Just say yes to Cardiff

The Nystagmus Network is delighted to be able to reveal the destination and spectacular venue for this year's Open Day on Saturday 28 September.

The Principality Stadium, Cardiff

Join us in the Millennium Lounge for the most inspirational talks and presentations and meet up with adults, parents, children and young people affected by nystagmus over lunch on the Riverside Terrace.
Details of our venue here

Ben to headline at Open Day

Vision impaired singer songwriter, Ben Haynes, will be our headline speaker at the Nystagmus Network Open Day 2019 on Saturday 28 September.

Meet Ben. Hear him talk about his early days as a young person with nystagmus, playing drums in the garage until his big break into music.

Ben will also perform a live acoustic set for us.
More about Ben here

Introducing Daniel, our keynote speaker

Daniel Williams is the founder of Visualise Training and Consultancy, a company which delivers sight loss awareness to employers.

Daniel, who is gradually losing his own sight due to Retinitis Pigmentosa, says:

"I am passionate about disability rights and making mainstream services accessible to all, enabling people with disabilities to be as independent as possible."

Meet Daniel and hear about his incredible sight loss journey at Open Day 2019.
More about Daniel here

Meet Nadine at Open day

Nadine Neckles is the author of the 2019 book 'Can I tell you about Nystagmus?'.

Amber, the leading character in Nadine's book, was inspired by her daughter, who has nystagmus.

At Open Day Nadine will be there to chat with parents and share experiences of parenting a child with impaired vision.

She will also be signing copies of her book. If you've already purchased a copy, bring it along. Or you can buy a copy on the day.

Read more about Nadine here

Free Open Day places for all members

Nystagmus Network members receive a free place at Open Day as part of their membership package.

Priority booking, for members only, will open soon. Members will be notified by email or letter.

Any remaining tickets, once member tickets have been allocated, will go on general sale a month or so later.

Annual membership of the Nystagmus Network is currently just £20, due to rise to £25 on 1 April.
Open Day tickets are expected to be priced at £32.

Join or renew your membership here

Another BIG announcement ...

parkrun for Nystagmus Awareness Day

This year for Nystagmus Awareness Day and 'Wobbly Week' the Nystagmus Network is joining forces with parkrun to offer you the opportunity to get out into your local park and walk or run for nystagmus awareness.
Find out all about Nystagmus Awareness Day here

They did it!

Around 40 people completed the 4 or 14 mile Eye to Eye walk for nystagmus research on Sunday 10 March. Huge congratulations and thanks go to everyone who took part. We're still adding up the final figures, but so far together you've raised a massive £7,600 for nystagmus research!

See all our Eye to Eye pictures here

Thank you for shopping with Easyfundraising

Thank you to our 100 amazing supporters for shopping online with Easyfundraising. Your support really does make a difference. Together we've raised almost £700!

So don't forget there are 3,300 shops and sites you can raise free donations with. All the travel companies are on there, too!

It's fundraising for free!

Sign up here


Sign up to our lottery!

Sara and Peter are already winners.

You could be our next £25,000 winner!

Sign up here

Please don't forget us

Remembering the Nystagmus Network in your will could  make a huge difference to the nystagmus community. It might help us fund that elusive piece of research which leads to a cure for nystagmus.

That would be quite a legacy, wouldn't it?

Please remember us in your will

Sign up for Gift Aid today! 

Did you know that for every £1 you donate to the Nystagmus Network and for every £1 of your annual membership subscription, we can claim an additional 25p back from the UK government, provided you are a UK tax payer? Already donated? You can still sign up today to help us claim your tax back.

You can sign up to Gift Aid by clicking the link below. Thank you.

Please sign up for Gift Aid here

Please consider making a donation 

The Nystagmus Network relies entirely on membership subscriptions, fundraisingdonations and gifts in wills to continue its important work, providing support and information to the nystagmus community, raising awareness and funding research.

We can't do any of this without your support.

Please donate today

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