2020 has been a tough year for us all, but 12 people have given back so much to the nystagmus community this year and we just want to say thank you.


We’ve all had to give up so much this year and we’ll all be pleased to make it to the end of 2020.

But before we do, the Nystagmus Network is thanking 12 people who’ve given back so much to the nystagmus community in 2020.

We’ll be telling their 12 stories in the run up to Christmas.

It was really hard to choose just 12 as so many people have been so generous with their time, energy, enthusiasm, expertise and skills. Thank you to all of you.

Giving makes us feel Good! #GiveBack2020 is your chance to take something positive from 2020 and make a difference at the same time!

Please volunteer, fundraise or make a donation to the Nystagmus Network for #GiveBack2020  

Contact us here to volunteer

Find fundraising ideas here

Please make a donation here


Read all the #GiveBack2020 stories here
Please nominate the Nystagmus Network to win a £1,000 Christmas bonus

Ecclesiastical Insurance will be awarding £1,000 to 12 charities in 12 days this December. Please help us be one of them.

Nominations are open now until 21 December

£1,000 would pay for nystagmus information leaflets in hospitals across the UK.

Nominate here

The Nystagmus Network 19 - 21 challenge

Wave goodbye to 2020 and say hello to 2021 with a new year fitness challenge for the Nystagmus Network. Get a FREE T shirt, too!

As 2020 draws to a close what better way to prepare for a stronger, healthier you in 2021 than to take part in a personal fitness challenge for the Nystagmus Network?

Sign up between 19 December and 21 January to receive a free Nystagmus Network T shirt

What’s the 19 – 21 challenge?

1 Choose to run, walk or cycle

2 Select your distance

3 Set up your Justgiving page and off you go

Sign up with Justgiving here

As soon as you set up your Justgiving page we’ll be in touch and post your Nystagmus Network T shirt.

Wear your free T shirt with pride, get all your friends and family to sponsor you, get out there and get fit!

Good luck!

Find out more here

Nystagmus Network T shirt designed by Ahrian

Gene Vision launches

A new website, Gene Vision, has launched this week, developed by Professor Mariya Moosajee and Dr Alex Yeong, supported by Dr Peter Thomas (Director of Digital Innovation at Moorfields Eye Hospital). The new site is intended for adults, children and their families who are diagnosed with rare genetic eye diseases. The Nystagmus Network is proud to have contributed content to the nystagmus section of the new site.

Visit Gene Vision on nystagmus here

Nystagmus Network Christmas cards

We may not be able to have everyone round for Christmas this year, but we can still show our friends and loved ones we care, and support our favourite small charity, by sending them a jolly Christmas card.

Place your orders now!
Visit the Christmas shop here
Shop on AmazonSmile and Amazon donates to Nystagmus Network, at no cost to you.

Since April our supporters have raised over £70.

Thank you for making us (Amazon) Smile!
Easyfundraising gives free donations to the Nystagmus Network every time you order something with one of over 400 online retailers. It doesn't cost you a penny. Please support us by signing up today. 

Thank you to all our regular Easyfundraisers
Sign up here

Nystagmus Network weather lottery

Would you like the chance to win up to £25,000 every week for £1? Then please sign up to the Nystagmus Network weather lottery.

The proceeds help the charity continue to support the nystagmus community.

Sign up for the weather lottery here

Making your will?

Remembering the Nystagmus Network in your will could make a huge difference to the nystagmus community. It might help fund that elusive piece of research which leads to a cure for nystagmus.

That would be quite a legacy, wouldn't it?

Please remember the charity in your will

Sign up for Gift Aid today! 

Did you know that for every £1 you donate to the Nystagmus Network and for every £1 of your annual membership subscription, the UK government will pay an additional 25p, provided you are a UK tax payer? Already donated? You can still sign up to Gift Aid today. Claims for Gift Aid can be backdated up to 4 years.

You can sign up to Gift Aid by clicking the link below. Thank you.

Please sign up for Gift Aid here

Please consider making a donation 

The Nystagmus Network relies entirely on membership subscriptions, fundraisingdonations and gifts in wills to continue its important work, providing support and information to the nystagmus community, raising awareness and funding research.

Please donate today

Do you follow the Nystagmus Network on social media? Join in the daily conversations on Facebook and keep up with all the latest #Nystagmus news on Twitter and Instagram

Read all the big stories first on the BLOG

If you have any comments or would like to see your story included in a future edition of Focus, please contact us today.

Phone: 01427 718093

You can unsubscribe from Focus

Please remember that there is an unsubscribe button at the bottom of each and every issue of Focus, so if, at any time, you decide you no longer wish to receive your copy, please simply click the link.

Missed any issues?
You can read back numbers in the online archive


Welcome to all our new subscribers!

Unsubscribe from this list
Copyright © 2020 Nystagmus Network, All rights reserved.

Want to change how you receive these emails?
You can update your preferences or unsubscribe from this list.