How amazing are you?

In the run up to Nystagmus Awareness Day on 20 June we'll once again be sharing your nystagmus success stories. Please send us your stories now.

Let's celebrate our successes


The Nystagmus Network is here to support you through the hard times of living with a vision impairment. Just some of the things we can help you with are queries about education support, benefits applications and driving with nystagmus.

But isn't is great that we can also be there to help you celebrate the good times, your successes and achievements?

That's why we're running our 'how amazing are you?' campaign once again in the run up to Nystagmus Awareness Day.

Find out more here

Remember these 'amazing' people from last year?

If you would like the world to know what you or someone you care about has achieved despite, or maybe even because of, having nystagmus, please let us know.

Send us your amazing story

We've joined forces with parkrun UK to offer you the opportunity to take part in parkrun just about anywhere in the country, wearing your Nystagmus Network T shirt or wristband. What better way to raise awareness of nystagmus?

On Saturday 22 June adults can take part in a full park run. That’s 5k

CLICK HERE to find your park run

On Sunday 23 June children 4-14 years and their families can take part in junior park run. That’s 2k

CLICK HERE to find your junior park run

Park run is fully accessible to people with vision impairment. There are over 70 fully trained volunteer VI guides available, but all runs are VI friendly with or without guides.

Download your park run sponsorship form here.

Alternative Nystagmus Awareness Day activities

If you prefer, you can organise your own event on Nystagmus Awareness Day itself, Thursday 20 June, or during ‘Wobbly Week’ which runs from 17 to 23 June, including good old ‘Wobbly Wednesday’ on 19 June.
Get your wobbly inspiration here
Join or renew your membership here

Thank you for shopping with Easyfundraising

Thank you to our 100 amazing supporters for shopping online with Easyfundraising. Your support really does make a difference. Together we've raised over £800! 

This month Frances is at the top of our leader board (our best shopper!) Next month it could be you.

So don't forget there are 3,300 shops and sites you can raise free donations with. All the travel companies are on there, too!

It's fundraising for free!

Sign up here


Sign up to our lottery!

You could be our next £25,000 winner!

Sign up here

Please don't forget us

Remembering the Nystagmus Network in your will could make a huge difference to the nystagmus community. It might help us fund that elusive piece of research which leads to a cure for nystagmus.

That would be quite a legacy, wouldn't it?

Please remember us in your will

Sign up for Gift Aid today! 

Did you know that for every £1 you donate to the Nystagmus Network and for every £1 of your annual membership subscription, we can claim an additional 25p back from the UK government, provided you are a UK tax payer? Already donated? You can still sign up today to help us claim your tax back.

You can sign up to Gift Aid by clicking the link below. Thank you.

Please sign up for Gift Aid here

Please consider making a donation 

The Nystagmus Network relies entirely on membership subscriptions, fundraisingdonations and gifts in wills to continue its important work, providing support and information to the nystagmus community, raising awareness and funding research.

We can't do any of this without your support.

Please donate today

Do you follow us on social media? Join in our daily conversations on Facebook and keep up with all the latest #Nystagmus news on Twitter.

Read all our news first on our BLOG.

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Members of the Nystagmus Network receive a fortnightly digital newsletter directly into their inbox. We believe it's a great way to keep them up to date with all the latest nystagmus news, events and research participation opportunities.

This issue of Focus is for our non-members, but our members receive it, too. 

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