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Weekly digest, 30 April 2021

Social media posts, events and highlights of the past 7 days
Nystagmus Shop
We reminded the nystagmus community of the products and FREE information available in our online shop. We featured some of the books available along with our nystagmus mascots, T shirts and running vests.

Research
We highlighted the research the charity has been funding since the 1990s and invited our followers to view our latest research news in the research section of the website.

Congenital Nystagmus Forum
The Congenital Nystagmus Forum was held by Zoom on Tuesday evening. Topics under discussion included supermarket coupon schemes and their accessibility, audiobooks, the BBC Radio 4 magazine programme, In Touch and apprehension about preparing to return to normal social interaction, shopping and travelling on public transport.

Harry's Story
We featured 9 year old Harry who has just written a story for the Raindrops children's story writing competition which closes on 19 June. Harry's story was all about raindrops and what they make him think of.

Meet Tim
Tim Pearce, the author of Secret Agent Striker  will be joining us in our next children's online writing workshop on Monday 10 May. Tim describes himself as the "favorite author you've never heard of". We invited our followers to change that and join us at our second session in the series of three.   

Early Childhood Vision Impairment Research
We promoted a research participation opportunity for parents and carers of children under 6 years. A team in Australia want to know what they think of the vision measurement tool known as Measure of Early Vision Use (MEVU) which was initially intended for children with Cerebral Palsy but may be helpful for those with vision impairment.

Social impact of VI on adolescents
We reminded parents and carers of teenagers with nystagmus of a final opportunity to take part in online research by the team at Kingston University, London into the social impact of a visual impairment.

Captain Tom 100
Leon Maidment is running 100 kilometers over the three-day Bank Holiday weekend in honour of Captain Sir Tom to raise money for the Nystagmus Network research fund. Twelve year old Georgie Beggs will be baking 100 cookies over the same three days. We wish them both well and thank them for their support.


ENDS
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