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I loved the VHL Alliance's virtual family weekend presentations Oct. 24 and I hope they do more in the future!

However, I would’ve also liked to see:

  • something on what the “Curing cancer through VHL” tag line actually means. It seems like it’s a strategy to raise funds and awareness with the general public. For example, if you cure VHL then do you cure (the hundreds types of) cancer?
  • Research or study literature on psychosocial aspects of living with VHL or chronic illness (e.g. psychosocial oncology) in general. They’ve had clinical psychologists (PhD./professors of college) in the last few years.

I’m grateful that the VHL Alliance has shared the recordings of previous presentations online. Unfortunately, I was cut-off from participating in the “roller coaster” break-out session this year, so I was disappointed. But the other presentations -I liked.


🍁 VHL Canada facilitates peer support for people coping with VHL in Canada
CRA BN: 800804676RR0001
Our mailing address is:
VHL Canada
2938 Dundas Street West
PO Box 70510
Toronto, ON
M6P 4E7

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VHL Canada · 2938 Dundas Street West, PO Box 70510 · Toronto, On M6P 4E7 · Canada

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