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formidAbility - Joanne's story

Joanne Roughton-Arnold is a member of the Nystagmus Network. She has ocular albinism and congenital nystagmus. She is a professional opera singer and founder of a brand new opera company formidAbility

Watch a formidAbility rehearsal here

 

formidAbility is a healthy mix of disabled and non-disabled artists creating high calibre work, breaking down barriers and challenging perceptions of disability and inclusion in the arts. The company puts accessibility at the heart of the creative process to enhance the performance for all audiences members, losing any sense of division between disabled and non-disabled audiences and artists.

You can enjoy a formidAbility performance at the 2019 Grimeborn Festival in London this month.

 
Read Joanne's full story here

 

Could you be our Digital Champion?


Do you have the digital skills needed to take the Nystagmus Network to the next level? Do you have experience of working with CRM systems and a close connection with nystagmus?

If you'd like to work alongside our trustees, on a voluntary basis, on our digital communications strategy over the next 3 years, we'd love to hear from you
Apply here

 

Open Day programme available soon


Congratulations to all our members who have secured their free places to Open Day 2019 in Cardiff. 

We're just putting the finishing touches to our very busy programme and will be sharing it with you as soon as we can to make sure you have the chance to plan your day and get the very most from your time with us.

We can't wait to see you in Cardiff.
Open Day details here

 

We're changing our bank


The Nystagmus Network is transferring all membership and other accounts from the Royal Bank of Scotland (RBS) to the Charities Aid Foundation bank (CAF).

If you currently pay for your membership by Direct Debit you will be notified of this change, but you won't need to do anything.

If you pay by Standing Order, we will contact you with details of how to set up your new subscription.

If you pay for your membership by credit or debit card, renewals will from now on also be through CAF Donate. We will notify you when your subscription is due.

Thank you for your continued support through your membership subscription.

Membership subs are eligible for Gift Aid

If you haven't already done so and you are a UK tax payer, please complete a Gift Aid form today. That means that for every £1 of your annual membership subscription, we can claim an additional 25p back from the UK government. We can even claim for the past 4 years. That's £21.25 per member!

We can claim Gift aid on your donations, too.

Please sign up for Gift Aid here

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Members of the Nystagmus Network are automatically signed up to receive our digital newsletter directly into their inbox, as well as special member only editions like this one. We believe it's a great way to let you know all the latest nystagmus news and keep you informed about events and research participation opportunities. Please remember that there is an unsubscribe button at the bottom of each and every issue. So if, at any time, you decide you no longer wish to hear from us, please simply click the link.

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