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A little bit about Sam


I was born way back in 1983 - the year of the release of the McNugget and Microsoft Word. I have Cone Dysfunction and Nystagmus, which means fairly strong sensitivity to light (my eyes are secretly blue but I wear brown lenses!), very short sight and occasional oscillopsia (the world shakes about). Oh, and I'm completely colour blind, too.

I've decided to run my third marathon. It's a real privilege to be running for a cause so close to my heart and I'll be giving it my all on the day.
You can sponsor Sam here

Keeping it in the 'nystagmus' family


Sam currently serves as secretary to the trustees of the Nystagmus Network, a charity founded by his mother, Vivien, soon after he was born.

You can hear Vivien talking about Sam and her drive to set up the charity in our video, The Nystagmus Network Charity Story.
Watch the video here

It's the Eye to Eye Walk this weekend!


This Saturday, 10 March, over 40 people will be walking from Moorfields Eye Hospital to the London Eye to raise money for nystagmus research. They will be joined by Nystagmus Network trustees Frances Lilley, Tim Cuddeford and Peter Greenwood.

Team Nystagmus Network's running total in sponsorship is currently £6,200. 

You can still join them on the day. Just turn up and register at 11am.

 
More details about Eye to Eye here

Nystagmus and Driving - publication update

In line with recent changes at the DVLA we have updated our free to download booklet, Nystagmus and Driving. To make sure you know all the facts about driving and nystagmus, please download your copy today.

Because of the hundreds of questions we are asked every year about nystagmus and driving, we shall be joined this year at Open Day by a medical expert from the DVLA.

Download your copy here

Meet Sue at SELVIS

The Nystagmus Network's Sue will be joining VI service providers, charities and support groups in south east London on Saturday 30 March for a patient  information day hosted by SELVIS. Please come along and say hello.

Book your place here

The more people we represent who are affected by nystagmus the better. It means our voice will be heard and we will make a difference. Please join us or make sure your subs are up to date.

 

“I can’t run a marathon, but I can pay my subs to support this great charity” - a long standing member

Join the Nystagmus Network today

Thank you for shopping with Easyfundraising

Thank you to our 100 amazing supporters for shopping online with Easyfundraising. Your support really does make a difference. Together we've raised almost £700!

So don't forget there are 3,300 shops and sites you can raise free donations with. All the travel companies are on there, too!


It's fundraising for free!

Sign up here

 

Sign up to our lottery!

Sara and Peter are already winners.

You could be our next £25,000 winner!

Sign up here

Please don't forget us

Remembering the Nystagmus Network in your will could  make a huge difference to the nystagmus community. It might help us fund that elusive piece of research which leads to a cure for nystagmus.

That would be quite a legacy, wouldn't it?

Please remember us in your will

Sign up for Gift Aid today! 

Did you know that for every £1 you donate to the Nystagmus Network and for every £1 of your annual membership subscription, we can claim an additional 25p back from the UK government, provided you are a UK tax payer? Already donated? You can still sign up today to help us claim your tax back.

You can sign up to Gift Aid by clicking the link below. Thank you.

Please sign up for Gift Aid here

Please consider making a donation 

The Nystagmus Network relies entirely on membership subscriptions, fundraisingdonations and gifts in wills to continue its important work, providing support and information to the nystagmus community, raising awareness and funding research.

We can't do any of this without your support.

Please donate today

Do you follow us on social media? Join in our daily conversations on Facebook and keep up with all the latest #Nystagmus news on Twitter.

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Members of the Nystagmus Network are automatically signed up to receive this fortnightly digital newsletter every other Thursday directly into their inbox. We believe it's a great way to let you know all the latest nystagmus news and keep you informed about events and research participation opportunities. Other subscribers include our fundraisers, donors and supporters. Please remember that there is an unsubscribe button at the bottom of each and every issue, so if, at any time, you decide you no longer wish to hear from us, please simply click the link.

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