Going to uni with nystagmus

Some people with nystagmus might think that university is not for them, but Ella is here to share her experiences of support and success.

Ella applied to uni, starting with her personal statement, just like everyone else. Then, because she has a mild form of cerebral palsy as well as nystagmus and astigmatism, she began to access all the support available to students with disabilities. She graduated last summer with first class honours. Today she shares her story to encourage others to pursue university education.

Read Ella's story here

Jeans for Nystagmus Genes

Any school, business or community organisation can take part in Jeans for Genes Day to help raise money for nystagmus and other genetic disorders. All you do is sign up online, wear your jeans to school, work or to your local group and make a donation.

Choose any day Monday 16 to Friday 20 September.

The Nystagmus Network will receive 50% of every pound you raise PROVIDED THAT your school, business or community organisation ticks the Nystagmus Network from the drop down menu of charities when they register to take part online.

Why are we taking part in Jeans for Genes?

Nystagmus Network is a Jeans for Genes Day 2019 grant charity. Our grant will fund the Nystagmus Network Big Adventure, an activity day for children aged 5-15 with nystagmus. Children from across the UK will attend a day of creative play, looked after by adult facilitators who understand the condition and how it impacts on both vision and social interaction.

Find out more here about our partnership with Genetic Disorders UK.

Thank you for your support.
Read more here

Calling families in Southampton

Our National Lottery funded Parent Power workshop and networking lunch takes place at Southampton Sight on Saturday 12 October. Find out how to access SEND support for your child throughout their education with our education advocates, Frances Lilley and Claire Brinn.
Book your place here

Open Day 2019 programme

We've published our programme for Open Day 2019 in Cardiff. It's going to be a very busy day!
Download your programme here

Thank you to our new Easyfundraising shoppers

Thank you to our amazing supporters for shopping online with Easyfundraising. Your support really does make a difference.

We're well on the way to raising our first £1,000! Just think what we could do with that!

It's fundraising for free!

Sign up here


Play the Nystagmus network weather lottery!

You could be our next £25,000 winner!

Sign up here

Please don't forget us

Remembering the Nystagmus Network in your will could make a huge difference to the nystagmus community. It might help us fund that elusive piece of research which leads to a cure for nystagmus.

That would be quite a legacy, wouldn't it?

Please remember us in your will

Sign up for Gift Aid today! 

Did you know that for every £1 you donate to the Nystagmus Network and for every £1 of your annual membership subscription, we can claim an additional 25p back from the UK government, provided you are a UK tax payer? Already donated? You can still sign up today to help us claim your tax back. We can backdate our claim up to 4 years.

You can sign up to Gift Aid by clicking the link below. Thank you.

Please sign up for Gift Aid here

Please consider making a donation 

The Nystagmus Network relies entirely on membership subscriptions, fundraisingdonations and gifts in wills to continue its important work, providing support and information to the nystagmus community, raising awareness and funding research.

We can't do any of this without your support.

Please donate today

Do you follow us on social media? Join in our daily conversations on Facebook and keep up with all the latest #Nystagmus news on Twitter.

Read all our news first on our BLOG.

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