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Weekly digest 15 October  2021

Social media posts, events and highlights of the past 7 days

Over on Twitter this week we marked World Mental Health Day and World Sight Day. Meanwhile, on Facebook ...

 
The Christmas shop is open!
The Nystagmus Network online Christmas shop opened officially, with scented candles, charity Christmas cards, books and knitted nystagmus elves on sale. 

Monday Focus - therapy for nystagmus
There is an ever growing list of therapies which have been claimed to reduce the effects of nystagmus. These include glasses, contact lenses, surgery, bio-feedback, after-image therapy, intermittent photic stimulation, drugs, hypnosis, neck massage and acupuncture. Many of these have not stood the test of time and some are expensive. None claims to cure the nystagmus completely, but some do claim to improve the vision to some extent in some patients.
The Nystagmus Network will continue to search for and investigate therapies which may work and refer to our research and clinical advisers for guidance. Meanwhile, if there's anything you'd like us to look into, something that has worked for you, please let us know.


Tuesday Networking Make friends with your ECLO
There is an Eye Clinic Liaison Officer (ECLO) attached to most hospitals. If you have any kind of vision impairment they can help you to access local services for blind and partially sighted people in your area. If you haven't met your ECLO yet you can find them using the Sightline Directory (enter ECLO and your postcode in the search) or email info@nystagmusnet.org and we will find them for you.


Wednesday Awareness - Nystagmus is ...
This guide to what it's really like to have nystagmus is written by the people who really know. Download your copy from our website.


The impact a brain injury can have on vision
We shared an article by Eilish A Barry.

Tech for all
You can still apply for a free iPad or iPhone for your child
Tech for all is a scheme run by Guide Dogs.


Thursday Research - Joining the panel at RIDC
The RIDC (The Research Institute for Disabled Consumers) panel is open to anyone who identifies as being disabled, including older people and those living with physical or mental health conditions.
It’s free to sign up and many find it a rewarding and interesting experience. Once signed up you do not have to take part in any research that you don’t want to. More information from the RIDC website.


Focus is out!
The Nystagmus Network's digital newsletter is out today marking the change of the seasons. This may be the tome for pumpkins, bonfires and cosy nights in, but the nystagmus elves are always busy!


Friday Fundraiser -  the Kifit Striders
Kieran, Janine, Laura H, Beth, Laura M, Spud, Paul, Barry, Nicola, Kayleigh, Sam, Tony, Charlotte, Sophia, and Ava are the Kifit striders. They will be taking part in the Liverpool rock n roll half marathon later this month supporting 3 charities, one of which is the Nystagmus Network. Thank you, guys, for your support. Go, Janine!

 

ENDS

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