Copy

Happy New Year

In the first issue of Focus for 2020 we celebrate Mike's epic adventure, offer you the perfect opportunity to walk, jog or run your way fit and we introduce two new faces.

Image by Free-Photos from Pixabay

Mike's a nystagmus super hero - it's official!

On 16 December, just as planned, Southampton born Mike Larcombe, who has congenital nystagmus, set off to walk the entire length of New Zealand. He's doing this to raise funding for research and awareness of nystagmus.

The walk will take around 3.5 months and you can follow Mike every step of the way, catch up with his videos and blog posts or make a donation by heading to his website.

The views are SPECTACULAR!

Visit Mike's website here

Feeling inspired to get fit?

Walk, Jog or Run at YOUR pace on the Ultra Challenge Series event of your choice. Join 20,000 others in 2020 of all ages and experience for an unforgettable Challenge. It will be rewarding, fun and absolutely achievable with your resolve and determination alongside first class support.

You can take part in the Ultra Challenge of your choice for the Nystagmus Network. Simply check the charity when you register and choose your fundraising option. We’ll part fund your place.

Choose your Ultra Challenge here

Introducing Alison


Professor Alison Leary joined the Nystagmus Network as a trustee in December 2019. Alison undertakes medical research and teaches at London South Bank University. She has congenital nystagmus.
Meet all our trustees here

Hello Debbie


Debbie joins Sue and Sara on the staff team this month following a career working with other charities, including the Trent Regional Ophthalmology Society.

Debbie has a profound empathy for children and adults with nystagmus and is passionate about helping the charity achieve its aims through research.
Meet our 3 staff members here

Book your holiday with Easyfundraising

Get 2020 off to the best start by raising a BIG donation for the Nystagmus Network when you book your holidays, breaks and getaways for the year ahead, TUI, Booking.com, Secret Escapes, Holiday Extras, Jet2, HomeAway, Lastminute.com and many more will all donate when you use easyfundraising to shop with them!

It’s easy and doesn’t cost you anything extra. If you’re not supporting us yet, please sign up today - it’s completely FREE. 

Sign up here

Nystagmus Network weather lottery

Whether it's raining outside, snowing or blowing a gale you can get a warm feeling inside and the chance to win up to £25,000 every week for just £1 simply by signing up to the Nystagmus Network weather lottery.

The charity receives every single penny of the profits.

Please support us. Thank you.

Sign up for our weather lottery here

Please don't forget us

Remembering the Nystagmus Network in your will could make a huge difference to the nystagmus community. It might help us fund that elusive piece of research which leads to a cure for nystagmus.

That would be quite a legacy, wouldn't it?

Please remember us in your will

Sign up for Gift Aid today! 

Did you know that for every £1 you donate to the Nystagmus Network and for every £1 of your annual membership subscription, we can claim an additional 25p back from the UK government, provided you are a UK tax payer? Already donated? You can still sign up today to help us claim your tax back. We can backdate our claim up to 4 years.

You can sign up to Gift Aid by clicking the link below. Thank you.

Please sign up for Gift Aid here

Please consider making a donation 

The Nystagmus Network relies entirely on membership subscriptions, fundraisingdonations and gifts in wills to continue its important work, providing support and information to the nystagmus community, raising awareness and funding research.

We can't do any of this without your support.

Please donate today

Do you follow us on social media? Join in our daily conversations on Facebook and keep up with all the latest #Nystagmus news on Twitter.


Read all our news first on our BLOG.

You can unsubscribe from Focus

Members of the Nystagmus Network receive a fortnightly digital newsletter directly into their inbox. We believe it's a great way to keep them up to date with all the latest nystagmus news, events and research participation opportunities.

This issue of Focus is for all our subscribers, including our members. 

Please remember that there is an unsubscribe button at the bottom of each and every issue, so if, at any time, you decide you no longer wish to hear from us, please simply click the link.

Missed any issues?
You can read our back numbers in the online archive.

 

Welcome to all our new readers!

Unsubscribe from this list
Copyright © 2020 Nystagmus Network, All rights reserved.


Want to change how you receive these emails?
You can update your preferences or unsubscribe from this list.

Email Marketing Powered by Mailchimp