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The Nystagmus Network wishes you a happy and healthy 2021 and is here to support you through the tougher weeks and months.

Happy New Year

With a most difficult year now thankfully behind us, the Nystagmus Network is here to support the nystagmus community in any way we can.

Staying connected

Virtual meet ups for people living with nystagmus, or supporting someone who does, resume this month.

Parents' Forum

There will be a virtual Parents’ Forum at 8pm on Tuesday 12 January. Share experiences, make new friends. This session will focus on homeschooling and keeping little ones happy, engaged and learning at home. This session will be a zoom chat.
Request Parents' Forum details here

Adults' Forum - Acquired Nystagmus

There will be a virtual Acquired Nystagmus Forum at 5pm on Monday 18 January. Share experiences, make new friends. This session will focus on virtual hospital appointments and progress with our AN data bank.
Request Acquired Nystagmus Forum details here

Adults' Forum - Congenital Nystagmus

There will be a virtual Congenital Nystagmus Forum for Adults at 7pm on Tuesday 26 January. Share experiences, make new friends. This session will focus on treatments available around the world.
Request Congenital Nystagmus Forum details here
We all hope to be able to meet again face to face soon and are busy organising local and regional groups. Meanwhile ...
Nystagmus Network Open Day 2021 - Sheffield

The Nystagmus Network is delighted to announce that, circumstances permitting, we will be hosting our annual Open Day this year on Saturday 25 September at the magnificent Cutlers' Hall in Sheffield.

This follows a very successful virtual Open Day 2020

Open Day will include inspirational speakers and presenters, research updates, fun team building activities for children and young people and lots, lots more.

Request details here

The Nystagmus Network 19 - 21 challenge

Thank you to everyone who's already signed up for the Nystagmus Network 19-21 challenge. Together you've raised £851 so far!

Sign up by 21 January to receive a free Nystagmus Network T shirt

What’s the 19 – 21 challenge?

1 Choose to run, walk or cycle

2 Select your distance

3 Set up your Justgiving page and off you go

Sign up with Justgiving here

As soon as you set up your Justgiving page we’ll be in touch and post your Nystagmus Network T shirt.

Wear your free T shirt with pride, get all your friends and family to sponsor you, get out there and get fit!

Good luck!

Find out more here

Nystagmus Network T shirt designed by Ahrian

Happy New Year to all our readers

The picture shows Sue's dog, Ailbe enjoying his lunch break away from the Nystagmus Network office.
Shop on AmazonSmile and Amazon donates to Nystagmus Network, at no cost to you.

Thank you for making us (Amazon) Smile!
Thank you to all 175 of our Easyfundraising shoppers. In December you raised over £74 for the charity. Easyfundraising gives free donations to the Nystagmus Network every time you order something online with one of over 400 retailers. It doesn't cost you a penny. Please support us by signing up today. 

Thank you to all our regular Easyfundraisers
Sign up here

Nystagmus Network weather lottery

Would you like the chance to win up to £25,000 every week for £1? Then please sign up to the Nystagmus Network weather lottery.

The proceeds help the charity continue to support the nystagmus community.

Sign up for the weather lottery here

Making your will?

Remembering the Nystagmus Network in your will could make a huge difference to the nystagmus community. It might help fund that elusive piece of research which leads to a cure for nystagmus.

That would be quite a legacy, wouldn't it?

Please remember the charity in your will

Sign up for Gift Aid today! 

Did you know that for every £1 you donate to the Nystagmus Network and for every £1 of your annual membership subscription, the UK government will pay an additional 25p, provided you are a UK tax payer? Already donated? You can still sign up to Gift Aid today. Claims for Gift Aid can be backdated up to 4 years.

You can sign up to Gift Aid by clicking the link below. Thank you.

Please sign up for Gift Aid here

Please consider making a donation 

The Nystagmus Network relies entirely on membership subscriptions, fundraisingdonations and gifts in wills to continue its important work, providing support and information to the nystagmus community, raising awareness and funding research.

Please donate today

Do you follow the Nystagmus Network on social media? Join in the daily conversations on Facebook and keep up with all the latest #Nystagmus news on Twitter and Instagram


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If you have any comments or would like to see your story included in a future edition of Focus, please contact us today.


Email: info@nystagmusnet.org
Phone: 01427 718093

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