Welcome to Open Day 2018

The Nystagmus Network trustees and staff warmly welcome you to Open Day 2018 on Saturday 29 September. We have a very packed schedule of presentations, workshops and fun for everyone to enjoy and lots of all important opportunities to meet others with nystagmus, share your experiences and make lifelong friends.

As well as the formal presentations in the main auditorium by researchers, clinicians, RNIB, Guide Dogs, the keynote address by Marsha De Cordova MP and our fabulous guest speaker, David Katz, delegates can visit our research hub to catch up on recent developments in nystagmus research, try out the latest equipment or ask the researchers and clinicians themselves all their burning questions. There will also be benefits and education support drop ins throughout the day. 

For children aged 5 to 15 there are two exciting activities planned to make sure they have a great day, too.


Get your ticket here


Vicky and Claire show amazing support

Vicky and Claire are both trustees of the Nystagmus Network. That’s not all they have in common!

On 23 September they'll both be scaling down the Olympic Park Orbit alongside their Team Nystagmus Network Abseil team mates.

They’re doing it to raise funding for nystagmus research. Every penny they raise will go directly into pioneering work at Moorfields Eye Hospital and University College, London.

You can help support them by visiting their Justgiving pages.

Sponsor Vicky here
Sponsor Claire here


They did it!

James and his brother, Thomas, have successfully completed their summer fundraising challenge to raise a phenomenal £677 for two charities.

The boys have spent their summer holidays walking 118 miles in aid of Chromosome 18 Registry and Research Society Europe and the Nystagmus Network.

HUGE THANKS to both boys and congratulations on your brilliant achievement, from everyone at Nystagmus Network.

Read the full report here


Peter and Neal seal the deal

Nystagmus Network trustee and research committee member, Peter Greenwood, and Fight for Sight’s Research Manager, Neil Meemaduma, met at Fight for Sight’s offices in London last week to progress plans on the two charities’ joint nystagmus research grants. Applications are now in for the current round of funding. Results will be announced soon.

Read all our research news here


Still to come in this issue of FOCUS

  • Focus on myopia
  • Opportunities for professionals at QAC
  • Make us smile

Focus on myopia

The College of Optometrists have recently published this info-graphic to highlight the rise in cases of myopia, the causes and how it can be prevented or treated.

See the infographic here

QAC information days for professionals

There are opportunities for professionals in education and support at Queen Alexandra College this autumn.

Find details here

Make us smile

Did you know that you can show your support for the Nystagmus Network every time you shop with Amazon?

The next time you plan to place an order, simply visit Amazon Smile UK instead of the regular Amazon site. You’ll see all the same products at all the same prices. The only difference is that you’ll get the chance to nominate the Nystagmus Network to receive a donation of 0.5% of the purchase price.

It won’t cost you a penny, but it will make a big difference to us!

Make us smile today

Sign up for Gift Aid today! 

Did you know that for every pound you donate to the Nystagmus Network and for every pound of your annual membership subscription, we can claim an additional 25p back from the UK government, provided you are a UK tax payer? Already donated? You can still sign up today to help us claim your tax.

This means a huge amount to a small charity like us and costs you absolutely nothing.

You can sign up to Gift Aid by clicking the link below. Thank you.

Please sign up for Gift Aid here

Please consider making a donation 

The Nystagmus Network relies entirely on membership subscriptions, fundraisingdonations and gifts in wills to continue its important work, providing support and information to the nystagmus community, raising awareness and funding research.

We can't do any of this without your support.

Please donate today

Do you follow us on social media? Join in our daily conversations on Facebook and keep up with all the latest #nystagmus news on Twitter.

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Members of the Nystagmus Network are automatically signed up to receive this fortnightly digital newsletter every other Thursday directly into their inbox. We believe it's a great way to let you know all the latest nystagmus news and keep you informed about events and research participation opportunities. Other subscribers include our fundraisers, donors and supporters. Please remember that there is an unsubscribe button at the bottom of each and every issue, so if, at any time, you decide you no longer wish to hear from us, please simply click the link.

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