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Your news from the NIHR Clinical Research Network Eastern
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Welcome to the November 2021 edition of Getting Involved in Research from the team at NIHR Clinical Research Network (CRN) Eastern!

Getting Involved in Research is a monthly newsletter packed with information about the many ways to get involved in research as a  patient, research participant and member of the public.

If you haven't already signed up to this monthly newsletter and would like to continue receiving it, find out how to let us know at the bottom of this page. If you missed our October edition you can take a look at it by copying this link into a search engine: https://bit.ly/3HrGlD6.
Public research champion Paul Charlton marks World Hospital and Palliative Care Day

To mark World Hospice and Palliative Care Day this year Paul Charlton, who is a CRN Eastern Patient Research Ambassador, has written about his personal experience of palliative care and his involvement in the NIHR Palliative and End of Life Funding Committee.

Follow this link to read his blog on the National Cancer Research Institute website: https://bit.ly/3nmgVim.

Mental Health Trust launch their first “Researching Together” newsletter

The Norfolk and Suffolk Foundation Trust research team have launched the first edition of their quarterly online newsletter to keep you up to date on all of the research activity and projects. You can access the Autumn edition by following this link: https://bit.ly/3niNIob.

Ask me ANYTHING about pancreatic cancer webinar

The Cambridge Pancreatic Cancer Centre will be hosting a webinar for the public on Thursday 18 November 2021 between 9am and 10am to mark World Pancreatic Cancer Day. The webinar will be part of a variety of events and activities happening around the world to raise awareness of the condition, with a campaign also running on Twitter (search #WPCD if you're on the social media platform) .

You can submit questions to a panel of experts, which will include a medical oncologist, research group leader, surgeon, nurse specialist, dietician, physiotherapist as well as a pancreatic cancer survivor.

Everyone is welcome, but please note, you will need to register in advance to attend this free event, at https://bit.ly/3DxQjAg.

Dementia research in the East of England: Watch again

We hosted an online event on 'Dementia research in the East of England' with the team at Cambridge and Peterborough NHS Foundation Trust (CPFT) on World Alzheimer's Day 2021 in September. The event featured talks from some of the leading dementia researchers from the Trust, along with experts from the University of Cambridge and the University of East Anglia.

We recorded the talks and you can click on this link to watch each of them on YouTube:  https://bit.ly/3ceT1Pt

Here are the details for each part:

Part 1: Dr Ben Underwood from CPFT, who talks about:
Alzheimer’s clinical trials and how to join dementia research.

Part 2: Dr Shahid Zaman and Shemaya Hurd-Thomas from the University of Cambridge, who talk about: Alzheimer’s in Down’s Syndrome research.

Part 3: Professor Eneida Mioshi from the University of East Anglia, who talks about: the NIHR ARC East of England/Alzheimer’s Society research study results.

Part 4: Professor Chris Fox from the University of East Anglia, who talks about:
the PERFECTED project results and UEA research database.

Part 5: Dr Jane Cross from the University of East Anglia, who talks about:
the Carecoach programme - hybrid care for carers of people with dementia.
Opportunity to be involved in updating the National Clinical Guidelines for Stroke

The Stroke Guideline Project Team at King’s College London are running a project to update the 2016 Royal College of Physicians National Clinical Guidelines for Stroke (you can view it here: https://bit.ly/31VTmV4), which includes advice about research among other guidance. They would like to invite stroke survivors or their carers to apply to become a Public and Patient Voice (PPV) Representative. 

The role of the PPV Representatives is to attend meetings, help develop the guidelines and advise senior clinicians and experts in stroke care on patient issues to ensure that the patient voice is heard throughout the guidelines.

If you are interested in applying for this role you can view the role description and application form at https://bit.ly/30xX332 or email strokeguidelineteam@kcl.ac.uk to request a copy or for more information. The deadline for applications is Friday 26 November 2021.

‘Understanding and interpreting a journal article’ with The Royal Papworth Hospital

The Royal Papworth Hospital and the University of Cambridge Library are pleased to invite members of the public to their popular online training session ‘Understanding and interpreting a journal article’ on the Tuesday 7 December 2021 at 11am.

This 45 minute online session (held via Microsoft Teams) will provide you with the basics needed to find, read and understand a journal article. The session is based around a paper of a published Royal Papworth study which you will be given the opportunity to read before, but this is optional and not an essential requirement of attending.

For further information and to register for a place visit the Eventbrite website at https://bit.ly/3HrbMgR.  If you have any queries, please email papworth.ppi@nhs.net

The Patient Led Research Hub are back to business as usual

The Patient Led Research Hub (PLRH) is a service in Cambridge that provides expertise to charities and patient groups to support patient-led research, including studies supported by the NIHR. The PLRH has spent much of the last 18 months supporting COVID-related work across Cambridge University Hospitals NHS Foundation Trust, but their resources are now shifting back to patient-led research and co-production.

Visit the PLRH website at at https://plrh.org to access their previous newsletters and subscribe to their quarterly newsletter mailing list to find out about the great work they are doing.
Volunteers needed for public panel for a study on stress, mood and bodyweight management

Researchers from the MRC Epidemiology Unit (online at www.mrc-epid.cam.ac.uk) are looking for volunteers to join a public and patient involvement panel for a study on stress, mood and bodyweight management. 

The MRC research team are applying for funding to find ways to help people manage their stress and mood better to maintain weight loss. If their funding application is successful, you would be invited to provide further input as the project progresses.

Discussions will take place online and anyone who has past or current experience of trying to lose weight is welcome to join. If you are interested in joining the panel please email julia.mueller@mrc-epid.cam.ac.uk.  The deadline for applications is Wednesday 15 December 2021.
Useful Links

Find out more about health and social care research happening in your local area and across the UK by visiting the Be Part of Research website at bepartofresearch.uk.
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Would you like to become an NIHR Public Research Champion? If you are interested in becoming a Public Research Champion in your local area visit bit.ly/3uZiswR online, or contact Anne Sykes, Patient and Public Involvement Manager at CRN Eastern, by email at anne.sykes@nihr.ac.uk, or for a friendly chat about it with her telephone  01603 287670.
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Find out more about getting involved in dementia research by visiting the Join Dementia Research website at www.joindementiaresearch.nihr.ac.uk.
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Find free online courses for members of the public from the NIHR hosted on the Future Learn website at www.futurelearn.com. The following courses about research are available:
  1. Understanding the Research Behind the Pandemic.
  2. Improving Healthcare Through Clinical Research
  3. What is Health Research? 
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Discover the latest opportunities for public involvement in NHS, public health and social care research by visiting the NIHR's People in Research website at www.peopleinresearch.org.
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NIHR Evidence (at evidence.nihr.ac.uk) is a website that makes research findings accessible and allows you to read overviews of recent research on key topics and themes. 
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Would you like to keep receiving this monthly newsletter?

If the answer is yes, and you are not already on our mailing list, please email ann.rampling@nnuh.nhs.uk or call us on 01603 287670 to let us know you are happy to be on our mailing list. A printed newsletter is available on request.
Got a question? Need more information?
Or is there something you'd like us to include in the bulletin?


Then contact our team, we'd love to hear from you.
Email us:
crneastern.ppi@nihr.ac.uk.
Phone us: 01603 287472
Write to us: PPIE, CRN Eastern, 20 Rouen Road, Norwich NR1 1QQ
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