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Jeans for nystagmus genes


With as many as 336 genes potentially implicated in the onset of congenital nystagmus, the Nystagmus Network thought it was about time we got involved with Jeans for Genes Day.

In 2018 we made a grant application to Genetic Disorders UK, who run the Jeans for Genes Day fundraising campaign and we're delighted to announce that we are one of 22 charities to be awarded a grant in 2019.


Our Jeans for Genes grant will go towards our exciting new project, the Nystagmus Network Big Adventure. We'll be telling you more about that in the coming months.

But first, we need your help to make Jeans for Genes Day 2019 a big success.

So please join charity trustees and staff and don your double denim on September 18th!

Read our full press release here

 

Parent Power - your invitation


The Nystagmus Network is now inviting parents and carers to attend the first of our Parent Power education workshops.

It will take place in Southampton on Saturday 12 October, 10am to 2pm. Spaces are limited, so if you need help to access SEN support for a child, please book as soon as possible to avoid disappointment.

We will be announcing more dates and locations soon.
Book your place here

 

Published today - our Research Strategy 2019-22


Nystagmus Network trustees publish their Research Strategy document today, including details of nystagmus research projects, collaborations and funding arrangements for the next 3 years.
Download your free copy here

Membership subs are eligible for Gift Aid

If you haven't already done so and you are a UK tax payer, please complete a Gift Aid form today. That means that for every £1 of your annual membership subscription, we can claim an additional 25p back from the UK government. We can even claim for the past 4 years. That's £21.25 per member!

We can claim Gift aid on your donations, too.

Please sign up for Gift Aid here

Do you follow us on social media? Join in our daily conversations on Facebook, keep up with all the latest #Nystagmus news on Twitter and read our big stories first on our blog.

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Members of the Nystagmus Network are automatically signed up to receive our fortnightly digital newsletter every other Thursday directly into their inbox, as well as special member only editions like this one. We believe it's a great way to let you know all the latest nystagmus news and keep you informed about events and research participation opportunities. Please remember that there is an unsubscribe button at the bottom of each and every issue, so if, at any time, you decide you no longer wish to hear from us, please simply click the link.

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Welcome to all our new members!

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