Weekly digest, 09 July 2021

Social media posts, events and highlights of the past 7 days


Peak District Ultra Run Challenge
The human dynamo and stalwart Nystagmus Network supporter that is Sarah Mills completed the Peak District Ultra Challenge running 100km in a single day! She raised £2,000 in sponsorship.

Monday Focus
We highlighted diagnosing nystagmus and signposted to the information section on our website for a quick and simple explanation of what to expect.

Nystagmus Network Parents' Forum
Our next online Parents' Forum is scheduled to take place next Tuesday, 13 July 2021 at 8pm.

Raindrops Drawing Competition.
We said a big thank you to all the children who sent us their drawings and paintings of raindrops to celebrate Nystagmus Awareness Day. They included a number from our Italian friends at All of the fantastic work is available to view on our Raindrops webpage.

Nystagmus Network In the News
Cycling the North Coast 500 route in eight days is a pretty hefty challenge under the best of conditions. But pedalling the twisting, undulating and at times single-track and potholed road with a visual impairment takes some bravery. The Strathspey and Badenoch Herald featured Sam Jones and his amazing cycling and fundraising achievement. 

Surgery For Infantile Nystagmus (INS)
We featured the recent Cochrane report which sought to compare the benefits of corrective surgery for Infantile Nystagmus.

Friday Fundraiser
We invited our supporters to run for the Nystagmus Network now that mass participation events are opening up again. The first opportunity is the Wimbledon Common Half Marathon on 1 August.

Thanking Sarah
We publicly thanked Sarah Mills for her latest in a long line of fundraising achievements for the charity by conferring lifetime honorary membership of the Nystagmus Network for services to the nystagmus community.


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