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Want to meet up?


You're warmly invited to join us for one or more of our upcoming forums in the run up to Open Day 2020.

Because we know that one of the 'best bits' of Open Day is meeting up with others, we're holding a series of online forums to help you do just that.

In August and September, we'll be hosting some great opportunities for you to network and chat with other people living with nystagmus or other parents.

Parents' Forum


A zoom meet up led by Nystagmus Network staff and volunteers. Your chance to network, chat and ask all your burning questions.

Thursday 13 August at 7.30pm
Parents sign up here

Adults' Forum


A zoom meet up led by Nystagmus Network staff and volunteers. Your chance to meet up and share notes with other adults living with nystagmus.

Thursday 27 August at 6pm
Adults sign up here

Acquired Nystagmus Group  - meet the expert


A zoom meet up led by Nystagmus Network staff and volunteers. Your chance to hear an expert speak about acquired nystagmus and ask questions.

Date and Time to be confirmed
Acquired Nystagmus sign up here

Open Day may be virtual this year ...

... but it will still be BRILLIANT!

Watch the video here

Never a better time to be a member

There's always something for everyone at Open Day, but for members there are some really great extras.

This year members of the Nystagmus Network will have the opportunity to book timed telephone appointments with a benefits adviser or an education advocate throughout the day. Places will be limited. 

Members will also be invited to the charity’s AGM. 

The day will close with a virtual dinner event with special guests, for members only.


Membership of the Nystagmus Network costs £25 per year and helps keep us going.

Become a member here

Trustee and volunteering opportunities

Are you looking for a new opportunity to give your energy, time, skills and talent to support a small charity?

The Nystagmus Network is looking for people who would like to help the work we do as a volunteer, or join us as a Trustee to guide and direct the charity’s work.

The skills, talent and experience we would be interested in are:

  • Fundraising
  • Volunteer Management / Networking
  • Corporate Law
  • Clinical Practice
  • IT and Web Design

For people considering offering their services as a potential Trustee, the minimum time commitments are one full Saturday four times a year, an evening or daytime phone call every 6 weeks, attendance at the annual Open Day and support for Nystagmus Awareness Day. Trustees have particular legal responsibilities under charity law.

If you have time to give us, then please drop us an email at trustees@nystagmusnet.org with a brief summary of how you would like to get involved and the skills and experience you have to offer. We will then be in touch.

We welcome interest from people with and without nystagmus.

Apply here

B4 sports classification - a petition

Charities supporting people with vision impairments, including the Nystagmus Network and the Albinism Fellowship UK, have signed an open letter from B4 International Blind Sports, outlining concerns about discrimination towards athletes classified B4 in international blind sports. The letter is addressed to the IBSA (International Blind Sports Association) and the IPC (International Paralympic Committee).

Please click the link below to read more about the issues and consider whether you would like to sign the petition.

Read more here

Ask us anything - we're here for you.

Whether you're worried about face masks and your field of vision, going back to school or who you can and can't meet up with - we can help.
Contact us with your question here
If you're ordering from Amazon, please remember to head to smile.amazon.co.uk and select the Nystagmus Network as your preferred charity. We will then receive a small donation for every order you place. It all adds up. Last quarter our Smile Amazon shoppers helped us raise £34.94.

Amazon Smile is now available through the Amazon app. Make sure you’ve got the latest version, then go to settings and turn amazon smile ‘on’.


Thank you for making us (Amazon) Smile!
If you're not yet signed up to raise free donations for the Nystagmus Network every time you shop online, please sign up to Easyfundraising. You'll find all your favourite online retailers at all the usual prices.

Thank you to all our regular Easyfundraisers
Sign up here

Nystagmus Network weather lottery

Would you like the chance to win up to £25,000 every week for £1? Then please sign up to the Nystagmus Network weather lottery.

The proceeds help the charity continue to support the nystagmus community.

Sign up for the weather lottery here

Making your will?

Remembering the Nystagmus Network in your will could make a huge difference to the nystagmus community. It might help fund that elusive piece of research which leads to a cure for nystagmus.

That would be quite a legacy, wouldn't it?

Please remember the charity in your will

Sign up for Gift Aid today! 

Did you know that for every £1 you donate to the Nystagmus Network and for every £1 of your annual membership subscription, the UK government will pay an additional 25p, provided you are a UK tax payer? Already donated? You can still sign up to Gift Aid today. Claims for Gift Aid can be backdated up to 4 years.

You can sign up to Gift Aid by clicking the link below. Thank you.

Please sign up for Gift Aid here

Please consider making a donation 

The Nystagmus Network relies entirely on membership subscriptions, fundraisingdonations and gifts in wills to continue its important work, providing support and information to the nystagmus community, raising awareness and funding research.

Please donate today

Do you follow the Nystagmus Network on social media? Join in the daily conversations on Facebook and keep up with all the latest #Nystagmus news on Twitter.


Read all the big stories first on the BLOG.

If you have any comments or would like to see your story included in a future edition of Focus, please contact us today.


Email: info@nystagmusnet.org
Phone: 01427 718093

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