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Could you leap for nystagmus research?

The Nystagmus Network is partnering with Moorfields Eye Charity to offer you the opportunity of a lifetime, to abseil down the ArcelorMittal Orbit at the Queen Elizabeth Olympic Park, London to raise money for nystagmus research at Moorfields Eye Hospital and University College London.

Do you have what it takes to raise money for pioneering nystagmus research?

Vicky and Tom have already signed up. Come and join them and fly the nystagmus flag!

 

Find out more here

 

Nystagmus research at Cardiff - progress report

The Nystagmus Network is funding equipment and testing to underpin nystagmus research taking place at Cardiff University School of Optometry and Vision Sciences, in collaboration with the genetics research team at the University of Southampton.

Researchers are developing techniques to measure more accurately the visual acuity and peripheral vision of a person with nystagmus, taking into account eye movements and any null point. It is thought that, not only will this work revolutionise the way that sight and vision loss are measured in nystagmus patients, but it will also bring greater insight into the development of sight and the onset of nystagmus itself.

Read more here

 

Members only tickets - booking fast!

If you're a subscribed member and haven't yet booked your ticket for Open Day 2018, you'd better move quickly as places are filling fast. Please use your exclusive link to book your free place today. In order to keep costs manageable, we can accommodate only 200 people, so please make sure you will be able to attend before you book your ticket. We can't afford to waste a single place.

A small allocation of non-member tickets go on sale from 26 July at a cost of £27 per adult, £10 per child. The non-member link will appear in our next issue.

Become a member

 

Meet Marsha at Open Day

Marsha De Cordova MP, Shadow Minister for Disabilities, has nystagmus herself and is very interested in the work of the charity, in particular the area of education advocacy. Marsha will be our keynote speaker at Open Day 2018. 

Click the link below to watch a video and hear Marsha talking about how reading materials and order papers are adapted to enable her to access her work as an MP.

Marsha talks about nystagmus

 

Thank you, Heather!

The Nystagmus Network is hugely grateful to Heather, Practice Manager at the King Cross Surgery, Halifax. Members of the Patient Participation Group (PPG), staff, patients and members of the local community all supported Heather to organise a Nystagmus Awareness Day fundraising event. With a raffle and bake sale, Heather raised £247 and, just as importantly, made sure that everyone in the area is now nystagmus aware.

Well done, Heather! Brilliant bunting!

Pay in your "nystagmus in the open" money here

The truly inspirational David Katz

David will be our guest speaker at Open Day, with tales to tell from his fabulous photographic career and his assignment to the Winter Paralympics in PyeongChang.

See just some of David's pictures here

Sign up to Easy Fundraising for free donations 

Every time you shop online you could raise a free donation for the Nystagmus Network. All the major retailers are part of the scheme and there are some great deals on holidays just now. So please sign up today and feel good every time you shop.

Please sign up today

Please consider making a donation 

The Nystagmus Network relies entirely on membership subscriptions, fundraising and donations to continue its important work, providing support and information to the nystagmus community, raising awareness and funding research.

We can't do any of this without your support.

Please donate today

Do you follow us on social media? Join in our daily conversations on Facebook and keep up with all the latest #nystagmus news on Twitter.

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Members of the Nystagmus Network are automatically signed up to receive this fortnightly digital newsletter every other Thursday directly into their inbox. We believe it's a great way to let you know all the latest nystagmus news and keep you informed about events and research participation opportunities. Other subscribers include our fundraisers, donors and supporters. Please remember that there is an unsubscribe button at the bottom of each and every issue, so if, at any time, you decide you no longer wish to hear from us, please simply click the link.

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