Welcome to the latest news from Dementia United.
The Greater Manchester partnership team have been accelerating work around Dementia United (DU) Greater Manchester's (GM) Dementia strategy and improvement programme to mobilise the implementation plan that was ratified in early 2017.
Locality news
Dementia United is engaging with the 10 metropolitan boroughs (localities) of Greater Manchester to make the region the best place in the world to live if you are affected by dementia.
Our team has been busy traversing the region hearing about the great work local areas are carrying out in line with the Greater Manchester Dementia Standards to help people living with dementia and their carers.

The fact finding mission, supported by Professor Alistair Burns (National clinical lead for Dementia) took place from October to December 2017 and covered the 10 localities aiming to acknowledge work currently underway, identify challenges and recognise opportunities to work collaboratively across Greater Manchester. This approach and outcomes of the activity were positively received by the Strategic Partnership Board Executive, to whom DU is ultimately responsible to, on Wednesday 28th February 2018.

Dr Emma Vardy, Salford Royal Foundation Trust Consultant Geriatrician and one of the clinical leads for Dementia, said: “It has been inspirational to hear about some of the fantastic projects happening across the region to help people with dementia and their carers. It has also been beneficial for the team to have an overview of all the activity across the localities and identify areas of best practice that are positively influencing the lived experience of dementia”.

The information gathered is being used to develop the DU work plan 2018/19 - 2020/21.

We have started a collaborative journey to improve the lived experience of people living with dementia in Greater Manchester. Dementia United leads a collective commitment to improvement based on sharing, collaboration, challenge, learning, and implementing brave new ways of working. 
Regional support

A national scheme designed to protect loved ones living with dementia is being launched in Greater Manchester.

The initiative, known as the Herbert Protocol, comprises of a simple form which carers and family members fill in with useful information that could help officers in the event of a vulnerable person going missing.

The form includes details such as places they like to frequent (including their old work place, a park or the local cemetery where a loved one has been buried), medication required, general routines and a description and a recent photo.

Once completed, the form is stored in a safe and easily accessible place, either in electronic format or a printed version. In the event that someone does go missing it may need to be located quickly, at any time of day or night to begin the initial searches.

Visit GMP website for more information and to download the form.

Work on the Dementia United Data/Measurement Dashboard began this month with a workshop bringing together people from across the Greater Manchester Health and Social Care Partnership.
The workshop, aimed to bring blue-sky thinking to what and how dementia data could be shared across Greater Manchester, brought together representatives to envision the measures which their perfect data dashboard would include, and how those key indicators tell the story of dementia across the ten localities. The ideas of the workshop will be later taken to other stakeholder, including people living with dementia and carers, to improve and refine before full development. It is essential that the data reflects the stories of the people whom it represents and DU is aiming to improve the lived experience of.

The dashboard will align to the GM dementia standards as a starter for ten.

It will be an important asset to those commissioning and delivering dementia care, as well as forming part of Dementia United’s legacy in Greater Manchester. Continue reading on our website...
Innovation, Research and Evaluation

Support after diagnosis

New analysis from Age UK reveals that 1 in 3 people living with dementia don't get the NHS support they are supposed to.

With the number of people living with dementia estimated to hit 1 million by 2020, Age UK is warning of an urgent and growing need to provide much better support for those who have been told they have the condition. Continue reading...

Dementia risk included in NHS Health Check

PHE are pleased to advise that  the outcome from the consultation on dementia risk reduction messaging, together with the results from the Age 40+ pilot project, led to a recent submission from their Expert Scientific Clinical Advisory Panel (ESCAP) to the Public Health Minister.
The Minister has approved the recommendations for dementia risk reduction messaging to be included in the NHS Health Check, for everyone eligible, aged 40-74. The Minister’s response outlining the next steps is due at the end of April. In the meantime, PHE continue to  be working closely with all of our partners to strengthen the dementia risk reduction messaging in our guidance, training and public facing messaging. Continue reading on our website...
On the road

The DU team have been busy spreading the word:

Rachel Volland, Dementia United Senior Implementation and Improvement Lead presented at Dementia 2017: Managing Demand, Improving Care on 5th Dec 2017 in Birmingham.

The DU team attended and spoke at the first meeting of the GM Mental Health VCSE (Voluntary, Community, Social Enterprise) Forum on 12th Dec 2017 linking directly with the implementation of the Greater Manchester Mental Health Strategy

DU were also represented at various events so far this year including a Tide workshop, a Bury Age friendly workshop and presented at North region dementia clinical networks meeting – 27th Feb 2018 (RV)

An extract has been accepted for the Alzheimer's Society Annual Conference in May 2018, London to present Dementia United: Large Scale Transformation change in dementia – beyond the realms of possibility. The session will be part of Greater Manchester | Putting dementia first alongside Jon Rouse, Chief Officer, GMHSCP.

Dates for your Diary

World Delirium Day

World Delirium Awareness Day will take place on the 14th March 2018, which aims to raise of delirium and the associated poor outcomes as well as launch a Greater Manchester wide collaboration around delirium.

To find out more about the free event at Salford Royal NHS Foundation Trust, click here. Make sure you join the international conversation on twitter with #WDAD2018

Dementia Action Week

This year, Dementia Awareness Week is changing to Dementia Action Week (21 to 27 May 2018). Raising awareness and offering support will always be important, but it’s time we all act to make change happen for people affected by dementia. 

In the UK, one person develops dementia every three minutes, yet too many people feel excluded and face the disease alone. That’s why, this Dementia Action Week, Alzheimer's Society will be asking people to unite and take actions big and small to make a difference to the everyday lives of people with dementia. It could be as simple as being more patient in queues or helping make your business dementia-friendly.

Dementia United would love to hear from you about plans for Dementia Action Week 2018 so we can share this information with others to get involved and support where possible.

Beyond the Front Door Conferences

Our home – the place and the people – provides a major focus in our lives and is particularly important when we face transitions such as discharge from hospital or following a diagnosis of dementia. 'Beyond the Front Door' will explore issues relating to the concept of ‘home’ to better understand their importance in relation to the sense of identity and wellbeing for people living with dementia.

The event will be informed and led by people living with dementia, and will include policy context, practical examples of best practice, expert panel discussions and workshops.

The conference is free, but you can purchase a ticket with lunch for a small fee. Find out more and book your place: Leeds (26 April 2018) and Cambridge (13th June 2018).
In the news
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Until next time...

If you have stories, examples of great work or opportunities related to dementia that you would like to share please let us know and we will endeavor to include them in future newsletters.
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Dementia United · Haelo, Mayo Building · Salford Royal NHS Foundation Trust, Stott Lane · Salford, Greater Manchester M6 8HD · United Kingdom

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