Today we celebrate 3 nystagmus heroes

Whatever their role, our community has so many people making outstanding contributions. Today we pause to say thank you to just a few of them.

If there's a nystagmus hero you'd like us to feature in future editions, please let us know.

Frank Proudlock

Since 2000, Dr Frank Proudlock has been researching the visual control of eye movements at the University of Leicester, helping establish Leicester as an international centre for nystagmus research and treatment.

Frank has particularly investigated nystagmus and reading. He is now a senior lecturer in ophthalmology and continues to explore nystagmus.

Click here for more on nystagmus and reading

Shirley Pennington

The Nystagmus Network would like to say a huge thank you to Shirley Pennington, her family, friends and local Shropshire community. Shirley recently organised an auction of promises to raise money for the Nystagmus Network in honour of her little granddaughter, Charlotte.

Shirley’s event raised a phenomenal £16,625.

Read Shirley's story here

Mike Larcombe

Southampton born Mike has nystagmus and so does his young nephew, Archie. Later this year, Mike will be setting off to walk the length of New Zealand to help find a cure for nystagmus.

Watch Mike's vdeo here

Open Day - a celebration of nystagmus heroes

We'll be celebrating all your nystagmus successes at Open Day 2019 on Saturday 28 September at the Principality Stadium, Cardiff.

Please join us!

Book your Open Day ticket here
Find out more about Jeans for Nystagmus Genes here
Join Parent Power Southampton here

Thank you to our new Easyfundraising shoppers

Thank you to our amazing supporters for shopping online with Easyfundraising. Your support really does make a difference. Together we've raised over £800! 

It's fundraising for free!

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Play the Nystagmus network weather lottery!

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Please don't forget us

Remembering the Nystagmus Network in your will could make a huge difference to the nystagmus community. It might help us fund that elusive piece of research which leads to a cure for nystagmus.

That would be quite a legacy, wouldn't it?

Please remember us in your will

Sign up for Gift Aid today! 

Did you know that for every £1 you donate to the Nystagmus Network and for every £1 of your annual membership subscription, we can claim an additional 25p back from the UK government, provided you are a UK tax payer? Already donated? You can still sign up today to help us claim your tax back. We can backdate our claim up to 4 years.

You can sign up to Gift Aid by clicking the link below. Thank you.

Please sign up for Gift Aid here

Please consider making a donation 

The Nystagmus Network relies entirely on membership subscriptions, fundraisingdonations and gifts in wills to continue its important work, providing support and information to the nystagmus community, raising awareness and funding research.

We can't do any of this without your support.

Please donate today

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Read all our news first on our BLOG.

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