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Looking ahead as the seasons change

It's the time of year for pumpkins, bonfires and cosy nights in, but meanwhile, the nystagmus elves are always busy.
The nystagmus champions of 2021
Congratulations to James, Sarah and Tyler who have been announced the Nystagmus Network 'nystagmus champions' of 2021. Charity Vice Chair, Peter Greenwood made the announcements at the end of Open Day party on 25 September.

You can find out why Tyler, Sarah and James were selected as nystagmus champions by clicking the button below.
Nystagmus Champions blog post
Take part in research at Cardiff University

Professor Jon Erichsen and his team from the School of Optometry and Vision Sciences, Cardiff University, Nikita Thomas, Katherine Ward and Onyeka Amiebenomo invite you to take part in nystagmus research.

Following their demonstrations at virtual Open Day 2021 of various nystagmus and eye tracking studies currently being carried out, you are warmly invited to apply to take part.

Please express your interest below. We will pass your details on to the Cardiff University team, who will be in touch with you.

Take part in research at Cardiff
Parent Power is back!
Thanks to a grant from our friends at the Thomas Pocklington Trust, the Nystagmus Network is able to offer parents of children and young people with nystagmus the opportunity to attend one of a brand new set of FREE webinars on support in school. Find out what support is available in schools or early years settings and how to access it for your child. 

Delivered online by a qualified and experienced IPSEA trainer, supported by Nystagmus Network staff and our volunteer education advocate, Claire, the webinars will be held between November this year and March 2022, so there's bound to be a course that fits your schedule.

Request information or reserve your FREE place below.
Request Parent Power details here
Members of the Nystagmus Network can request a referral to our Education Advocacy Service for one to one support with appeals.
A postcard promoting the Nystagmus Network virtual Open Day on Saturday 21 September.

Did you miss Open Day?

You can still watch the pre-recorded presentations from virtual Open Day 2021, including nystagmus research updates from Cardiff, Leicester and Sheffield, a clinical insight from Southampton and news on the treatment of Acquired Nystagmus from Moorfields, London. Other recorded presentations include Nystagmus and Sleep and Nystagmus and Employment Law.

To receive your copy of the digital programme containing all the YouTube links, please contact us below.
Request a digital programme

Thank you to our speakers

Enormous thanks go to our Open Day speakers, particularly Gemma Arblaster, Helen Kuht, Ifigeneia Manitsa and Nikita Thomas, clinicians and researchers who answered questions LIVE on the day from members of the nystagmus community.

Thanks, too, to Hannah Ricketts and Richard Blackmore, both enjoying successful careers, both of whom have congenital nystagmus, for sharing their work experiences, hints and tips and answering your questions on nystagmus in the workplace.

These sessions were not recorded.
A knitted nystagmus elf.

Our Christmas shop is open!

Scented candles, books, Nystagmus Network Christmas cards and knitted elves - there's something for everyone in our Christmas shop.
Visit the Christmas shop here

Our October Forums

Regular forum members have already received their Zoom invitations to our next online get togethers.

If you're new to the forums and you'd like to join us this month, please contact us below. You'll be most welcome.

Parents' Forum

Tuesday 19 October 8pm
Request to join the Parents' Forum here

Acquired Nystagmus and Oscillopsia Forum 

Wednesday 20 October 5pm
Request to join the AN Forum here

Congenital Nystagmus Forum for Adults

Thursday 21 October 7pm
Request to join the CN Forum here
A postcard advertising the easyfundraising scheme.
If you've already started your Christmas shopping online, or even if you're just buying your regular supplies, please support the Nystagmus Network by signing up to easyfundraising. It only takes a moment, all your favourite online stores are there, the charity earns a small donation each time you shop and it's completely free for you, so please get involved if you haven't already!  Thank you!

Thank you to all our regular easyfundraising shoppers!
Sign up here
The logo of Amazon Smile
Are you ordering books, games or tech online?

If so, please use AmazonSmile and Amazon donates to Nystagmus Network, at no cost to you.

Thank you for making us (Amazon) Smile!
Find Amazon Smile here

Nystagmus Network weather lottery

For the chance to win up to £25,000 every week for £1, please sign up to the Nystagmus Network weather lottery.

The proceeds help the charity continue to support the nystagmus community.

Sign up for the weather lottery here

Considering writing your will?

Remembering the Nystagmus Network in your will, once your nearest and dearest have been thought of, could make a huge difference to the nystagmus community.
It might help fund that elusive piece of research which leads to a cure for nystagmus.

That would be quite a legacy, wouldn't it?

Please remember the charity in your will

Sign up for Gift Aid today! 

Did you know that for every £1 you donate to the Nystagmus Network and for every £1 of your annual membership subscription, the UK government will pay an additional 25p, provided you are a UK tax payer? Already donated? You can still sign up to Gift Aid today. Claims for Gift Aid can be backdated up to 4 years.

You can sign up to Gift Aid by clicking the link below. Thank you.

Please sign up for Gift Aid here

Please consider making a donation 

The Nystagmus Network relies entirely on membership subscriptions, fundraisingdonations and gifts in wills to continue its important work, providing support and information to the nystagmus community, raising awareness and funding research.

Please donate today - THANK YOU

Do you follow the Nystagmus Network on social media? Join in the daily conversations on Facebook and keep up with all the latest #Nystagmus news on Twitter and Instagram


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If you have any comments or you'd like to see your story in a future edition of Focus, please contact us today.


Email: info@nystagmusnet.org
Phone: 01427 718093

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