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“The Best Life for All Families Living with BOS”

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First Annual BOS Meet-Up
The BOS Foundation hosted the first annual BOS Family Meet-Up Event on August 13, 2016 in Philadelphia, PA at the Northeast Racquet Club and Fitness Center.  This event celebrated our BOS children and families and was a huge success! Fourteen families attended and many met in person for the first time. Families were able to exchange information and ideas, and ask questions of not only each other, but also of two of the BOS Foundation’s Medical Advisory Board members, Dr. Bianca Russell and Dr. Wen-Hann Tan.  Entertainment included a face-painter, Lily the Therapy Dog, and a balloon entertainer.  Families were able to spread out and enjoy an afternoon together and Gina Marie Photography was able to capture many special moments from the event.  The BOS Foundation is already starting to plan next year’s Meet-Up Event...stay tuned!
Welcoming families one gift at a time! 

The BOS Foundation helps patients and their families adjust to the new diagnosis of BOS. To help with the transition from undiagnosed to ultra-rare, the Foundation sends welcome packages to families. Our packages include information about BOS and the Foundation, a resource page, a BOS child’s story, BOS pens and stickers, and a small toy for the BOS child.  In 2015, eleven families received these packages with the hope of sending encouragement, educating these families, and building an increased sense of the BOS community.  Help support the welcome baskets by donating today!

Introducing the latest three members of our Medical Advisory Board! 
 
The Bohring-Opitz Syndrome Foundation is proud to introduce the latest three members of our Medical Advisory Board. These clinicians lend their expertise and counsel to the Foundation as they research Bohring-Opitz Syndrome. By working alongside our Foundation, our medical advisors will be able to offer more support and understanding of the syndrome to families and caretakers. Read more
How can you help? Amazon Smile
How can I help? This is one of the most frequently asked questions family and friends have when they learn about BOS. One of the biggest ways to help out is supporting the Bohring-Opitz Syndrome Foundation. A great way to do this is through a program called Amazon Smile. Amazon graciously donates funds to our charity when shoppers enter through http://smile.amazon.com/ch/47-4872776. Shop Amazon products and a portion of the proceeds will automatically be sent to the Bohring-Opitz Syndrome Foundation.This is a quick and easy way to help our Foundation. We really appreciate all of our supporters!

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Copyright © 2016 Bohring-Opitz Syndrome Foundation, Inc., All rights reserved.

Our mailing address is:
Bohring-Opitz Syndrome Foundation, Inc.
P.O. Box 560475

Orlando, FL 32856

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Bohring-Opitz Syndrome Foundation, Inc. · P.O. Box 560475 · Orlando, FL 32856 · USA

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