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Nystagmus Network Open day 2020


Booking opens TODAY for members.

Night in with the Nystagmus Network


Members of the Nystagmus Network are warmly invited to join trustees, staff, volunteers and some very special VIP guests for a virtual supper party on Saturday 3 October.
What better way to round off Open Day 2020?

Saturday 3 October from 7.30 to 9pm
Book here for Night in with the Nystagmus Network

Annual General Meeting


The AGM of the Nystagmus Network takes place at 5pm on Saturday 3 October. This is an online event. Members wishing to attend and exercise their right to vote are invited to reserve their place now. Before the meeting, you will receive minutes of the last meeting together with a zoom link and instructions to join the AGM.

Saturday 3 October at 5pm
Book here for the AGM

Education advocacy and benefits advice

Members of the Nystagmus Network will be able to book phone appointments with an education advocate or a benefits adviser throughout Open Day. Places are limited.
If you would like an appointment, please let us know.

Saturday 3 October from 10am.
Education advocacy appointments
Benefits advice appointments

Open Day may be virtual this year ...

... but it will still be BRILLIANT!

Watch the video here

Don't forget to join the adults' zoom meet up

Adults' Forum


A zoom meet up led by Nystagmus Network staff and volunteers. Your chance to meet up and share notes with other adults living with nystagmus.

Thursday 27 August at 6pm
Adults sign up here

For those living with Acquired Nystagmus

Acquired Nystagmus Group  - meet the expert


A presentation by a leading Acquired Nystagmus expert, followed by your questions answered.

Date and Time to be confirmed - September 2020
Acquired Nystagmus sign up here

Trustee and volunteering opportunities

Are you looking for a new opportunity to give your energy, time, skills and talent to support a small charity?

The Nystagmus Network is looking for people who would like to help the work we do as a volunteer, or join us as a Trustee to guide and direct the charity’s work.

The skills, talent and experience we would be interested in are:

  • Fundraising
  • Volunteer Management / Networking
  • Corporate Law
  • Clinical Practice
  • IT and Web Design

For people considering offering their services as a potential Trustee, the minimum time commitments are one full Saturday four times a year, an evening or daytime phone call every 6 weeks, attendance at the annual Open Day and support for Nystagmus Awareness Day. Trustees have particular legal responsibilities under charity law.

If you have time to give us, then please drop us an email at trustees@nystagmusnet.org with a brief summary of how you would like to get involved and the skills and experience you have to offer. We will then be in touch.

We welcome interest from people with and without nystagmus.

Apply here

Ask us anything - we're here for you.

Whether you're worried about face masks and your field of vision, going back to school or who you can and can't meet up with - we can help.
Contact us with your question here
Shop on AmazonSmile and Amazon donates to Nystagmus Network, at no cost to you.

Since April our supporters have raised over £70.


Thank you for making us (Amazon) Smile!
If you're not yet signed up to raise free donations for the Nystagmus Network every time you shop online, please sign up to Easyfundraising. You'll find all your favourite online retailers at all the usual prices.

Thank you to all our regular Easyfundraisers
Sign up here

Nystagmus Network weather lottery

Would you like the chance to win up to £25,000 every week for £1? Then please sign up to the Nystagmus Network weather lottery.

The proceeds help the charity continue to support the nystagmus community.

Sign up for the weather lottery here

Making your will?

Remembering the Nystagmus Network in your will could make a huge difference to the nystagmus community. It might help fund that elusive piece of research which leads to a cure for nystagmus.

That would be quite a legacy, wouldn't it?

Please remember the charity in your will

Sign up for Gift Aid today! 

Did you know that for every £1 you donate to the Nystagmus Network and for every £1 of your annual membership subscription, the UK government will pay an additional 25p, provided you are a UK tax payer? Already donated? You can still sign up to Gift Aid today. Claims for Gift Aid can be backdated up to 4 years.

You can sign up to Gift Aid by clicking the link below. Thank you.

Please sign up for Gift Aid here

Please consider making a donation 

The Nystagmus Network relies entirely on membership subscriptions, fundraisingdonations and gifts in wills to continue its important work, providing support and information to the nystagmus community, raising awareness and funding research.

Please donate today

Do you follow the Nystagmus Network on social media? Join in the daily conversations on Facebook and keep up with all the latest #Nystagmus news on Twitter.


Read all the big stories first on the BLOG.

If you have any comments or would like to see your story included in a future edition of Focus, please contact us today.


Email: info@nystagmusnet.org
Phone: 01427 718093

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