Notes from the Parents’ Forum – September

Thank you to those who joined us for the Nystagmus Network Parents’ Forum this month. Please remember, these are informal get togethers and everyone is welcome to contribute, so, even if you're new, please don't be shy!

We were a very small group this month. Lots of families will still be adjusting to the new school year. Or maybe everyone was watching the Great British Bake Off on TV? We still managed to cover a lot of ground, though, and ended with a discussion about talking to our children about their nystagmus.

The Nystagmus Network booklet, 'Wobbly Eyes' is designed to give parents the language to talk about nystagmus with young children when they feel the time is right.

Open Day 2021 – Saturday 25 September 
Please remember to join us for virtual Open Day 2021. The digital programme containing all the links to the live and pre-recorded sessions is now available,

If you haven't done so already you can register here to receive your copy.
We hope you enjoy Open Day and look forward to seeing you there. Please join us again for the forum in October.

Best wishes


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