Welcome to this members only edition of Focus 
where we introduce two new team members, offer you free run places and share some exciting news about nystagmus research and Nystagmus Awareness Day 2021

Thank you for your support

Whether you have been a member for many years or have joined the Nystagmus Network more recently, we thank you for your invaluable support of the charity.

Introducing Fiona and Ian

Fiona joins our staff team

Fiona joined the Nystagmus Network staff team in January 2021 as an Uptern. This is an internship for more mature people who are looking to move into a new career. 

Initially, Fiona is gaining knowledge and experience of working with a small charity and exploring new ways to develop our services. On successful completion of her Upternship, she will take on the post of Development Coordinator (Fundraising).


Following a career in public service, most recently as an ECLO (Eye Clinic Liaison Officer) and Complaints Officer with the NHS and before that serving as a Police Officer for 30 years, Ian has settled quickly into his new role with the charity as an Information Support Officer.

DCMS Pears Foundation funding 

Fiona’s Upternship and Ian's initial three months are funded by a grant from Pears Foundation which is part of Government’s £750m charities package.

The charity is grateful to Pears Foundation for their philanthropic support. 

February Parents' Forum

The next virtual Parents’ Forum is at 8pm on Tuesday 16 February. Share experiences, make new friends.

Read the notes from our January meet up here
Request to join the Parents' Forum here

Adults' Forum - Acquired Nystagmus

The next virtual AN Forum is at 5pm on Monday 15 February. Share experiences, make new friends. 

Read the notes from our January meet up here
Request to join the AN Forum here

Adults' Forum - Congenital Nystagmus

The next virtual CN Forum is at 7pm on Thursday 11 February. Share experiences, make new friends. 

Read the notes from our January meet up here
Request to join the CN Forum here

Would you like a FREE RUN PLACE in the Royal Parks Half Marathon?

On Sunday 11 April 2021 the Royal Parks Half takes place virtually. This will be an unparalleled digital experience which mirrors as much of the in-person race as possible, including a premium race pack, sights and sounds from the beautiful course (from industry-leading augmented reality), leader boards and that much needed support from fellow runners and spectators.

You will be required to track your 13.1 miles in your local area and fundraise a minimum amount of £175 for the Nystagmus Network.

Priority booking for members

Book your free run place here
We will shortly be announcing the exciting theme for Nystagmus Awareness Day 2021. We are planning lots of activities for you to take part in.

We can exclusively reveal to members that there will be a fabulous story writing competition for children. We will let you know more on launch day which is Thursday 4 March - World Book Day.

Meanwhile, we'd love to know who your favourite children's author is.
My favourite children's author is ...

And finally ...

We are delighted to share some very good news about the future of nystagmus research in the UK. 
The future of nystagmus research in the UK is in safe hands as two young researchers achieve success in their career paths.
Vijay Taylor 
Our thanks go to Vijay Taylor, nystagmus researcher at London’s Moorfields Eye Hospital and University College London whose PhD research on nystagmus and visual crowding is published.

Nikita Thomas
We send huge congratulations to the newly qualified Dr Nikita Thomas. Dr Thomas, a member of the Cardiff University team, achieved her PhD in January. She has already embarked on her postdoctoral career at Cardiff.

Did you know? You can now donate your unwanted books, DVDs, CDs and games to the Nystagmus Network

Download the Ziffit App

Scan your unwanted stuff

Nominate the Nystagmus Network to receive your donation

Box it up

Print your label

Contact free collection

Clear Your Clutter here
Thank you to all 175 of our Easyfundraising shoppers. In December you raised over £74 for the charity. Easyfundraising gives free donations to the Nystagmus Network every time you order something online with one of over 400 retailers. It doesn't cost you a penny. Please support us by signing up today. 

Thank you to all our regular Easyfundraisers
Sign up here
Shop on AmazonSmile and Amazon donates to Nystagmus Network, at no cost to you.

Thank you for making us (Amazon) Smile!

Nystagmus Network weather lottery

Would you like the chance to win up to £25,000 every week for £1? Then please sign up to the Nystagmus Network weather lottery.

The proceeds help the charity continue to support the nystagmus community.

Sign up for the weather lottery here

Making your will?

Remembering the Nystagmus Network in your will could make a huge difference to the nystagmus community. It might help fund that elusive piece of research which leads to a cure for nystagmus.

That would be quite a legacy, wouldn't it?

Please remember the charity in your will

Sign up for Gift Aid today! 

Did you know that for every £1 you donate to the Nystagmus Network and for every £1 of your annual membership subscription, the UK government will pay an additional 25p, provided you are a UK tax payer? Already donated? You can still sign up to Gift Aid today. Claims for Gift Aid can be backdated up to 4 years.

You can sign up to Gift Aid by clicking the link below. Thank you.

Please sign up for Gift Aid here

Please consider making a donation 

The Nystagmus Network relies entirely on membership subscriptions, fundraisingdonations and gifts in wills to continue its important work, providing support and information to the nystagmus community, raising awareness and funding research.

Please donate today - THANK YOU

Do you follow the Nystagmus Network on social media? Join in the daily conversations on Facebook and keep up with all the latest #Nystagmus news on Twitter and Instagram

Read all the big stories first on the BLOG

If you have any comments or would like to see your story included in a future edition of Focus, please contact us today.

Phone: 01427 718093

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