Our Christmas gifts to you

All this month the Nystagmus Network is reminding you of the small gifts we have to offer to help make life with nystagmus just that little bit easier with our Nystagmus is ... advent calendar.

See our blog, Facebook and Twitter posts each day to see what support we can offer you at Christmas and throughout the year.

We try to bring you as many real life nystagmus stories as we can. Today's gift is Mélissa's story of acquired nystagmus.


Mélissa's story - my beautiful, wobbly world 

Mélissa was a healthy young woman, living and working in Canada until suddenly she acquired nystagmus and everything changed. Melissa is now adjusting to her new life with nystagmus and wanted to share her story of hope for the future.

Read Mélissa's story here

Please nominate the Nystagmus Network

The Nystagmus Network could win a small grant of £1,000 in the Ecclesiastical Insurance Christmas draw. To help us win, all you need to do is nominate us. Simple!

Nystagmus Network

Registered Charity Number: 803440

Just think what we could do with an extra £1,000!

Vote here


Still to come in this issue of FOCUS

  • A Christmas message from our Chairman, Richard Wilson OBE


Our Chairman's Christmas message 

As 2018 comes to a close, so a new chapter for this wonderful charity starts. At our Open Day in Birmingham at the end of September, Members voted to modernise the status of the Nystagmus Network so that on 1 January 2019 we will formally become a Charitable Incorporated Organisation. That is an important step in terms of our governance and legal standing, and it changes the official number of the charity to 1180450, but that is all that will change. 

Our commitment to raising awareness, providing support and funding research will be as strong as ever. 

In the meantime, on behalf of the trustees and employees let me wish you all a wonderful Christmas and a very Happy New Year!

Richard Wilson OBE
Chairman, Nystagmus Network


Come and join us

There’s nothing quite like the feeling of belonging, knowing that you’re part of a community, all working towards the same goals.

The Nystagmus Network is a membership organisation.

If you're not already a member, please join us today to have your say in the way the Nystagmus Network operates.

Join us today


Walk Eye to Eye for nystagmus research 

Please sign up to walk Eye to Eye in March 2019 to raise money for nystagmus research at Moorfields Eye Hospital and University College, London.

It'll be the biggest nystagmus get together of the year!

Sign up here

Christmas is just around the corner!

When you do your online shopping through easyfundraising, you'll be helping to raise donations for The Nystagmus Network. Please sign up and start shopping through easyfundraising today to help us reach our goals. It's fundraising for free!

Sign up here


Sign up to our lottery!

You could be our next £25,000 winner.

Sign up here

Please don't forget us

Remembering the Nystagmus Network in your will could  make a huge difference to the nystagmus community. It might help us fund that elusive piece of research which leads to a cure for nystagmus.

That would be quite a legacy, wouldn't it?

Please remember us in your will

Sign up for Gift Aid today! 

Did you know that for every £1 you donate to the Nystagmus Network and for every £1 of your annual membership subscription, we can claim an additional 25p back from the UK government, provided you are a UK tax payer? Already donated? You can still sign up today to help us claim your tax back.

You can sign up to Gift Aid by clicking the link below. Thank you.

Please sign up for Gift Aid here

Please consider making a donation 

The Nystagmus Network relies entirely on membership subscriptions, fundraisingdonations and gifts in wills to continue its important work, providing support and information to the nystagmus community, raising awareness and funding research.

We can't do any of this without your support.

Please donate today

Do you follow us on social media? Join in our daily conversations on Facebook and keep up with all the latest #Nystagmus news on Twitter.

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Members of the Nystagmus Network are automatically signed up to receive this fortnightly digital newsletter every other Thursday directly into their inbox. We believe it's a great way to let you know all the latest nystagmus news and keep you informed about events and research participation opportunities. Other subscribers include our fundraisers, donors and supporters. Please remember that there is an unsubscribe button at the bottom of each and every issue, so if, at any time, you decide you no longer wish to hear from us, please simply click the link.

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