Blog/group email/opinion

If you want to do or help out with something to celebrate and support “May is VHL Awareness Month” then contact me or post here with ideas and questions. It could be fun!
 
Although we may be a “shoe string” VHL non-profit, we are sensible and enthusiastic about providing a social-emotional support system for VHL patients and their family in Canada.
 
Coming up soon is “May is VHL Awareness Month”. (It was actually created first by the VHL Alliance in the US as an annual end of fiscal year campaign).
 
For example: 1) if you prefer to fundraise for donations to go to VHL Alliance - just give their link-anyone can but it would be in USD and they won’t get an official CRA (Canada Revenue Agency) income tax receipt. 2) If you prefer to fundraise for us, VHL Canada, they’d get an official income tax receipt - online or mail.  3) Or maybe another option is not to purposely fundraise at all - just share posts, stories, events etc.
 
For example: Because VHL Canada is a registered charity we’re able to request a major landmark e.g., tower in your city to be lit up certain colours for VHL awareness. (Individuals or other groups can’t). If you have questions or interest please let me know or post soon.
 
Some other ideas for VHL Awareness (in month of May or whenever…)
 
Ask your doctors if they have other VHL patients. Share your contact info for other families. In any case, you can also just share info on us VHL Canada or VHL Alliance.
 
Maybe do a talk (your story) at church or any other place. Share a page of VHL info. You can choose to fundraise or not.
 
Submit your story to a newsletter, local paper, blog, events calendar, etc.
 
Hold a special event. For example, all family and friends, wear a specific colour or meet on a day. Request (with VHL Canada) for a landmark to be lit up for VHL.
 
If you want to find out more, post here or contact me. Thanks,

Henry contact@vhlcan.ca

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