Weekly digest 8 October  2021

Social media posts, events and highlights of the past 7 days

Over on Twitter this week we were trying to track down the mysterious Sue C who won a prize in our Open Day raffle. Meanwhile, on Facebook ...

Screenshot from Sue's discussion workshop presentation for the AIO conference.
Monday Focus - Nystagmus and Employment
Thanks to legislation relating to equality and diversity, it is unlawful to
discriminate against anyone because of a disability or sensory
impairment. Employers have a legal obligation to make reasonable
adjustments in the workplace to ensure that all employees are able to
carry out their role and responsibilities. This begins with the application
and interview process.
Our video 'Nystagmus and Employment Law tells you more about reasonable adjustment and accommodations in the workplace. To receive the link to this and other pre-recorded presentations form Open Day 2021, please email us at or download our digital publication 'Nystagmus and Employment'.

Government grants
Government launches £500m support for vulnerable households over winter
Vulnerable households in England will be able to access a new £500m support fund to help them with essentials over the coming months as the country continues its recovery from the pandemic. More details from the government website.

Tuesday Networking Altogether now
Join us for our online Zoom get togethers this October. There's a group for parents, one for adults living with congenital nystagmus and another for people with acquired nystagmus and oscillopsia.
Talk about anything you like. Ask questions. Share experiences. Make friends.
Email to receive the Zoom invitation.
Parents 19 October 8pm
Acquired nystagmus 20 October 5pm
Congenital nystagmus 21 October 7pm
Everyone welcome

Wednesday Awareness - Wristbands
Help raise awareness of nystagmus and support the charity at the same time by wearing a Nystagmus Network wristband. Available in adult and children's sizes from our online shop. Long lasting, fully embossed and washable.

Thursday Research - Take part in nystagmus research at Cardiff 
Professor Jon Erichsen and his team from the School of Optometry and Vision Sciences, Cardiff University, Nikita Thomas, Katherine Ward and Onyeka Amiebenomo invite you to take part in nystagmus research.
Following their demonstrations at virtual Open Day 2021 of various nystagmus and eye tracking studies currently being carried out, you are warmly invited to apply to take part.
If you’re interested, please visit our website. We will pass your details on to the Cardiff University team, who will be in touch with you.

RNIB Shape and Share - Creepy Craft Halloween Spooktacular
RNIB have a very limited number of places remaining for their Creepy Craft Halloween Spooktacular! Join RNIB's Children, Young People and Families Team as they make a spooky sensory box to house their delicious edible jelly worms in soil and get to meet other families from around the UK as they ask the all-important question… Trick or Treat?!
For more information and to sign up, visit the RNIB website where you will also find a link to the online booking form too. Please feel free to get in touch with RNIB via!

Training for eye care practitioners
Sue from the Nystagmus Network is attending the AIO (Association for Independent Optometrists and Dispensing Opticians) conference this weekend. She will be presenting a discussion workshop on nystagmus from the patient perspective. Practitioners attending her training session will earn 3 CET points towards their professional development and gain a deeper understanding of nystagmus and how to accommodate adults and children in their practices.

Friday Fundraiser - Thank you, Rachel
Rachel and her family, including Star, the dog, took part last weekend in the Chester Business Club annual charity walk. Together they raised a magnificent £605 for the Nystagmus Network. They also raised a lot of nystagmus awareness in their charity T-shirts.

Go, Stephen!
Stephen will be running the Royal Parks Half Marathon for the Nystagmus Network this weekend. It's his second half marathon for us and he's already raised a phenomenal £290!
But Stephen's not just running to raise funds. He also wants to raise awareness.
Stephen says: "You may have wondered why I always sat at the front of class at school.
It may seem strange that I look at you slightly off centre (and maybe not give you as much eye contact as I should). You may wonder why I don't drive and sometimes have to ask for lifts to various events that I can't reciprocate. You might peep your car horn and wave at me in the street but you get no response. You might also not realise that I have no clue what is going on on the far side of a rugby field." It's all because Stephen has nystagmus, of course.
Please show Stephen your support. Thank you.
Thank you all!


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