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Weekly digest, 11June 2021

Social media posts, events and highlights of the past 7 days

Notes from The Saddle
Sam set off on Saturday 5 June for the challenge of a lifetime as he cycles over 500 miles in 8 days around the north coast of Scotland. Our Chairman, Tim, will be driving the support vehicle and sending us Sam's "notes from the saddle" along the way. You can sponsor Sam here.

Nystagmus Awareness Day 2021
With just two weeks to go to Nystagmus Awareness Day 2021, we invited everyone to join the Welly Walk, submit their amazing success stories and take part in the Raindrops Photography Competition.


Raindrops Story Writing Competition
Claire Alexander, author of the children's books "A Little Bit Different" and "A Little Bit Of Courage" is one of our Raindrops Children's Story Writing Competition workshop authors. Her Meet The Author event  will take place on Thursday 17 June 2021. Claire introduces her new book and the rainbow story writing competition here.

How amazing are you?
We will once again be publishing nystagmus success stories in celebration of Nystagmus Awareness Day. We invited members of the nystagmus community to share their amazing stories with usWe featured Doug, who ran the Royal Parks Half Marathon and raised £200 for the charity earlier this year.

Sam's NC 500 Challenge
Sam Jones has now completed day 5 of his North Coast 500 Cycling Challenge. He covered 71 miles in poor weather on his first solo ride. Navigation will be challenging from now on.

Ecclesiastical Movement For Good Awards
500 charities stand to win 1000 pounds each from the Ecclesiastical Movement for Good awards scheme. This could pay for nystagmus information leaflets in hospitals across the UK. We invited our followers to nominate us so that we can share in the scheme. You can nominate us here.



Nystagmus Awareness Day programme
We launched our digital events programme for Nystagmus Awareness Day 2021, containing links and details of all the presentations, videos, workshops and forums we have planned. Download your copy here

Friday
 Fundraiser
Sam featured in our Friday fundraiser spot as he nears completion of his 500 mile cycling challenge.

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