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🍁 VHLC like other national support models
 
With the VHL peer community network in Canada, we are much smaller and basic, but I have tried to emulate the support and awareness network that the VHL Alliance has in the US with local VHL patients, family members and community*. Henry


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For example: 

  • In each US state/region (“Ambassadors”)
  • Provide outreach, fundraising and awareness activities
  • Link to clinical care centre volunteer liaison
  • (2 paid VHLA staff coordinate all volunteers. One staff is also responsible for online and phone group support. Another staff is in charge of charity awareness and fundraising).
  • Note: many doctors, VHL researchers and other professionals seem to do a lot for VHLA, e.g. councils, education, research grant program and family conferences).

 
*Source: VHLA Volunteer Manual 2020
*At VHL Canada, we only have 1 professional level peer support volunteer who covers “everything” at this time. (e.g. online group and individual support, inquiries, social media, blogs, awareness, advocacy)

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🍁 VHL Canada facilitates peer support for people coping with VHL in Canada
 
CRA BN: 800804676RR0001
Our mailing address is:
VHL Canada
2938 Dundas Street West
PO Box 70510
Toronto, ON
M6P 4E7
 






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VHL Canada · 2938 Dundas Street West, PO Box 70510 · Toronto, On M6P 4E7 · Canada

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