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How did you spend Tuesday this week? Were you volunteering for your favourite charity, helping a friend or family member to enjoy an independent life or sharing your experiences and your best hints and tips to make things just that bit easier for someone else? These are just some of the ways you could become more involved in the work of the Nystagmus Network and help us continue to support the nystagmus community. 

Read more here

#Giving Tuesday

We celebrated Giving Tuesday this year by awarding 20 honorary memberships to our top fundraisers of the year. Have you taken your place in the 2018 hall of fame? Here's what one new honorary member had to say: 
 

" I am honoured to be honorary."

Read more here

 

You can join us, too

Fewer than 1 in 6 of the subscribers to this newsletter are members of the charity. If all our readers were to join us as members for just one year we would really be a patient voice to reckon with. We could have our say on education, employment and research and really make a positive impact on the quality of life of everyone living with nystagmus.
 

So please make this the year you join!

Join us today

Want to get fit in 2019?

You could run the Royal Parks Half Marathon for the Nystagmus Network next October, or, for those who are already warmed up, why not go for the London Vitality 10k in May? Fancy more of a challenge and a fabulous trip into the bargain? Places in the New York Marathon next November await.

Request run details here

 

Sue's story - my baby doesn't look at me

Please continue to share Sue's story and our Nystagmus is ... this Christmas campaign messages with your friends and family on Facebook and Twitter. Thank you.

Thank you, too, for your generous donations.

Read Sue's story here

 

Still to come in this issue of FOCUS

  • Our advent calendar of Christmas gifts
  • Don't forget to order your Nystagmus Network Christmas cards - last orders 10 December

Our advent calendar of Christmas gifts to you

Throughout December the Nystagmus Network will be reminding everyone just how many wonderful gifts of support and information the charity has to offer, not just at Christmas, but throughout the year.

Our advent calendar of Christmas gifts will appear on our blog, on Facebook and on Twitter

Find your advent calendar here

Don't forget your Christmas cards!

Designed by Ben and Charlotte, Jack and Lilly, our lovely Nystagmus Network Christmas cards are still available from our online shop. Complete with envelopes you can order multiples of 4 or 10 cards and help spread the word about nystagmus this Christmas.

Last orders strictly 10 December

Order your Christmas cards here

 

Walk Eye to Eye for nystagmus research 

More than 20 people have already registered to take part in the Eye to Eye Walk in March 2019 to raise money for nystagmus research at Moorfields Eye Hospital and University College, London. Bring the kids! Bring the dog!

It'll be be the biggest nystagmus get together of the year!

Sign up here

Christmas is just around the corner!

When you do your online shopping through easyfundraising, you'll be helping to raise donations for The Nystagmus Network. Please sign up and start shopping through easyfundraising today to help us reach our goals. It's fundraising for free!

Watch out for some great shopping deals in December!

Sign up here

 

Sign up to our lottery!

Thank you to the 8 new players who signed up this month. Please join them. For just £1 per week you could win £25,000.

Sign up here

Please don't forget us

Your lasting gift could make a huge difference to the nystagmus community. It might help us fund that elusive piece of research which leads to a cure for nystagmus.

That would be quite a legacy, wouldn't it?

Please remember us in your will

Sign up for Gift Aid today! 

For every £1 you donate to the Nystagmus Network and for every £1 of your annual membership subscription, we can claim an additional 25p back from the UK government, provided you are a UK tax payer. Already donated? You can still sign up today to help us claim back your tax.

You can sign up to Gift Aid by clicking the link below. Thank you.

Please sign up for Gift Aid here

Please consider making a donation 

The Nystagmus Network relies entirely on membership subscriptions, fundraisingdonations and gifts in wills to continue its important work, providing support and information to the nystagmus community, raising awareness and funding research.

We can't do any of this without your support.

Please donate today

Do you follow us on social media? Join in our daily conversations on Facebook and keep up with all the latest #Nystagmus news on Twitter.

You can unsubscribe from Focus

Members of the Nystagmus Network are automatically signed up to receive this fortnightly digital newsletter every other Thursday directly into their inbox. We believe it's a great way to let you know all the latest nystagmus news and keep you informed about events and research participation opportunities. Other subscribers include our fundraisers, donors and supporters. Please remember that there is an unsubscribe button at the bottom of each and every issue, so if, at any time, you decide you no longer wish to hear from us, please simply click the link.

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You can read all our back numbers in the online archive.

 

Welcome to all our new readers!

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