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Issue 82
February, 2017

 

Inside this issue:

Exciting News!

SEAC Updates 

What is Family?

What's Happening at WRFN

Autism in High School

Coffee Club Update

Did You Know...

Upcoming Community Events

What's in this issue?

We hope you are all have a great start to the new year!
With the new year comes many new projects and initiatives at WRFN, including the continuation of many! In this edition of Family Pulse we reveal exciting news about how we plan to move forward to support you and your family better! We also have information about our annual Evening of Elegance. 
As always, we have lots of things to share that are happening in our community this month. We'd like to bring special attention to Every Kid Counts registration happening February 3-10th.  This is a request for one-to-one support for those who have children that will be attending city summer camps in Kitchener or Waterloo.  You can learn more about this support here.  

Exciting News!

WRFN is pleased to share some very exciting news! We have been approved for a two-year grant from the Lyle S. Hallman Foundation for $100,000 over the next 24 months.  Our project – Linking Families, Building Lives 2.0 will position WRFN as the key resource for families with exceptionalities through the enhancement of our partnership model, maximizing staff resource time, implementing several options for family support and engaging in active advocacy for our families.

This project aligns with WRFN’s key strategic priorities determined through detailed discussion over a four month period last year and approved by the Board of Directors in September 2016. Key goals for the next five years include: improving our financial stability, improving our ability to manage considerable growth with limited financial resources (our network has grown by at least 25% each year over the past few years), increasing our profile in the community and measuring the impact of our supports and services for families and our community.

We look forward to sharing more with you in the coming months!

Sue Simpson

Executive Director         

SEAC Updates

Waterloo Region District School Board - Special Education Advisory Update
Submitted by Carmen Sutherland
Barbara Ward, the Mental Health Lead from the School Board, came to talk with SEAC about how the School Board is working to prevent and mediate mental health issues. These include work with mindfulness, and working on suicide prevention alongside parent trainers (this is good for all situations, from students to strangers on the street). There was also discussion about creating a poster regarding mental health information, as well as how to get the information out to students via the Internet. Ms. Ward really wants the students to tell her how they will use the information.
 There was also discussion from 2014-2015 about the students the Board is serving in different “disability categories.” There was conversation about the students who are supported who do not have a specific diagnosis, and how “money” from every student is used to support students who need services.

The next SEAC meeting is Wednesday, February 8th from 7-9pm.

Waterloo Catholic District School Board - Special Education Advisory Update
Submitted by Christine Zaza

At the January SEAC meeting, Petra Leduc from the Ministry of Education presented the Renewed Math Strategy. One of the key priorities of the Renewed Math Strategy is special education needs. The Renewed Math Strategy emphasizes the importance of seeking student input in identifying helpful accommodations SEAC provides input to the WCDSB special education plan and serves as a resource for parents of students with special needs.  Part of WRFN's role on SEAC is to communicate school-related issues that are brought forward to WRFN.  If you have a school-related issue please contact Sue Simpson at 519-886-9150 ext. 1 or by email at sue.simpson@wrfn.info. We welcome your input!
The next SEAC meeting is Wednesday, February 8th at 6:30pm.

WRFN Fact! 

WRFN has a Family Resource Coach that can help you to navigate the services and supports in our community, as well as provide connections to programs, activities, information, etc. We provide support to people of any age, with or without a diagnosis.

"This service reduces anxiety and overwhelm by providing a human face and voice to help navigate the experiences of autism in relation to the community resources available to us."
- Parent who received support from the Family Resource Coach
 

What is Family? 
As family day approaches, I have found myself thinking about family, and what it means.  The stereotypical family is often assumed to be two parents and their dependent children, however many of us experience family differently. 
Although we may have parents or partners or children, sometimes our domestic arrangements fall outside this type of unit.  I took a look around on the internet, and the general consensus is that we build our own families out of friends, extended family, long-term support workers and pets.
We all need family.  They are our support network, the people who keep us going.  Most relationships are complicated and often difficult, and family relationships are no exception.
TRADITIONAL FAMILY
I certainly don’t want to devalue the family unit.  It may not look like a nuclear family (or it might), but our core traditional family can be a great source of love and support.  They raised us, or we raise them.  We spend our lives together, at times under one roof.  They hold your history, remind you of who you are.
FRIENDS
Friends are obviously the place to start, once we start looking for family beyond our DNA.  These are the people that love and understand us, even though they aren’t obligated by blood.   These are the people we choose, and who choose us.  Friends have our best interests at heart.
PETS
Pets are an important part of our families.  They are an endless source of joy, compassion, and won’t judge us for our actions.  When we feel misunderstood, alone or helpless, we can count on our pets to provide comfort.
Regardless of what form your family takes, it doesn’t change who they are to us.  Family is there when we need them, even if we don’t always want them there.  They choose to be with us.  There is drama and advice, faith and arguments.  They know us better than anyone and love us anyway.

What's Happening at WRFN   
 

 

 







 

   

Autism in High School

Autism in High School” is a new web-based guide to help students with Autism Spectrum Disorder and their families as they navigate the transitions and common challenges of high school. This website was developed as a joint initiative between Extend-A-Family, Waterloo Region Family Network, members of the former Autism Services Waterloo Region, the Waterloo Region District School Board, the Waterloo Catholic District School Board, and the University of Waterloo with generous funding from the Sifton Family Foundation.

WRFN Fact! 

WRFN identified that it was important that individuals with special needs also feel a sense of community and be connected with each other. Out of this need, Coffee Club was born.
Coffee Club is a drop-in social group for people with disabilities, ages 16 and up, that focuses on creating community through planned social activities.  

Coffee Club Update

Hi All,
Welcome to February! Here are the activities we have to keep everyone warm this month:
Monday, February 6, 7 to 9 P. M. The Studio (109 Ottawa Street, S. Unit B):
Come watch The Wedding Singer, a movie set in the ‘80s featuring Drew Barrymore and Adam Sandler. You can find more information about it, here.
Monday, February 20, 7 to 9 P. M., Crabby Joe’s (296 Fairway Rd. S., Kitchener):
We will share a meal together, please bring your own funds to pay for the meal. Please let me know if you are able to come by Friday, February 24 at NOON, so that I can make reservations. 
Please feel free to contact me with any concerns or questions. We also would LOVE to hear your ideas for future Coffee Club sessions so please send them my way. There are several ways you can contact me:
(519) 500-7153 (Cell Phone)
E-mail: carmen.sutherland@wrfn.info
I’m excited to hear from you!
Carmen

Did You Know February is... 
Heart Month 
Eating Disorder Awareness Week - Feb. 1-7
Sexual and Reproductive Health Awareness Week Feb. 12-18
World Cancer Day - Feb. 4
International Childhood Cancer Day - Feb. 15
Pink Shirt Day - Feb. 22
Rare Disease Day - Feb. 28

Upcoming Events in the
Community & Beyond

 

From time to time, the Waterloo Region Family Network (WRFN) is asked to distribute information on behalf of third parties.  WRFN provides general information to self-advocates and families of children with special needs.  The information provided in this newsletter is not a recommendation, referral or endorsement of any resource, therapeutic method, or service provider.  WRFN is not responsible for any information or services provided by third parties.  You are urged to use independent judgement when considering any resource. 


EVENTS


Autism Ontario - Upcoming Events

Family Tubing at Chicopee - Families are invited to enjoy 3 hours of tubing at Chicopee Tubing Park in Kitchener on February 11th. Details and registration can be found here.

Raptors 905 Game - Families are invited to watch the Raptors farm-team take on the Austin Spurs March 13th.  Details and registration can be found here.
Cooking Class, February 18th, Guelph—Children with ASD, and their siblings, all aged
13-18, are invited to the Guelph Zehrs Imperial Grocery Store
to prepare a delicious meal!  Details can be found here.
   


Bulldog Fitness - Valentine's Day Dance
Dance the night away at Bulldog fitness! Games, contests and prizes to the won!
February 10th from 6-10 p.m. Ages 8+
Register by emailing Guelph@bulldoginteractivefitness.com

 

Winter Wonderland Dance hosted by AIM
Thursday, February 23
6:30-8:30 p.m.
317 Franklin Ave. N
$2/Person, Support Workers free
Call 519-502-9170


Community Living Dances 2017

These dances are sponsored by KW Association for Community Living & City of Kitchener.

All dances are held at the Downtown Community Centre from 7-9:45pm.

February 10 – Hearts & Valentines (Celebrate wear red)

March 17 - St. Paddy's Day Dance

For details and a complete list of dates for 2017 please click here.


Trigator For Kids
The TriGator is a kids’ triathlon race with age-appropriate Swim-Bike-Run distances for children between the ages of 3-14.  
No previous experience is necessary, just come out and have fun.

The event will be held on Saturday, June 17th, 2017.  Online registration will take place on Saturday, March 4th at 10am.
For more information on TriGator, please see their website at www.trigator4kids.com.


PROGRAMS/RECREATION


Stepping Stones Gymnastics Program
Stepping Stones is a special needs program designed for children ages 3 years and up with Autism, Down Syndrome and other learning/cognitive or developmental disabilities. Your child will be paired with a trained coach and given the opportunity to be active. 
The winter session begins January 7th.  See the flyer for details.


Fitness & Yoga Programs for Every Ability
The Active Souls Project has created NEW Fitness & Yoga Classes for EVERY ABILITY held throughout the Region to better serve you! Registration is NOW OPEN.  For a list of these programs please click here.
Phone: 519-500-2156  Email: activesoulsproject@gmail.com /sascha@activesoulsproject.com 
Web: www.activesoulsproject.com


"aspace"
"aspace" brings together high school students wanting to meet peers who also have Aspergers or High Functioning autism. Outings and activities are chosen by participants, and every night is supported by trained university volunteers. 
The teens get together year-round, every Saturday night from 7-9pm.  Weeks will alternate with hanging out at the club and going out on the town! 
To register please see the following link:
http://www.welcometoaspace.com/aspaceformcomplete.html


Young Carers Peer Program
If you are you a Young Carer between the age of 12 to 17 join us for an evening opportunity to connect with other young carers that share similar experiences.
No RVSP is required, just drop in! Young Carers are children, youth, and young adults who experience an alteration in our family role, as a result of another family member's exceptional need or unique family situation.  Click here to see the flyer.
To join text Julie @ 519‐501‐9736 or email Julie.
To learn more about young carers visit www.youngcarersproject.ca


Sensory Thursdays at SkyZone
Every Thursday from 4-5pm SkyZone will be offering a “Sensory Thursday” jumping time for jumpers with special needs. 
The music will be turned down and they will minimize distractions. 
$15 per jumper, with one free “chaperone” for support.  

See their webpage here.   


Our Place Family Resource and Early Years Centre 
Our Place has shared their February calendar.  Check out all the great programs they have running throughout the Region. 


Light House

Light House is an innovative space that offers an inclusive environment for everyone. 
Day Program – Light House offers a person-centred day program for adults.  Please see their Adult Day Program flyer for details.
PEEPS Cooking Crew (14+) - This is an opportunity to work toward cooking independence while building skills and engaging with peers.  Each participant will be responsible for completing a specific portion of our meal. Every week will be an opportunity to try something new. This program begins September 20, 2016.  Registration is ongoing.  
Check out the Program Menu.
PEEPS Friday Night Social Program! (14+) - Enjoy meeting new people, kicking back and having some fun! The program runs on the third Friday of every month from January to June, 6:30-8:30pm. See the flyer here.
To find out more about Light House visit their website or contact them at:

www.lighthouseprograms.com  Lighthouseprograms@gmail.com or 226-338-2681


Child and Youth Resilience Project

The Family Centre and Family and Children’s Services of the Waterloo Region are pleased to offer a wide range of art, music and fun activities for children ages six to 12 under the Child and Youth Resilience Project with the aim to prepare our children and youth to succeed, even in challenging circumstances.
Registration for the winter session is now available. 
Please see the flyer for a list of programs and dates. 


Open Space presented by Extend-A-Family Waterloo Region

Open Space is a weekly gathering that promotes inclusion within the community by getting people together at a cafe for food, fun and conversation. In addition to weekly coffee and conversation, with the support of facilitators, attendees plan special events such as Halloween parties, and Open Mic Nights. All are welcome regardless of ability, and you do not need to be supported by Extend-A-Family to attend.

For more information click here
Open Space in Waterloo is held at 
Games on Tap at 321 Weber Street N, Waterloo.
For more information, contact Matt Riehl by e-mail at EAF or call 519-741-0190 ext 300


Firefly Therapy Services - Winter Session
Eat, Cook and Mingle Jr.: This fun group is targeted for children in grades 7 and 8 who want to learn cooking skills and make some new friends while they do it.

Eat, Cook and Mingle! Teen: Come join us for an evening of Cooking, Eating and Mingling! This fun group is targeted for teens who want to learn cooking skills and make some new friends while they do it!

Swimming Lessons: Firefly Therapy Services swimming program provides an opportunity for children to learn important basic swimming skills in a safe and supportive environment.

For all programs, to register or for more information call 519-886-8886 or 1-888-372-2259, email firefly-info@kidsability.ca, or visit www.kidsability.ca/en/firefly.


The Ontario Early Years Centre – Guelph
The Ontario Early Years Centre of Guelph has a variety of drop-in and registered programs.  See the January to March Program Guide for more information.  


RESOURCES


 The Resource Centre at KidsAbility

Here's a message from Matt at the Resource Centre, "The Resource Centre at KidsAbility exists for you. Anyone in our community is welcome to use our services. Our mission is to connect the community with resources, knowledge and support to help empower families, educators, children and youth with special needs, to realize their full potential. 

There is a Resource Centre at our Cambridge, Guelph, Kitchener and waterloo sites. We have many therapy-related games, toys, books, and equipment available for loan. Additionally, we have a therapy store on-site that individuals may purchase therapy aids to help with fine and gross motor skills, and sensory oral motor difficulties. To become a member of Resource Centre, visit any of our sites and asks reception! There is a $5 annual membership fee.

If you have any questions about KidsAbility’s services and resources, other community resources, require information on a topic or are interested in BoardMaker training, you can schedule an appointment to meet with Matt Seeley, Resource Centre Coordinator at any of our sites by email (mseeley@kidsability.ca) or phone (519-886-8886 x1415)."


Ontario Helping Protect People with Developmental Disabilities: Province Launches Service for Reporting Abuse and Neglect
The Government of Ontario is expanding ReportON, a new service for reporting suspected or witnessed abuse of adults with developmental disabilities.
The 24/7phone line and email service is the latest step taken by the Ministry of Community and Social Services to further improve the safety of adults with developmental disabilities.
There are several ways to report abuse:
TEL: 1-800-575-2222
Email: reportONdisability@ontario.ca.
TTY: 416-916-0549 Toll Free: 1-844-309-1025
To learn more about this initiative please click here
  


Do you have Passport funding?
For free help and advice on:

-What is available to you
-Where to find supports to purchase
-How to spend your funding
Contact Becky Verdun, the Passport Community Developer for Waterloo Region,
at Developmental Services Resource Centre – 519-741-1121 ext. 2226,
or by email at
b.verdun@dscwr.com.
  


 FASD Caregiver Consultations
Families and service providers can have a chance to sit 1:1 with our FASD Project Coordinators to ask questions and learn more about:

- Diagnosis
- Financial Supports
- Parenting Strategies
- Recreational Opportunities
- Ideas for School
- Community Resources 

When: Second and Fourth Tuesday of the month. No appointment necessary. Just drop in.
Where:  99 Regina Waterloo Rm 208 (Waterloo Region Public Health) 
Find the flyer here.


SUPPORT GROUPS


Support for those Bereaved by Suicide
Free 9 week Suicide Bereavement Group. Led by professionals, this group provides a safe, confidential and non-judgemental place to share with others who understand.

Held at the Family Counselling Centre Of Cambridge and North Dumfries. 
February 8, 6 p.m.-8 p.m.

To register go to www.wrspc.ca or call Dena at (519) 745-2195


Waterloo Region FASD Caregiver Support Group
The Waterloo Region FASD Caregiver Support Group gathers at Lutherwood (285 Benjamin Rd.) the second Wednesday of every month from 7-9 pm.
For more information please contact Karen Huber at khuber@lutherwood.ca.
   


Preemie POWWR Chat and Play Groups
Join other moms and dads of children born prematurely, talk openly about your questions and concerns amongst a group who understands. Bring your children along for interaction with other preemies at different stages.

Upcoming Play Groups: February 11 and March 11th
9:45-11:45 at Our Place Family Resource and Early Years Centre, Kitchener
Contact Carolyn at preemiepowwr@gmail.com to learn about special events going on in the community and across Canada.


Community Mental Health Support Groups for Family & Friends
General Mental Health Support Group - 2nd Tuesday of the month from 6:30 - 8pm at Grand River Hospital (KW Site)
Addiction and Mental Health Support Group - 4th Tuesday of the month from 6:30-8pm at Grand River Hospital (Freeport Site)
Both groups are continuous and members can join anytime!
Please click here for more details. 


Woolwich Counselling Groups & Workshops
Glad to Be Me – A fun-filled children’s program that promotes self-esteem & self-worth for children age 4-7.
See the Glad to Be Me flyer for a list of dates the class is being offered in 2016/2017.
No Need to Fret – This program provides successful strategies to help anxious children age 7-10 cope with fears and worries.
See the No Need to Fret flyer for a list of dates the program is being offered in 2016/2017.

The Unlimited Benefits of Mindfulness (Adult Workshop) - This workshop will provide participants with a thorough understanding of mindfulness and the well-being it can bring to our lives. This workshop will be held on Thursday, January 19th. See the flyer for details.  
Mindfulness Adult Workshop -
This 6 week course will help you discover a healthier, more relaxed and focused you. Details for this workshop can be found here.
There are also a variety of topics being covered in the Talk Series.  Please see the Talk Series flyer for details.


Tick Talk Tourette Group
 Anyone that is impacted by Tourette Syndrome (and associated disorders – OCD, ADHD, anxiety, sensory processing, etc.) is welcome.
The next meeting will be held on Thursday, February 23rd, at Extend-A-Family
For details email
wellington-waterloo@tourette.ca  


Support Groups for Adults with ASD (19+) and Parents/Caregivers of Adults with ASD (19+)
Groups run separately, but are held at the same time.
Upcoming Dates: February 9th
Time6:00pm to 8:00pm
Location: Extend-A-Family, 91 Moore Avenue, Kitchener
               Parking and Entrance at back of building
Cost: Free


The A-Team Waterloo Region

The A-Team is primarily run by individuals with Aspergers Syndrome, for individuals with Asperger's Syndrome, with some assistance from Waterloo Region Family Network. The goal is to create a safe and welcoming environment to meet fellow adults with Aspergers Syndrome, discuss topics of interest, share experiences, and embrace our neurological diversity.  This program is open for adults 19+ who are either diagnosed or self-identify with Asperger's Syndrome and who are seeking support.  The program welcomes individuals who are able to function at a vocational level.
Meeting Dates: February 16th, March 16th
Time: 7:30pm
Location: KW Habilitation  
RSVP is required to ateam.waterlooregion@gmail.com 
For complete details please see the flyer.
A-Team also has a new website! It has information about the group including a group description, FAQ page, and participant code of conduct.  Check it out here.


Home Caregiver Support Program
Supporting the Caregiver in your Time of Need

This program is designed to train, educate and peer mentor you, the non-professional caregiver, as you provide care for your loved one on their end-of-life journey.

Physical Needs

Emotional/Psychological Needs

Social Informational Needs

Spiritual Needs

For more information click on the flyer.


STROKE RECOVERY CANADA® a program of March of Dimes Canada

Linking Survivors with Survivors is a peer support initiative providing free hospital visits to stroke patients and their families and friends wishing to connect with fellow survivors.
For further information please contact:
Barbara Moore, Community Co-ordinator
1-866-380-0758 ext 263 or 519-579-5530 ext 263


APSGO - Association of Parent Support Groups in Ontario
Kitchener/Waterloo Chapter

www.apsgo.ca
APSGO is a non-profit, non-denominational group that meets once a week.  The group meets on Wednesday evenings from 7:15-8:45pm
at The Rock Spa, 396-B Victoria St. N. Kitchener.
APSGO works with parents of acting-out youth to offer support, strength and coping strategies on a wide range of issues.
Chapter Leader: Steve Keczem
519-888-1053 or 1-800-488-5666
For more information click here.


WORKSHOPS/TRAINING


Oh! The Place You'll Go!!
Exploring the transition from school life to adulthood you will learn what a transition plan is, how to create one, and what services and programs are available after high school. There are two dates to choose from, both cover the same material.

Tuesday, April 11th at St. Benedict's Catholic Secondary School or
Wednesday, April 12th at Cameron Heights Collegiate Institute
Details can be found here.


Mindful Self-Compassion Workshop
This one-day educational and experiential workshop will provide current research that supports the science, components and benefits of self-compassion. Through discussion, mindfulness meditation and experiential exercises, you will gain practical skills to help bring self-compassion into your daily life. You will learn how to motivate yourself and others with kindness rather than criticism. Practices will be introduced to ease stress for caregivers.
February 7th from 9-4 p.m.
$175.00
Register online or by calling Jade at 519-884-0710 ext. 5234.


Webinar - ADHD in the home, Parenting and Behavioural Strategies 
This webinar will provide some guiding principles and general messages to parents/care givers will be reviewed before we look some specifics of how to interact with and monitor children with ADHD.  How we interpret “bad behavior” and how we deal with it will impact not only the child’s functioning but our relationship with that child for years to come. Organizational and problem solving strategies will be reviewed as well as external reminders, motivators and rewards.  Steps to creating a home care plan will be the final topic.   

Tuesday, February 21st at 7:30 p.m.
Register here.


Dreaming of Summer - Guelph

Parents and caregivers of children with special needs and service providers are invited to drop-in and learn about the many specialized and inclusive camps in the Guelph community, meet some of the camp staff, and start the registration process. During the evening there will be mini-workshops led by community partners – a time to learn tips on choosing the right camp and ideas for securing funding and one to one supports.
Monday February 13th, 2017, 5:30-7:30pm
West End Recreation Centre, 21 Imperial Rd S Guelph

This is a free event for both camps and families.
Please register on Eventbrite.


Grief and Loss- Helping Families Navigate the Emotions of an FASD Diagnosis
In this training you will:
•Explore current theory on grief and loss as it relates to families experiencing an FASD diagnosis
•Identify ways that grief can manifest in individuals and within families
•Identify tips and strategies for effectively supporting someone who is grieving an FASD diagnosis
•Identify grief support considerations for birth parents, adoptive parents, and individuals with FASD
 March 2, 2017 1:30-3:30pm @ Lutherwood (285 Benjamin Rd., Waterloo)

RSVP to Karen Huber at khuber@lutherwood.ca


7th International Conference on FASD Research: Results and Relevance
The 7th International Conference on Fetal Alcohol Spectrum Disorder is an advanced level conference that continues to bring together experts from multiple disciplines to share international research.  It provides an opportunity to enhance understanding of the relationships between knowledge and research and critical actions related to FASD.
You can find out more about this conference by clicking here.


Sleep and Your New Baby
Get to know more about your baby's sleep cycle and how to respond.  A free session for parents of newborns from birth to 12 weeks of age.  You may bring a family member or friend for support.
Offered at your Ontario Early Years Centre in Kitchener, Waterloo and Cambridge.
Reserve your spot today at www.earlyyearsinfo.ca/sleep-sessions.


ENGAGEMENT OPPORTUNITIES


Early Years & Family Support Focus Group
You can help shape the future of child and family programs in Waterloo region!
Join a focus group on Tuesday February 14, 2017 from 10:00 am to 11:30 am at the
Holiday Inn, Kitchener.
The goal is to build on the strengths of the current system of Ontario Early Years Centres (OEYCs) and ensure that all families can conveniently access these services and can expect consistency wherever they go.
To learn more about this opportunity or to register, please click here.


Moving from Hospital to Community
On February 27, 2017, join a full-day research symposium focused on improving healthcare transitions for parents from neonatal follow-up clinics or acute care (e.g. Complex Care Kids Ontario) to children’s treatment centres. This day is designed to engage attendees across the span of professional and lived experiences, including families, clinicians, researchers, primary care providers, community hospitals and government representatives, to lead the system together and co-develop priorities to improve transitions across Ontario.
Held at Holland Bloorview Kids Rehabilitation Hospital. 
Details and registration can be found here


Research Opportunity
The Social Development Lab at the University of Waterloo is currently looking for children that are 7 years old to contribute to a study in which they are examining how children’s personalities influence the way they manage their attention and emotion in a variety of situations.  The purpose of this study is to examine temperament (i.e., shyness vs. sociability) as a key factor in understanding which types of strategies best support children’s abilities to self-regulate behaviour and emotion over time.  

You can read the Parent Information Letter here.

If you would like to participate, or are interested in learning more you can contact them by email or fill out the online form.


Be Part of Creating Canada’s New Accessibility Legislation
Honourable Carla Qualtrough, Minister of Sport and Persons with Disabilities, will be consulting Canadians about what an Accessible Canada could look like. Share your ideas on how to improve accessibility and inclusion across Canada at in-person public sessions held in 18 cities across Canada from September to February.  Visit the website to find out more.


Sleep and neurodevelopmental disorders: Treatment barriers and facilitators

Did you know that between 50-­95% of children with neurodevelopmental disorders (NDD) have behavioural sleep problems? Common NDDs include Attention­‐Deficit/Hyperactivity Disorder (ADHD), Fetal Alcohol Spectrum Disorder (FASD), and Cerebral Palsy (CP). 
A study is being conducted through Dalhousie University to help researchers learn how to increase families' access to effective treatments for sleep problems in kids with neurodevelopmental disorders.  The study is looking to hear from parents that have children between the age of 4-12 and health care professionals.
To learn more about these opportunities please see the summary for parents or the summary for health care professionals.
  


Respite Workers and Parents Needed to Participate in Research Study
Who? Respite workers and parents/guardians of children with intellectual disabilities who are proficient in the English language and are over the age of 18. Note: Children must have received respite care within the past 12 months.

What? Participation in a 1-1.5 hour study involving questionnaires and a focus group. Focus groups may take place at the University of Guelph, in a location in the community, or within a respite organization’s facility.
Why? We would like to learn more about your thoughts and feedback regarding a Caregiver Pain Resource for children with intellectual disabilities. We want to develop a resource that facilitates communication between parents and respite
workers so that pain assessment and management of children in their care can be improved.

See the Recruitment Poster for more information or contact Lara Genik via phone: 519-824-4120 Ext 52342 or Email lgenik@uoguelph.ca with any questions or to register.


EMPLOYMENT OPPORTUNITIES


Nanny Opportunity

Help is needed to care for two daughters, 2 yrs old and 10 months old who have seizure disorder. Mom is currently at home with the girls but is in need of a nanny/support worker who can assist in the home approximately 6-20 hours a week.
Responsibilities include:  basic care for both girls,  supervised playtime, light housekeeping, assisting mom with G-Tube feeding (training will be provided),  and assisting during emergency situations. Please contact Hilde at chan.hilde@gmail.com
 


Nanny Opportunity
Help is needed for before/after school, PD days, holidays and summer.  During the school year it would be approximately 20 hours a week.  Duties include diapering, feeding, dressing, light house keeping and meal preparation.  Location is in Kitchener close to Victoria street.  If you are interested please contact Marlene at medoornbo@hotmail.com.

Waterloo Region Family Network
www.wrfn.info
info@wrfn.info

519-886-9150
Mailing address is:
65 Hanson Avenue
Kitchener, ON
N2C 2H6


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