In this issue ...

Today we tell you about a new survey by UK eye research charity, Fight for Sight which seeks to put sight loss and eye conditions on the map and increase funding into eye research. You can help by taking part in the survey and sharing your experience of living with nystagmus. It should take no more than 15 minutes to complete.

Pioneering eye research projects

You may not be aware, but currently sight loss costs the UK economy over £28 billion each year. Yet only 1% of public grant funding for medical research is spent on eye research. That's just £20 for each person living with sight loss.

Fight for Sight is determined to change this - but they need your support. Taking part in the survey could help them secure urgently needed funding for pioneering eye research projects.

Take part in the survey here

More information about the survey

Fight for Sight have asked Populus and Kaleidoscope Research to conduct the survey. They are independent research organisations and the information you share via this survey will be used for research purposes. The findings may be used as part of the evidence Fight for Sight present when seeking funding for eye research projects, in reports and as part of their publicity and campaigns work. Any findings published will be anonymised and not used in a manner which could identify you. Your privacy will be respected at all times and your information will be kept securely.

Take part in the survey

Take the survey by telephone


If you would prefer to complete the survey by telephone, please contact Fight for Sight during office hours on 020 7264 3900 and they will arrange this for you.

If you have any queries or survey related issues please contact

Help the Nystagmus Network this year by using #easyfundraising every time you shop online. 4,000 shops and sites will donate, including eBay, John Lewis & Partners, Argos, ASOS, M&S and many more.

Thank you!
Sign up here

Nystagmus Network weather lottery

Whether it's raining outside, snowing or blowing a gale you can get a warm feeling inside and the chance to win up to £25,000 every week for just £1 simply by signing up to the Nystagmus Network weather lottery.

The charity receives every single penny of the profits.

Please support us. Thank you.

Sign up for our weather lottery here

Please don't forget us

Remembering the Nystagmus Network in your will could make a huge difference to the nystagmus community. It might help us fund that elusive piece of research which leads to a cure for nystagmus.

That would be quite a legacy, wouldn't it?

Please remember us in your will

Sign up for Gift Aid today! 

Did you know that for every £1 you donate to the Nystagmus Network and for every £1 of your annual membership subscription, we can claim an additional 25p back from the UK government, provided you are a UK tax payer? Already donated? You can still sign up today to help us claim your tax back. We can backdate our claim up to 4 years.

You can sign up to Gift Aid by clicking the link below. Thank you.

Please sign up for Gift Aid here

Please consider making a donation 

The Nystagmus Network relies entirely on membership subscriptions, fundraisingdonations and gifts in wills to continue its important work, providing support and information to the nystagmus community, raising awareness and funding research.

We can't do any of this without your support.

Please donate today

Do you follow us on social media? Join in our daily conversations on Facebook and keep up with all the latest #Nystagmus news on Twitter.

Read all our news first on our BLOG.

If you have any comments or would like to see your story included in a future edition of Focus, please contact us today.

Phone: 01427 718093

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