This year on #YouMadeItHappen Day we celebrated the nystagmus heroes of 2019 who really helped make a difference for the nystagmus community.

We said thank you to Patsy, Mike, Nadine, Roger and Delilah for their invaluable contributions this year to nystagmus support, information and awareness.

Read our #YouMadeItHappen stories here

Research into glaucoma and nystagmus


You can help the University of Cardiff team develop new diagnostic testing for people with nystagmus.

“The Research Unit for Nystagmus at Cardiff University is looking for people with nystagmus to take part in a survey to further our understanding on the number of people with nystagmus also diagnosed with glaucoma.

“This survey will help us enhance our knowledge on how clinical tests can be improved to detect additional eye conditions in patients who already have nystagmus.“

Click here to take the survey

Parent Power comes to London


Following the success of our first Parent Power workshop in Southampton last weekend, we are now taking bookings for our next event on Saturday 23 November in London. Join Frances and Claire to find out all you need to know about SEN support for children with nystagmus.

Click here for details and to book your place

Nystagmus Network Christmas Cards


Nystagmus Network Christmas cards are now on sale in our online shop. Choose from two great designs: Tis the Season to be Jolly and Let it Snow.

The cards are approximately 121 x 121 mm in packs of 10 with envelopes and feature the charity logo on the back. The greeting inside the card is Happy Christmas. 

Every penny raised from card sales will help us continue to support the nystagmus community, provide information, raise awareness and fund research.

Thank you for your support.

Order your Christmas cards here

Would your child like a German pen friend?

Thanks to our partnership with the German Nystagmus Network, we can now offer children and young people, who have nystagmus, living in the UK, the chance to make friends with someone in Germany who also has nystagmus.

If your son or daughter would like to send and receive postcards and letters, please click below to apply.

Apply for a penfriend here

Nystagmus Network weather lottery

Whether it's raining outside, snowing or blowing a gale you can get a warm feeling inside and the chance to win up to £25,000 every week for just £1 simply by signing up to the Nystagmus Network weather lottery.

The charity receives every single penny of the profits.

Please support us. Thank you.

Sign up for our weather lottery here

Thank you to our new Easyfundraising shoppers

Thank you to our amazing supporters for shopping online with Easyfundraising. Your support really does make a difference.

We're well on the way to raising our first £1,000! Just think what we could do with that!

It's fundraising for free!

Please sign up here

Please don't forget us

Remembering the Nystagmus Network in your will could make a huge difference to the nystagmus community. It might help us fund that elusive piece of research which leads to a cure for nystagmus.

That would be quite a legacy, wouldn't it?

Please remember us in your will

Sign up for Gift Aid today! 

Did you know that for every £1 you donate to the Nystagmus Network and for every £1 of your annual membership subscription, we can claim an additional 25p back from the UK government, provided you are a UK tax payer? Already donated? You can still sign up today to help us claim your tax back. We can backdate our claim up to 4 years.

You can sign up to Gift Aid by clicking the link below. Thank you.

Please sign up for Gift Aid here

Please consider making a donation 

The Nystagmus Network relies entirely on membership subscriptions, fundraisingdonations and gifts in wills to continue its important work, providing support and information to the nystagmus community, raising awareness and funding research.

We can't do any of this without your support.

Please donate today

Do you follow us on social media? Join in our daily conversations on Facebook and keep up with all the latest #Nystagmus news on Twitter.

Read all our news first on our BLOG.

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