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It's beginning to feel a bit like Christmas

With Parent Power workshops, shopping, Santa runs and Christmas cards, it's going to be a very busy time.
Parent Power booking now
Thanks to a grant from the Thomas Pocklington Trust, the Nystagmus Network is able to offer parents and carers of children and young people with nystagmus the opportunity to attend one of a brand new set of FREE webinars on SEND. Find out what support is available in schools or early years settings and how to access it for your child. Workshops run from 10am to 2.45pm.

Karen, a qualified and experienced IPSEA trainer, will lead the online workshops supported by Nystagmus Network volunteer education advocate, Claire and staff team member, Sue.

Places on the November and December sessions are booking fast,. Register today to avoid missing out.
Book Parent Power 19 November here
Book Parent Power 10 December here
Members of the Nystagmus Network can request a referral to our Education Advocacy Service for one to one support with casework.
Please nominate us to win a £1,000 donation
For 12 days – as part of Ecclesiastical's movement for good – they'll be making £120,000 in donations to charities to help them deliver their vital work. Please nominate the Nystagmus Network for a chance to help us win £1,000! With that amount of money we could supply a lot of hospital clinics with nystagmus information leaflets for their patients.
Nominate the Nystagmus Network here
Santa run, anyone?
There's still time to run for the Nystagmus Network for that real pre-Christmas feel good factor. 

Donna will be running the MK half marathon on 12 December. She says: "I am running my first half marathon for Nystagmus Network because further research is desperately required. I've decided to run to raise money and awareness for nystagmus. My son was born with this currently incurable eye condition which affects him every day. There is little known about the condition or why people are born with it. My hope is that, with further research, some day, there will be a cure."

Thank you, Donna. We can all agree with those sentiments.
Sponsor Donna here

What do we see?
In answer to the question ‘What does a visually impaired child see?’ the Thomas Pocklington Trust has produced a new video simulating the 5 most commonly seen forms of vision impairment in children and young people, including nystagmus. The film, What do we see? 2, shows what it’s like to have nystagmus, retinitis pigmentosa, infantile or juvenile cataracts, retinopathy of prematurity and optic atrophy. Footage was recorded in a school setting.

Members of the Nystagmus Network forum for adults living with congenital nystagmus viewed the first draft of the nystagmus simulation and helped shape the final version. We are very grateful for their feedback.

TPT said: “Thank you so much for all your support and guidance throughout the making of this. We couldn’t have done it without you.”

Please view the film and let us know what you think.

View What do we see 2? here

Our Christmas shop is open!

Scented candles, T-shirts, wristbands, books, Nystagmus Network Christmas cards and knitted mascots - there's something for everyone in our Christmas shop. Please place your orders early. Thank you.
Visit the Christmas shop here

Your November Forums

Regular forum members will shortly receive their Zoom invitations to the next online get togethers.

If you're new to the forums and you'd like to join us this month, please contact us below. You'll be most welcome.

Parents' Forum

Tuesday 23 November 8pm
Request to join the Parents' Forum here

Acquired Nystagmus and Oscillopsia Forum 

Wednesday 24 November 5pm
Request to join the AN Forum here

Congenital Nystagmus Forum for Adults

Thursday 25 November 7pm
Request to join the CN Forum here

Please remember to use #easyfundraising when you do your Christmas shopping. 

Over 6,000 shops and sites will donate to the Nystagmus Network at no extra cost to you - so you can raise donations when you buy gifts, decorations, your festive food or anything else. #ThisMeansMore than gifts for loved ones, it means donations that help make a difference!

Thank you to all our regular easyfundraising shoppers!
Sign up here
The logo of Amazon Smile
Are you ordering books, games or tech online?

If so, please use AmazonSmile and Amazon donates to Nystagmus Network, at no cost to you.

Thank you for making us (Amazon) Smile!
Find Amazon Smile here

Nystagmus Network weather lottery

For the chance to win up to £25,000 every week for £1, please sign up to the Nystagmus Network weather lottery.

The proceeds help the charity continue to support the nystagmus community.

Sign up for the weather lottery here

Considering writing your will?

Remembering the Nystagmus Network in your will, once your nearest and dearest have been thought of, could make a huge difference to the nystagmus community.
It might help fund that elusive piece of research which leads to a cure for nystagmus.

That would be quite a legacy, wouldn't it?

Please remember the charity in your will

Sign up for Gift Aid today! 

Did you know that for every £1 you donate to the Nystagmus Network and for every £1 of your annual membership subscription, the UK government will pay an additional 25p, provided you are a UK tax payer? Already donated? You can still sign up to Gift Aid today. Claims for Gift Aid can be backdated up to 4 years.

You can sign up to Gift Aid by clicking the link below. Thank you.

Please sign up for Gift Aid here

Please consider making a donation 

The Nystagmus Network relies entirely on membership subscriptions, fundraisingdonations and gifts in wills to continue its important work, providing support and information to the nystagmus community, raising awareness and funding research.

Please donate today - THANK YOU

Do you follow the Nystagmus Network on social media? Join in the daily conversations on Facebook and keep up with all the latest #Nystagmus news on Twitter and Instagram


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Email: info@nystagmusnet.org
Phone: 01427 718093

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