Acquired Nystagmus and Oscillopsia Forum

Notes from the April 2021 meeting
Thank you to everyone who joined us for the Nystagmus Network April Forum for Adults living with Acquired Nystagmus and Oscillopsia.

Doctors' Appointments
There seemed to be some disparity from one region to another as to how long people were having to wait to see their GP. Some were able to have face to face appointments straightaway, whereas others were waiting for telephone appointments.

There was some discussion about driving with nystagmus. It was generally agreed that those still able to drive, albeit in limited circumstances or for short, familiar journeys only, were fortunate. Please always check that your vision meets DVLA requirements for driving before getting behind the wheel of a car. If in any doubt, please check with your local optician. You can read more in our guide to nystagmus and driving.

The Oscillipsia Simulator
The team at the University of Sheffield developed the Oscillopsia simulator app to provide a handy way for people to explain how the vision is affected. You can download the app to a hand held device and then view it using a Google cardboard 3D viewer, available from Smile Amazon.

Professor Adolfo Bronstein
We heard about a London balance expert, Professor Adolfo Bronstein from one of our forum members, who also kindly shared his medical history and experience.

Acquired Nystagmus on the website
You can now find our dedicated AN and Oscillopsia area on the main Nystagmus Network website here.

Please feel free to join our Facebook group for people living with AN and Oscillopsia.

Date of next meeting: Thursday 20 May 5pm

And finally, please encourage any children or grandchildren to take part in the Nystagmus Network children’s story writing competition and workshops for Raindrops, our new campaign for Nystagmus Awareness Day 2021. There’s a photography competition for adults with nystagmus, too.

Till next month, best wishes

Sue, Nystagmus Network


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