In our final Focus issue before Christmas 2019, we celebrate with you the children and adults with nystagmus who bring twinkling light, love and laughter to the lives of their friends and families throughout the year, not just at Christmas.

Our #NystagmusStars ...

Wishing you a very Happy Christmas


Our #NystagmusStars

This festive season the Nystagmus Network is featuring the children and adults with nystagmus who fill the lives of their families and friends with light make them proud of their achievements all year round. So far we've seen Joshua, Lexi, Rory, Serena and Taylan. There are lots more to come. You can see all our #NystagmusStars featured at the top of our Facebook page and on our blog throughout December.

There's still time for you to tell us about your #NystagmusStar

To nominate your #NystagmusStar, please send us a photo, their first name and why you think they’re a nystagmus star.

Thank you

Donate to our Christmas stars appeal here

Adam Hills: Take His Legs

This Friday evening at 11.30pm on Channel 4, straight after The Last Leg, you can catch a documentary following comedian and Last Leg co-host, Adam Hills on his personal, physical and emotional journey to live out his boyhood dream to play competitive rugby league. 

Also featured in the story of the Warrington Wolves PDRL team is community rugby coach and friend to the Nystagmus Network, Wil Maudsley.

Adam (pictured) kindly supported Wil when he coached children at the charity’s 2019 Open Day held at the Principality Stadium, Cardiff (pictured).

Watch the trailer on our Facebook page this Friday at 10.30am

Last orders, please!


There's still time (just!) for you to order your Nystagmus Network Christmas cards from our online shop. The cards will no longer be on sale after midnight this Friday. Choose from two great designs: Tis the Season to be Jolly and Let it Snow.

The cards are approximately 121 x 121 mm in packs of 10 with envelopes and feature the charity logo on the back. The greeting inside the card is Happy Christmas. 

Every penny raised from card sales will help us continue to support the nystagmus community, provide information, raise awareness and fund research.

Thank you for your support.

Order your Christmas cards here

Nystagmus Network weather lottery

Whether it's raining outside, snowing or blowing a gale you can get a warm feeling inside and the chance to win up to £25,000 every week for just £1 simply by signing up to the Nystagmus Network weather lottery.

The charity receives every single penny of the profits.

Please support us. Thank you.

Sign up for our weather lottery here

Thank you to our new Easyfundraising shoppers

Please remember to shop the Easyfundraising way when ordering anything online this Christmas and throughout the January sales.

We're so close to raising our first £1,000!

Sign up now for your chance to win prizes in the Easyfundraising advent calendar.

It's fundraising for free!

Sign up here

Please don't forget us

Remembering the Nystagmus Network in your will could make a huge difference to the nystagmus community. It might help us fund that elusive piece of research which leads to a cure for nystagmus.

That would be quite a legacy, wouldn't it?

Please remember us in your will

Sign up for Gift Aid today! 

Did you know that for every £1 you donate to the Nystagmus Network and for every £1 of your annual membership subscription, we can claim an additional 25p back from the UK government, provided you are a UK tax payer? Already donated? You can still sign up today to help us claim your tax back. We can backdate our claim up to 4 years.

You can sign up to Gift Aid by clicking the link below. Thank you.

Please sign up for Gift Aid here

Please consider making a donation 

The Nystagmus Network relies entirely on membership subscriptions, fundraisingdonations and gifts in wills to continue its important work, providing support and information to the nystagmus community, raising awareness and funding research.

We can't do any of this without your support.

Please donate today

Do you follow us on social media? Join in our daily conversations on Facebook and keep up with all the latest #Nystagmus news on Twitter.

Read all our news first on our BLOG.

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