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On your marks for Open Day 2018

Priority booking for members only of the Nystagmus Network will open at midday on Thursday 28 June. With a limited number of adult and child spaces available, it will be a case of first come, first served once tickets are released. Tickets for members are free of charge. Members will be notified how to book by email or letter. Any remaining tickets still available, once member places have been allocated, will go on sale to non-members a month later. 

Become a member

 

Share your plans for "nystagmus in the open"

Schools, hospitals, universities, sports clubs and families are busily preparing for Nystagmus Awareness Day 2018 on Wednesday 20 June. What have you got planned? If you haven't already decided how to celebrate the day, we have loads of great fundraising ideas for you and lots of free resources for you to download. Please remember to link your event to our "nystagmus in the open" campaign page.

Get your "nystagmus in the open" stuff here

 

Sponsorship opportunity

With 200 nystagmus families expected to join us for Open Day 2018 this is the biggest nystagmus event in the country and an amazing sponsorship opportunity for any company supplying goods or services to the visually impaired population. Open Day is also the charity's biggest annual expense. By seeking sponsorship, we hope to be able to redirect more of your hard earned cash from fundraising, donations and membership subscriptions into research. If you, or someone you know, might be interested in sponsoring our event, please contact us.

Details here

 

Final call for sledging and skiing this summer

There are just a few places left for sledging and skiing at our two Snow Dome events this summer. You can join the Outspan Rebels VI ski team and their head coach, Charlotte Evans MBE along with a host of other skiers and guides for a fun day on the slopes for all the family. Plus - there are medals at the end for all VI skiers!

Book your place here

 

Please join our Nystagmus in the Open thunderclap!

At 12 midday on Wednesday 20 June, with your support, we can get #nystagmusintheopen trending on social media. All you need to do is sign up from your Facebook or Twitter account (you can do both!) and there'll be a nystagmus thunderclap rippling across the world.
How cool is that?

Sign up to the thunderclap here

 

The Big Blind Walk - a third of the way there

Julian has been walking now for almost three weeks and today he crosses from Shropshire into Cheshire. Please get out there on the route to cheer him on if you can. He's already been joined by several Nystagmus Network members and supporters, and at least one countess (!) with more joining him when he reaches Carlisle, the Lake District and the Scottish Highlands. Charity trustee, Marie and her son will be joining him at the weekend, so watch out for them, too, in their Nystagmus Network T-shirts!

Julian's aim is to raise £350,000 for sight research and raise awareness of the need for more investment into sight loss and visual impairment.

Read all about the Big Blind Walk here

Have you sent us your 'amazing' story yet? 

We've received some truly amazing nystagmus stories so far. We're planning to share as many as we can in the run up to Nystagmus Awareness Day to prove that nystagmus doesn't have to hold you back from achieving great things. We'll definitely be telling you Katrina, Charlie, Rosine, Ben and Chris's stories, but we want to hear yours, too!

Send us your story

Please consider making a donation 

The Nystagmus Network relies entirely on membership subscriptions, fundraising and donations to continue its important work, providing support and information to the nystagmus community, raising awareness and funding research.

We can't do any of this without your support.

Please donate today

Do you follow us on social media? Join in our daily conversations on Facebook and keep up with all the latest #nystagmus news on Twitter.

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Members of the Nystagmus Network are automatically signed up to receive this fortnightly digital newsletter every other Thursday directly into their inbox. We believe it's a great way to let you know all the latest nystagmus news and keep you informed about events and research participation opportunities. Other subscribers include our fundraisers, donors and supporters. Please remember that there is an unsubscribe button at the bottom of each and every issue, so if, at any time, you decide you no longer wish to hear from us, please simply click the link.

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