All the highlights of
Nystagmus Awareness Day 2021

and a preview of Open Day

Raindrops drawings and paintings

Thank you to all the children who sent us their drawings and paintings of raindrops to mark Nystagmus Awareness Day. Our judges will be awarding prizes for the best very soon.
View all the raindrops pictures here

Sam completes the North Coast 500 

Nystagmus Network Trustee, Sam Jones successfully completed the North Coast 500 cyling challenge last month, cycling over 500 miles in just 8 days and raising over £3,000 for the charity founded by his Mum, Vivien.

Supported part way with the navigation by his cycling buddy, Bill and with Nystagmus Network Chair of Trustees, Tim, driving the support vehicle, Sam managed to avoid the pot holes and other road hazards, climb several steep hills and break through the 'legs of lead' stage, sustaining himself each evening with burgers and beer.

Congratulations, Sam. An amazing achievement!
Enjoy Sam's 'notes from the saddle' here

Thank you to all our Welly Walkers

Huge thanks go to all the adults, children and dogs who took part in the Welly Walk for Raindrops on Saturday 19 or Sunday 20 June. Together you have raised a phenomenal £2,500!
You can still sponsor our Welly Walkers here

How amazing is Tim?

Tim has a whole clutch of awards for his work.

He says: I ain’t done bad for a lad that can’t see too well.

Read all the amazing stories here

Judging your stories and drawings

Thank you to all the children who entered the Raindrops Story Writing competition. Our three wonderful judges will be deciding shortly which of you will be awarded a prize.

Meet the judges here

Photography competition for adults

Thank you to everyone who entered the Nystagmus Network Raindrops competition for adults by capturing the essence of raindrops.

Prizes for the winning entries will be awarded shortly and all your photographs will feature in a virtual exhibition at Open Day.

See some of the entries here

Open Day - Saturday 25 September

The Nystagmus Network is pleased to announce that plans are in full swing for another spectacular Open Day.

Our theme this year is 'How amazing are you?'

Trustees have taken the decision to hold another virtual event this year, given continuing wariness around large gatherings and travelling by public transport.

We can promise you a fantastic line up of inspirational speakers, research updates, workshops, forums, Q+A sessions and lots of networking fun in a packed programme of online live and pre-recorded formats, all available wherever you are.


Registration opens on 3 August

Request an early bird reminder to book

Our July Forums

Parents' Forum

Tuesday 13 July, 8pm
Request to join the Parents' Forum here

Acquired Nystagmus and Oscillopsia Forum 

Wednesday 21 July, 5pm
Request to join the AN Forum here

Congenital Nystagmus Forum for Adults

Thursday 22 July, 7pm
Request to join the CN Forum here

Don't forget your T-shirt!

Our brand new tropical blue Nystagmus Network T shirts will be available to order when you register to attend Open Day 2021.

Sorry, but they're not available to order from our shop.


Thank you for nominating us

The Nystagmus Network has won a £1,000 Movement for Good award from Ecclesiastical Insurance Group thanks to nominations from the public.
The £1,000 Movement for Good donation to the Nystagmus Network will pay for a year’s supply of nystagmus leaflets or postcards for eye clinics around the UK.
As a small charity supporting a big nystagmus community, the Nystagmus Network is grateful to each and every person who nominated us for this donation.

Thank you to everyone who nominated us
Could your company join easyfundraising?

You can now help us raise much-needed donations by registering your business with easyfundraising.

easyfundraising is a website that has helped thousands of good causes like the Nystagmus Network collect over £35 million in donations.

It’s easy - whenever you make your everyday business purchases, whether you’re buying office supplies, technology, booking travel or anything else, you could be raising FREE donations at no extra cost to you.

After signing your business up, simply visit easyfundraising every time you need to buy anything online and shop with over 5,000 well known retailers including Viking, Staples,, Dell, thetrainline, Euroffice as usual.

easyfundraising will then pay you the donations that you’ve raised so that you can pass them onto us. This will make a BIG difference to our fundraising!

Thank you for your support
Sign up your business here
Are you ordering books, games or tech online?

If so, please use  AmazonSmile and Amazon donates to Nystagmus Network, at no cost to you.

Thank you for making us (Amazon) Smile!

Nystagmus Network weather lottery

Would you like the chance to win up to £25,000 every week for £1? Then please sign up to the Nystagmus Network weather lottery.

The proceeds help the charity continue to support the nystagmus community.

Sign up for the weather lottery here

Considering writing your will?

Remembering the Nystagmus Network in your will, once your nearest and dearest have been thought of, could make a huge difference to the nystagmus community.
It might help fund that elusive piece of research which leads to a cure for nystagmus.

That would be quite a legacy, wouldn't it?

Please remember the charity in your will

Sign up for Gift Aid today! 

Did you know that for every £1 you donate to the Nystagmus Network and for every £1 of your annual membership subscription, the UK government will pay an additional 25p, provided you are a UK tax payer? Already donated? You can still sign up to Gift Aid today. Claims for Gift Aid can be backdated up to 4 years.

You can sign up to Gift Aid by clicking the link below. Thank you.

Please sign up for Gift Aid here

Please consider making a donation 

The Nystagmus Network relies entirely on membership subscriptions, fundraisingdonations and gifts in wills to continue its important work, providing support and information to the nystagmus community, raising awareness and funding research.

Please donate today - THANK YOU

Do you follow the Nystagmus Network on social media? Join in the daily conversations on Facebook and keep up with all the latest #Nystagmus news on Twitter and Instagram

Read all the big stories first on the BLOG

If you have any comments or would like to see your story included in a future edition of Focus, please contact us today.

Phone: 01427 718093

You can unsubscribe from Focus

Please remember that there is an unsubscribe button at the bottom of each and every issue of Focus, so if, at any time, you decide you no longer wish to receive your copy, please simply click the link.

Missed any issues?
You can read back numbers in the online archive


Welcome to all our new subscribers!

Unsubscribe from this list
Copyright © 2021 Nystagmus Network, All rights reserved.

Want to change how you receive these emails?
You can update your preferences or unsubscribe from this list.