Membership subscriptions increase

No one here at the Nystagmus Network can actually remember the last time there was an increase in our annual membership subscriptions. That means it must have been at least a decade ago.

But with the charity’s work and reach expanding all the time as we seek to meet the needs of an ever growing nystagmus community and foster and fund research wherever we can, the time has come.

From 1 April 2019 membership of the Nystagmus Network will increase from £20 to £25 a year. We believe that’s an affordable price to pay to know that you are making your voice heard alongside others of like mind and helping support a national charity.


Do I need to do anything?

If you currently pay your subscription by Direct Debit you don't need to do anything. We will simply notify your bank that the amount has changed.

If you currently pay your subscription through regular giving with Justgiving, again you don't need to do anything. You are already paying a minimum of £2 per month and we are happy for you to continue to pay £24 in total for the year. New regular givers are invited to pay through CAFDonate.

If you currently pay your subscription using our online shop or by cheque, you will receive a renewal reminder when your membership falls due and be invited to pay the new amount.
Link here to CAFDonate

Thank you to our loyal members

Many of our members join us for life, because they have benefited from our support and want to ensure that those who come behind them will continue to do so or because they want to stay invested in research.

Many of our members already pay far in excess of £20 per year, send generous donations and fundraise for us, too.

We are grateful for your thoughtfulness and generosity.

The benefits of membership

Nystagmus Network trustees have chosen to run the charity on a membership model, as this brings sustainability, enables sound financial planning and empowers us to grow.

Apart from our support, here are just some of the other benefits for you as a member:

  • Priority booking and a FREE place at Open Day
  • Access to our education advocacy service
  • Referral for bespoke advice and guidance on benefits
  • Automatic subscription to our fortnightly e-newsletter, Focus
  • Support and information from a named staff member or volunteer
  • Contact from us by email or post about charity developments
  • Regular updates on research and trial participation opportunities
  • News of fundraising events, including FREE run places
  • Invitations to participate in local and regional groups
  • Early notification of our annual Nystagmus Awareness Day campaigns
  • Networking opportunities with others affected by Nystagmus
  • A proportion of your subscription goes directly into research

What our members say 

All our trustees and staff are members. Here's what Sue says about membership:

"I will never forget the first call I made to the Nystagmus Network in 1991. My baby daughter had just been diagnosed and I needed to talk to someone. Luckily the Nystagmus Network was there for me. I’m still a member today and always will be, because I need to know that this charity will still be there for parents like me."

Other members write 

"The challenges of nystagmus affect every age and stage, so we’ve joined the Nystagmus Network for life!”

“The support I’ve received from the Nystagmus Network has been a real lifeline. Membership means such a lot.”

“It’s great to feel part of a big nystagmus family.”

“I can’t run a marathon, but I can pay my subs to support this great charity.”

Can I beat the deadline?

Yes, you can! Renew your subscription before 31 March and pay at the current rate for another year.

Not sure when your membership is due? Contact Sara and she will let you know.

Contact Sara today



Our next member only issue of Focus will be to let you know the location and venue of this year's OPEN DAY, with news of member only priority booking and an invitation to take up your free place. Don't miss it!

Membership subs are eligible for Gift Aid

If you haven't already done so and you are a UK tax payer, please complete a Gift Aid form today. That means that for every £1 of your annual membership subscription, we can claim an additional 25p back from the UK government. 

You can sign up to Gift Aid by clicking the link below. Thank you.

Please sign up for Gift Aid here

Do you follow us on social media? Join in our daily conversations on Facebook and keep up with all the latest #Nystagmus news on Twitter.

You can unsubscribe from Focus

Members of the Nystagmus Network are automatically signed up to receive this fortnightly digital newsletter every other Thursday directly into their inbox as well as special member only editions like this one. We believe it's a great way to let you know all the latest nystagmus news and keep you informed about events and research participation opportunities. Please remember that there is an unsubscribe button at the bottom of each and every issue, so if, at any time, you decide you no longer wish to hear from us, please simply click the link.

Missed any issues?
You can read all our back numbers in the online archive.


Welcome to all our new members!

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