In today's issue ...

Handheld OCT can predict future vision in INS

Dr Mervyn Thomas of the Ulverscroft Eye Unit, University of Leicester developed a grading system for arrested retinal development as a med student in 2011. 8 years later the team shows it can predict future vision in pre-verbal children with infantile nystagmus.

This development highlights the importance of research investment in diagnostics and also answers the question most parents of newly diagnosed babies have: How well will my child be able to see?

To read the full article from the American Academy of Ophthalmology please click below.

Read the article here

How does sight loss affect you?

Our friends at Fight for Sight are launching an online survey to help demonstrate the personal impact of sight loss. Everyone affected by sight loss or an eye condition, or caring for someone who does can take part to help strengthen the case for urgently needed eye research funding.
Take part in the survey here

Nystagmus and sleep


Parents often wonder whether nystagmus has an impact on their little one's ability to sleep. Well, now we have the chance to find out! 

A team at University College, London is conducting a research study into vision impairment and sleep patterns.

Using a smart bit of tech and a sleep diary, you can take part from your own home.

Click here for details

Caregivers - take part in research

Jamie Enoch, a researcher at the School of Health Sciences at City University London asks:

Are you a UK-based relative, friend or caregiver of someone living with a visual impairment? Do you have 10-15 minutes to spare? If yes, please consider taking part in our survey on your experience of support services.

Thank you.

Take part here

Help us win a £1,000 donation

A specialist charity insurer has launched its annual festive campaign to donate £1,000 to 120 charities over the 12 days leading up to Christmas.

The campaign is called 12 Days of Giving and is being run by insurance firm Ecclesiastical. Winners are drawn at random. The more times a charity is nominated online the better chance they have of being selected for one of the daily awards.

Please nominate the Nystagmus Network using the online form via the insurer’s website. You will need to give the following details:

Charity name: Nystagmus Network

Registered charity number: 1180450

Why we should receive the money.

Nominations will remain open until midnight the day before each draw. Draws will take place each weekday from 5 – 20 December 2019.

The more nominations we receive the greater our chance of winning, so please spread the word and encourage your friends, family, colleagues and anyone else you can think of to nominate us too!

THANK YOU for your support.

Please enter here

Nystagmus Network Christmas Cards


Nystagmus Network Christmas cards are now on sale in our online shop. Choose from two great designs: Tis the Season to be Jolly and Let it Snow.

The cards are approximately 121 x 121 mm in packs of 10 with envelopes and feature the charity logo on the back. The greeting inside the card is Happy Christmas. 

Every penny raised from card sales will help us continue to support the nystagmus community, provide information, raise awareness and fund research.

Thank you for your support.

Order your Christmas cards here

Nystagmus Network weather lottery

Whether it's raining outside, snowing or blowing a gale you can get a warm feeling inside and the chance to win up to £25,000 every week for just £1 simply by signing up to the Nystagmus Network weather lottery.

The charity receives every single penny of the profits.

Please support us. Thank you.

Sign up for our weather lottery here

Thank you to our new Easyfundraising shoppers

We’ve been paid! Thank you so much to everyone who’s helping us by using Easyfundraising to raise free donations when shopping online! You've helped us raise £254.94 this summer.

Please remember to use Easyfundraising for your Christmas shopping, too! Thank you!

It's fundraising for free!

Thank you!

Please don't forget us

Remembering the Nystagmus Network in your will could make a huge difference to the nystagmus community. It might help us fund that elusive piece of research which leads to a cure for nystagmus.

That would be quite a legacy, wouldn't it?

Please remember us in your will

Sign up for Gift Aid today! 

Did you know that for every £1 you donate to the Nystagmus Network and for every £1 of your annual membership subscription, we can claim an additional 25p back from the UK government, provided you are a UK tax payer? Already donated? You can still sign up today to help us claim your tax back. We can backdate our claim up to 4 years.

You can sign up to Gift Aid by clicking the link below. Thank you.

Please sign up for Gift Aid here

Please consider making a donation 

The Nystagmus Network relies entirely on membership subscriptions, fundraisingdonations and gifts in wills to continue its important work, providing support and information to the nystagmus community, raising awareness and funding research.

We can't do any of this without your support.

Please donate today

Do you follow us on social media? Join in our daily conversations on Facebook and keep up with all the latest #Nystagmus news on Twitter.

Read all our news first on our BLOG.

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