Jeans for Genes!


Why are Nystagmus Network trustees and staff members wearing their jeans? Because this year we're taking part in Jeans for Genes day!

Children with nystagmus receive a grant from Jeans For Genes Day 2019

In July 2019, the Nystagmus Network is delighted to announce that we will receive a grant from Genetic Disorders UK, the national charity which organises the annual fundraising day, Jeans for Genes Day. This grant, from funds raised on the Day, will be used to fund the Nystagmus Network Big Adventure.

We'll tell you more about our exciting new project soon. 
But first, we need your help to make Jeans for Genes Day 2019 a big success. 

So please don your double denim and get fundraising for Jeans for Genes Day on September 18th!

Read our full press release here

Parent Power - your invitation

Applications are now invited to take part in the first of our Parent Power workshops.

It will take place in Southampton on Saturday 12 October, 10am to 3pm. Spaces are limited, so if you need help to access SEND support for a child, please book as soon as possible to avoid disappointment.

We will be announcing more dates and locations soon.


Book your place here

Free Open Day tickets for Cardiff families

The Nystagmus Network has been awarded a small grant by the Millennium Stadium Charitable Trust to sponsor a number of free places at Open Day 2019 for Cardiff families. The event takes place on Saturday 28 September at the Principality Stadium, Cardiff.

If you or someone you know would benefit from attending this event, please ask them to email us at or complete our online form by clicking the link below.

Request your free Open Day place here

Thank you to our new Easyfundraising shoppers

Thank you to our amazing supporters for shopping online with Easyfundraising. Your support really does make a difference. Together we've raised over £800! 

It's fundraising for free!

Sign up here


Play the Nystagmus network weather lottery!

You could be our next £25,000 winner!

Sign up here

Please don't forget us

Remembering the Nystagmus Network in your will could make a huge difference to the nystagmus community. It might help us fund that elusive piece of research which leads to a cure for nystagmus.

That would be quite a legacy, wouldn't it?

Please remember us in your will

Sign up for Gift Aid today! 

Did you know that for every £1 you donate to the Nystagmus Network and for every £1 of your annual membership subscription, we can claim an additional 25p back from the UK government, provided you are a UK tax payer? Already donated? You can still sign up today to help us claim your tax back. We can backdate our claim up to 4 years.

You can sign up to Gift Aid by clicking the link below. Thank you.

Please sign up for Gift Aid here

Please consider making a donation 

The Nystagmus Network relies entirely on membership subscriptions, fundraisingdonations and gifts in wills to continue its important work, providing support and information to the nystagmus community, raising awareness and funding research.

We can't do any of this without your support.

Please donate today

Do you follow us on social media? Join in our daily conversations on Facebook and keep up with all the latest #Nystagmus news on Twitter.

Read all our news first on our BLOG.

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