Your Nystagmus Awareness Day
events programme - available now

Presentations, competitions, workshops, walks and much more. Don't miss a thing with your digital programme.
Download your programme here

Nystagmus Awareness Day highlights

Here are just some of the online presentations we have planned for you. You'll find all the links in your programme.
  • Nystagmus and Sleep, a presentation and Q+A  with Circadian Therapeutics
  • Nystagmus and Employment Law, a discussion with Mike Cain, solicitor
  • Nystagmus - our perspective: a brand new video featuring 4 people living with congenital or acquired nystagmus

How amazing are you?

Please share your amazing nystagmus stories to help celebrate Nystagmus Awareness Day 2021. What have you achieved despite or maybe even because of having nystagmus? 
Send us your amazing story

 Here's Doug's nystagmus story to start you off.

How amazing is Doug?

Earlier this year, Doug ran the Royal Parks Half Marathon for the Nystagmus Network. He raised £200.

Doug says: 13.1 miles. 25,000 steps, a step for every time someone has told me I need to have my glasses checked.

Read Doug's amazing story here

The Welly Walk for Raindrops

There's still plenty of time to join the Welly Walk for Raindrops Saturday 19 or Sunday 20 June

Help raise awareness and a few pounds, too, by walking 5k in your wellies, come rain or shine.

Money raised from sponsorship of your Welly Walk will go directly into the Nystagmus Network research fund to help give us all hope for the future.

Prizes for everyone who raises £100 or more!
Set up your Welly Walk Justgiving page here

Notes from the Saddle

Are you following Sam's progress? He's cycling 500 miles in 8 days around the North Coast of Scotland for the Nystagmus Network and for all of us. Nystagmus Network Chairman, Tim, is driving the support vehicle and sending us regular updates.
Read Notes from the Saddle here

Meet Claire

Claire Alexander is the author of A Little Bit Different. Join her for a children's writing workshop and an exclusive reading from her brand new book, A Little Bit of Courage, online with the Nystagmus Network.

Thursday 17 June  4:30 – 5:30pm
Book Claire Alexander workshop here

Story writing and drawing competition

for children aged 5 to 14

Enter the Nystagmus Network Raindrops children's competition and tell us what Raindrops mean to you.

Nine-year-old Harry writes in his story: "Raindrops are wet and splodgy on your coat."                                                                  
There are prizes for each age category.

The best stories and drawings will be published in book which will be available to purchase from September 2021.


Closing date: Saturday 19 June

Raindrops story competition details

Photography competition for adults

Enter the Nystagmus Network Raindrops competition for adults by capturing the essence of raindrops.

There are prizes for the winning entries and all photographs will feature in a virtual exhibition for Nystagmus Awareness Day and Open Day 2021.

Raindrops photo competition details

Research news

The Nystagmus Network is delighted to announce that we are funding two brand new nystagmus research projects jointly with our funding partners, Fight for Sight. Details in your programme.

Nystagmus Awareness Day Forums

Please join us online to celebrate everything nystagmus.

Nystagmus Awareness Day Parents' Forum

Tuesday 15 June, 8pm
Request to join the Parents' Forum here

Nystagmus Awareness Day Acquired Nystagmus and Oscillopsia Forum for Adults

Wednesday 16 June, 5pm
Request to join the AN Forum here

Nystagmus Awareness Day Congenital Nystagmus Forum for Adults

Thursday 17 June, 7pm
Request to join the CN Forum here

Don't forget your T-shirt!

Make sure you have everything you need to celebrate Nystagmus Awareness Day 2021. We have T-shirts, wristbands, our lovely special edition scented candles, Raindrops mascots and so much more all available from our online charity shop.
Shop here

Did you know? You can now donate your unwanted books, DVDs, CDs and games to the Nystagmus Network

Download the Ziffit App

Scan your unwanted stuff

Nominate the Nystagmus Network to receive your donation

Box it up

Print your label

Contact free collection

Clear Your Clutter here
Thank you to our Easyfundraising shoppers. You've raised £153.02 in the latest quarter. That's enough to cover our phone bill for the Information and Support Line for six months.

Easyfundraising gives free donations to the Nystagmus Network every time you order something online with one of over 400 retailers. It doesn't cost you a penny. Please support us by signing up today. 

Thank you to all our regular Easyfundraisers
Sign up here
Are you ordering books, games or tech online?

If so, please use  AmazonSmile and Amazon donates to Nystagmus Network, at no cost to you.

Thank you for making us (Amazon) Smile!

Nystagmus Network weather lottery

Would you like the chance to win up to £25,000 every week for £1? Then please sign up to the Nystagmus Network weather lottery.

The proceeds help the charity continue to support the nystagmus community.

Sign up for the weather lottery here

Considering writing your will?

Remembering the Nystagmus Network in your will, once your nearest and dearest have been thought of, could make a huge difference to the nystagmus community.
It might help fund that elusive piece of research which leads to a cure for nystagmus.

That would be quite a legacy, wouldn't it?

Please remember the charity in your will

Sign up for Gift Aid today! 

Did you know that for every £1 you donate to the Nystagmus Network and for every £1 of your annual membership subscription, the UK government will pay an additional 25p, provided you are a UK tax payer? Already donated? You can still sign up to Gift Aid today. Claims for Gift Aid can be backdated up to 4 years.

You can sign up to Gift Aid by clicking the link below. Thank you.

Please sign up for Gift Aid here

Please consider making a donation 

The Nystagmus Network relies entirely on membership subscriptions, fundraisingdonations and gifts in wills to continue its important work, providing support and information to the nystagmus community, raising awareness and funding research.

Please donate today - THANK YOU

Do you follow the Nystagmus Network on social media? Join in the daily conversations on Facebook and keep up with all the latest #Nystagmus news on Twitter and Instagram

Read all the big stories first on the BLOG

If you have any comments or would like to see your story included in a future edition of Focus, please contact us today.

Phone: 01427 718093

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