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Our new year resolutions and pledges to you


The registered charity number for the Nystagmus Network has changed. Our new number is 1180450. This marks our successful transition from humble charity to a Charitable Incorporated Organisation, as voted for by our members at our AGM in September. Only our number has changed. We remain a membership organisation serving the needs of the nystagmus community, providing support and information, raising awareness and funding research.

In 2019 we pledge to do even more to improve the quality of life of everyone affected by nystagmus.

Run for nystagmus research in 2019

Sarah is one of our most dedicated runners and fundraisers.

Why not make 2019 the year you take up the challenge to run for nystagmus research?

We have places available now in the London Vitality 10K in May.

Apply for your run place here

What's on your 2019 bucket list?
 

Simon leapt out of a plane for nystagmus in 2018.

Have you set yourself a challenge for 2019?

We can help you achieve it.
Find out about sky dives here

 

Pledge support for Nystagmus Awareness Day


It will be June before we know it, so don't leave it till the last minute to plan your Nystagmus Awareness Day event.

Need inspiration? 

We have loads of ideas to get you thinking.
Start your plans here

 

Come to Open Day 2019


What? You didn't come to Birmingham in 2018?

Make sure you don't miss the biggest nystagmus event of the year!

Save the date: Saturday 28 September
Save the date

 

Still to come in this issue of FOCUS

  • Join us as a volunteer
  • Take on the Royal Parks
  • Walk the Eye to Eye

Join us as a volunteer


2018 saw the launch of our very first local nystagmus network in Manchester. We'd love to set up lots more local groups where families and adults can get together to share experiences, but we can't do it without your help. Maybe you could spare a couple of hours to organise a meet up in your area?
Volunteer here

Run the Royal Parks Half


Would you like to run through the most picturesque green spaces London has to offer to raise money for nystagmus?

The run takes place in October, so there's loads of time for training.
Request your place here

 

Walk Eye to Eye for nystagmus research 

Please join team Nystagmus Network to walk Eye to Eye this March to raise money for nystagmus research at Moorfields Eye Hospital and University College, London.

SUNDAY 10 MARCH - 11AM

 

It'll be the biggest nystagmus get together of the year!

Sign up here

 

Come and join us

If you make only one New Year's resolution this year, please make sure it's to pledge your support for the Nystagmus Network by becoming a member.

There's nothing like feeling you belong.

If you're not already a member, please join us today to have your say in the future for nystagmus.

Join us today

Shopping the January sales?

Please remember, when you buy anything online, from the weekly shop to your family holiday, to go through Easyfundraising, You'll be helping to raise donations for The Nystagmus Network. Please sign up and start shopping through Easyfundraising today to help us reach our goals.

It's fundraising for free!

Thank you.

Sign up here

 

Sign up to our lottery!

You could be our next £25,000 winner.

Sign up here

Please don't forget us

Remembering the Nystagmus Network in your will could  make a huge difference to the nystagmus community. It might help us fund that elusive piece of research which leads to a cure for nystagmus.

That would be quite a legacy, wouldn't it?

Please remember us in your will

Sign up for Gift Aid today! 

Did you know that for every £1 you donate to the Nystagmus Network and for every £1 of your annual membership subscription, we can claim an additional 25p back from the UK government, provided you are a UK tax payer? Already donated? You can still sign up today to help us claim your tax back.

You can sign up to Gift Aid by clicking the link below. Thank you.

Please sign up for Gift Aid here

Please consider making a donation 

The Nystagmus Network relies entirely on membership subscriptions, fundraisingdonations and gifts in wills to continue its important work, providing support and information to the nystagmus community, raising awareness and funding research.

We can't do any of this without your support.

Please donate today

Do you follow us on social media? Join in our daily conversations on Facebook and keep up with all the latest #Nystagmus news on Twitter.

You can unsubscribe from Focus

Members of the Nystagmus Network are automatically signed up to receive this fortnightly digital newsletter every other Thursday directly into their inbox. We believe it's a great way to let you know all the latest nystagmus news and keep you informed about events and research participation opportunities. Other subscribers include our fundraisers, donors and supporters. Please remember that there is an unsubscribe button at the bottom of each and every issue, so if, at any time, you decide you no longer wish to hear from us, please simply click the link.

Missed any issues?
You can read all our back numbers in the online archive.

 

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