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I’ve noticed that “Curing cancer through VHL” seems to be a political, as well as a medical or scientific, message to raise awareness and funds for biomedical VHL research.

From VHL Alliance Newsletter Spring 2020 article by Executive Director, Ilene Sussman (an interesting article):
In the U.S., “We encourage you to help us advocate for federal dollars to expand VHL scientific research. Contact Ilene at ilene.sussman@ to learn how you can help”. For example, advocate and convince U.S. Congress, Senate and House of Representatives, that “finding a treatment and cure for VHL is a key to treating and curing many other forms of cancer” and to get VHL specifically included in the “Cancer Research Program”.
In Canada, organizations or charities do similar advocacy. For example, Canadian Organization for Rare Disorders (CORD) for rare diseases in general.


Why and how to Help us with out-of-pocket expenses
🍁 VHL Canada facilitates peer support for people coping with VHL in Canada

CRA BN: 800804676RR0001
Our mailing address is:
VHL Canada
2938 Dundas Street West
PO Box 70510
Toronto, ON
M6P 4E7

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VHL Canada · 2938 Dundas Street West, PO Box 70510 · Toronto, On M6P 4E7 · Canada

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