Introducing Raindrops, our new theme for Nystagmus Awareness Day 2021

Raindrops and Nystagmus Awareness Day 

For Nystagmus Awareness Day 2021 we are launching today two fabulous competitions - one for children, and the other for adults.                                          

Story writing and drawing competition

The Nystagmus Network Raindrops children's competition celebrates the wonderful creativity of children’s writing and illustration.                                                                   
There will be prizes for each age category and the chance to join workshops with some of your favourite children's authors and illustrators along the way.

The best stories and drawings will be published in a special book which will be available to purchase from September 2021.


The competition is open to all children with or without nystagmus, aged 5 to 14 years. There will be winners in each age category.

For competition details please click below.

Raindrops children's competition details

Photography competition

The Nystagmus Network Raindrops competition for adults gives you the opportunity to get creative with your camera and capture the essence of raindrops.

There will be prizes for the winning entries and all photographs will feature in a virtual exhibition for Nystagmus Awareness Day and at a physical exhibition at Open Day 2021 in Sheffield on Saturday 25 September.

For competition details please click below.

Raindrops adults' competition details
Why Raindrops?

On Nystagmus Awareness Day 2020 Josh shared with us his nystagmus success story for our ‘How amazing are you?’ campaign. He’s a primary school teacher, a Masters graduate and an accomplished musician and singer.

Josh says: “I think it’s really important to say that if you’re born with nystagmus, being visually impaired is normal. You’ve never known any different. You even forget that other people can see better than you. I only found out a couple of years ago that people can see rain. I can’t see it because of my nystagmus. I’d always assumed it was invisible to everyone.”

Thank you, Josh, for the inspiration.

Join the Nystagmus Network Quiz Night

We haven't been able to socialise for so long and we may have forgotten, just a little bit, how to make small talk. So, to get you back into the swing of things, please join Nystagmus Network trustees and staff for a fun quiz night on Saturday 27 March at 7pm.

We can guarantee you some challenging questions in a VI friendly format with our fabulous Quiz Masters from Interrupt the Routine.

Places are limited. Booking is open NOW!

Book your quiz ticket
Still to come in this issue
  • free run places - apply now!
  • details of March forums for parents, adults with CN and adults with AN

FREE PLACES in the virtual VMLM

We can now offer a couple of additional run places in the virtual Virgin Money London Marathon on Sunday 3 October 2021. If you'd like to run for the Nystagmus Network, please apply now.

Congratulations to Ann, Mark and Sarah who will be running for us and to Adam in the physical race.

Apply now
FREE RUN PLACES in the virtual Royal Parks Half Marathon

On Sunday 11 April 2021 the Royal Parks Half takes place virtually. This will be an unparalleled digital experience which mirrors as much of the in-person race as possible, including a premium race pack, sights and sounds from the beautiful course (from industry-leading augmented reality), leader boards and that much needed support from fellow runners and spectators.

You will be required to track your 13.1 miles in your local area and fundraise a minimum amount of £175 for the Nystagmus Network.

Runners must be registered by 5pm on Friday 5 March

Apply here

Boosting your resilience

As we near the beginning of the end of lockdown and prepare to return to school, uni, the office and society generally, how can we be sure that we are properly ready? How do we boost our own resilience after so long? That's the topic we'll be discussing in the Nystagmus Network Zoom forums this month.

February Parents' Forum

The next virtual Parents’ Forum is at 8pm on Tuesday 16 March. Share experiences, make new friends and learn how to boost your child's resilience.

Read the notes from our February meet up here
Request to join the Parents' Forum here

Adults' Forum - Acquired Nystagmus

The next virtual AN Forum is at 5pm on Tuesday 23 March. Share experiences, make new friends and learn how to be more resilient. 

Read the notes from our February meet up here
Request to join the AN Forum here

Adults' Forum - Congenital Nystagmus

The next virtual CN Forum is at 7pm on Tuesday 30 March. Share experiences, make new friends and learn how to boost your resilience. 

Read the notes from our February meet up here
Request to join the CN Forum here

Did you know? You can now donate your unwanted books, DVDs, CDs and games to the Nystagmus Network

Download the Ziffit App

Scan your unwanted stuff

Nominate the Nystagmus Network to receive your donation

Box it up

Print your label

Contact free collection

Clear Your Clutter here
Thank you to all 175 of our Easyfundraising shoppers. In December you raised over £74 for the charity. Easyfundraising gives free donations to the Nystagmus Network every time you order something online with one of over 400 retailers. It doesn't cost you a penny. Please support us by signing up today. 

Thank you to all our regular Easyfundraisers
Sign up here
Shop on AmazonSmile and Amazon donates to Nystagmus Network, at no cost to you.

Thank you for making us (Amazon) Smile!

Nystagmus Network weather lottery

Would you like the chance to win up to £25,000 every week for £1? Then please sign up to the Nystagmus Network weather lottery.

The proceeds help the charity continue to support the nystagmus community.

Sign up for the weather lottery here

Making your will?

Remembering the Nystagmus Network in your will could make a huge difference to the nystagmus community. It might help fund that elusive piece of research which leads to a cure for nystagmus.

That would be quite a legacy, wouldn't it?

Please remember the charity in your will

Sign up for Gift Aid today! 

Did you know that for every £1 you donate to the Nystagmus Network and for every £1 of your annual membership subscription, the UK government will pay an additional 25p, provided you are a UK tax payer? Already donated? You can still sign up to Gift Aid today. Claims for Gift Aid can be backdated up to 4 years.

You can sign up to Gift Aid by clicking the link below. Thank you.

Please sign up for Gift Aid here

Please consider making a donation 

The Nystagmus Network relies entirely on membership subscriptions, fundraisingdonations and gifts in wills to continue its important work, providing support and information to the nystagmus community, raising awareness and funding research.

Please donate today - THANK YOU

Do you follow the Nystagmus Network on social media? Join in the daily conversations on Facebook and keep up with all the latest #Nystagmus news on Twitter and Instagram

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Phone: 01427 718093

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