For Nystagmus Network members only


  • join us for 1 of 2 free webinars on low vision technology and nystagmus

  • we give you a preview of what's in store on Nystagmus Awareness Day 2020

  • please sign up for our next virtual quiz night

Webinar 1 - for adults

Sight and Sound Technology webinar (adults)

The Nystagmus Network is pleased to bring you an opportunity to attend a free webinar on low vision technology specifically for adults living with congenital or acquired nystagmus.

The webinar includes case studies, product demonstrations and a Q + A session.

Thursday 23 April at 6pm

Places are limited, so please register now by clicking the box below. We will send you your link to join the webinar by email.

Register for the adults' webinar here

Webinar 2 - for parents

Sight and Sound Technology webinar (parents)

Our second webinar on low vision technology is specifically for parents of children living with nystagmus and will focus on access to learning.

The webinar includes case studies, product demonstrations and a Q + A session.

Thursday 7 May at 6pm

Places are limited, so please register now by clicking the box below. We will send you your link to join the webinar by email.

Register for the parents' webinar here

Nystagmus Awareness Day 20 June – in lockdown

We may all be staying at home, but we can still celebrate national and international Nystagmus Awareness Day. Here are just some of the ways you can get involved.

How amazing are you?

In the run up to Nystagmus Awareness Day 2020, we are once again asking you to share your amazing nystagmus success stories. Not only do these stories help raise awareness of nystagmus, but they also bring hope to so many parents whose children have just been diagnosed. In previous years we’ve heard some truly amazing stories of success or achievement despite, or maybe even because of, having nystagmus. Let’s make 2020 even more amazing!


Email your amazing stories here

Our wobbly photography competition

We want to raise as much awareness of nystagmus as possible this year and make sure that everyone has a chance to take part, so we’re running our wobbly photography competition: The View From My Window

We know that lots of people who have nystagmus are also keen photographers. Whether you have nystagmus or not, whether you have the latest camera or just a phone, and wherever you are in the world, you can take part.

Details coming soon

Nystagmus is 

Our fabulous new publication, Nystagmus is …, inspired by the wonderful Roger, will be launched on Nystagmus Awareness Day 2020. The booklet is full of contributions from people who have nystagmus, describing how they feel about it and how it affects their lives. For the first time people can read what it’s really like to have nystagmus by the people who really know.

Nystagmus is … will be available FREE from our online shop on 20 June 2020, but you can pre-order your copy NOW. 

Pre-order Nystagmus is ... here

Home school for Nystagmus Awareness Day

We have loads of teaching and learning materials available to help mark Nystagmus Awareness Day. There are posters to colour, bunting to make, a PowerPoint presentation, a lesson plan and our booklet especially for children ‘Wobbly Eyes”.

Download your free materials here

Thank you for supporting Nystagmus Awareness Day 2020

Full details here

This and every Saturday at 7pm

The competition is really starting to hot up now as more players join the Nystagmus Network virtual quiz night.

Get the whole family together in one room, sign up, log in and away you go!

There are cash prizes for 1st, 2nd and 3rd places.

It's a lot of fun and you'll be helping the Nystagmus Network keep running our information and support services.

Thank you

Register here to take part

Most people have been asking us about null points this week, whether or not to consider surgery, how to alleviate neck and shoulder strain and how to cope with cancelled hospital appointments.

Ask us anything - we're here for you

Contact us with your question here

Stay connected with our Facebook Groups


Join our Facebook Parents’ Group here

The Nystagmus Network Facebook Group for parents of children and young people with nystagmus. Share your experiences of diagnosis, early years and education support.

Join our Facebook Adults’ Group here

A Nystagmus Network Facebook Group for adults living with acquired or congenital nystagmus. Share your experience of employment, sports and leisure, getting around and general day to day living.

Join our Facebook Friends’ Group here

A Nystagmus Network Facebook Group for our fundraisers, members and supporters.

To keep up to date with all our news and multiple posts daily, please visit

our Facebook Page

From entertainment packages to fitness equipment and more, you can still support the Nystagmus Network from home, by shopping online through #easyfundraising. Signing up is quick and easy and you’ll raise free donations for us every time you shop online. 

Please click below to get started.

Thank you so much!
Sign up here

Nystagmus Network weather lottery

Whether it's raining outside, snowing or blowing a gale you can get a warm feeling inside and the chance to win up to £25,000 every week for just £1 simply by signing up to the Nystagmus Network weather lottery.

The charity receives every single penny of the profits.

Please support us. Thank you.

Sign up for our weather lottery here

Please don't forget us

Remembering the Nystagmus Network in your will could make a huge difference to the nystagmus community. It might help us fund that elusive piece of research which leads to a cure for nystagmus.

That would be quite a legacy, wouldn't it?

Please remember us in your will

Sign up for Gift Aid today! 

Did you know that for every £1 you donate to the Nystagmus Network and for every £1 of your annual membership subscription, we can claim an additional 25p back from the UK government, provided you are a UK tax payer? Already donated? You can still sign up today to help us claim your tax back. We can backdate our claim up to 4 years.

You can sign up to Gift Aid by clicking the link below. Thank you.

Please sign up for Gift Aid here

Please consider making a donation 

The Nystagmus Network relies entirely on membership subscriptions, fundraisingdonations and gifts in wills to continue its important work, providing support and information to the nystagmus community, raising awareness and funding research.

We can't do any of this without your support.

Please donate today

Do you follow us on social media? Join in our daily conversations on Facebook and keep up with all the latest #Nystagmus news on Twitter.

Read all our news first on our BLOG.

If you have any comments or would like to see your story included in a future edition of Focus, please contact us today.

Phone: 01427 718093

You can unsubscribe from Focus

Members of the Nystagmus Network receive a fortnightly digital newsletter directly into their inbox. We believe it's a great way to keep them up to date with all the latest nystagmus news, events and research participation opportunities.

This edition of Focus is for members only.

Please remember that there is an unsubscribe button at the bottom of each and every issue, so if, at any time, you decide you no longer wish to hear from us, please simply click the link.

Missed any issues?
You can read our back numbers in the online archive.


Welcome to all our new members!

Unsubscribe from this list
Copyright © 2020 Nystagmus Network, All rights reserved.

Want to change how you receive these emails?
You can update your preferences or unsubscribe from this list.

Email Marketing Powered by Mailchimp