sip N Style
Epilepsy Ottawa’s flagship event was a fun, casual Thursday night out – an opportunity to sample exclusive local craft beer (and our very own specially crafted brew) at a beautiful historic mill located on the Ottawa River, while supporting a great cause
For the full photo gallery, visit epilepsyottawa.ca/sip-n-style

We’d like to thank all of our guests, donors, supporters, and volunteers for helping us make this such a wonderful night! A big thank you to my mom Rochelle who traveled all the way from Windsor to help out.

Special thanks to our sponsors:
Platinum Sponsor:
Silver Sponsor:

Bronze Sponsors: National Access Cannabis and Nurse on Board Ottawa.
Venue Sponsor: Mill Street Brewery
Swag Bag Sponsor: Tweed
Print Sponsor: Allegra

 
We'd also like to thank local talent Mark Garnes for entertaining guests with caricatures; Vert Photography who hosted our photo booth; Martin Rémillard Sommelier and HPL Meetings and Events who hosted our wine tasting station; and all the donors of our silent auction items and door prizes, including: Andaz Hotel Ottawa, Calabogie Motorsports, California Closets, ClubLink, Dragonfly Golf Links, Escape Manor, Great Canadian Bungee, Grill 41, Hilton Lac-Leamy, Ike Awgu, Lisa Holmes, Logan Katz Chartered Professional Accountants, Lord Elgin Hotel, Neale Gillepsie, Ottawa Senators, Ottawa Tourism, Patricia Norris, Steak & Sushi, Stella & Dot, Valoree McKay, and Wilderness Tours.

Our incredible planning committee Chair Karen Norris surpassed all expectations pulling together this wonderful event. Her planning committee (Dora Dalietos, Andrew Horsfield, Amelia Zaglul, Ashley Craven, Andrea Wagner, Nathalie Tremblay, Katie Dolan) did an amazing job. I’m so grateful that these committee members, many of whom are professional event planners and managers, lent their time and expertise to Sip N Style.
 
Copyright © 2016 Epilepsy Ottawa, All rights reserved.


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