September is Children's Cardiomyopathy Awareness Month

This September, the Children’s Cardiomyopathy Foundation (CCF) is partnering with 17 leading health and school organizations to raise awareness of pediatric cardiomyopathy. During Children’s Cardiomyopathy Awareness Month, parents, physicians, nurses, coaches, teachers, and community leaders are urged to #KnowYourHeart and learn the signs, symptoms, and risk factors of cardiomyopathy. Increased attention in this area can help to identify at-risk children, direct them to the appropriate medical care, and prevent sudden cardiac death associated with cardiomyopathy.

The month-long awareness initiative will include fun and creative ways to learn and share, take action, and show and tell others about pediatric cardiomyopathy at the community level. CCF has created downloadable awareness month resources, such as fact sheets, social media images, and sample postings to help spread the word.

National partners include the American Heart Association, National Association of School Nurses, and the National Alliance for Youth Sports to name a few. Throughout the month, partners will participate in a number of CCF-led awareness activities to educate others about the seriousness of cardiomyopathy and the measures needed to protect youth from sudden cardiac death.

View Awareness Month Partners & Activities

Join Team CCF for a Virtual Walk for a Cure

CCF's 6th Annual Walk for a Cure has gone virtual this September to protect the safety and well-being of families and friends. Even during these challenging times, supporters can come together in spirit to raise awareness of cardiomyopathy. 

This year's virtual event gives walkers the flexibility to participate wherever and whenever it is most convenient. Families have walked at beaches, parks, around the neighborhood, and even on the treadmill and at home. CCF has developed downloadable promotion and walk resources to support each team's walk efforts. All event proceeds will go towards funding CCF’s Family Assistance Program and family support services.

Register for Walk for a Cure

CCF Funded Study to be Presented at AHA Conference 

The American Heart Association’s Council on Lifelong Congenital Heart Disease and Heart Health in the Young has selected a CCF-funded research study to be presented during the Young Hearts Early Career Investigator session at the American Heart Association’s Scientific Sessions taking place virtually November 13 – 17, 2020. 

The abstract, "Distinct Biomarker Profiles for Pediatric and Adult Dilated Cardiomyopathy," will be presented by Melanie Gropler, M.D. of Washington University School of Medicine in St. Louis, Mo. Dr. Gropler was part of Kathleen Simpson, M.D. and Charles Canter, M.D.'s research team focused on identifying biomarkers distinct to children with dilated cardiomyopathy (DCM). The study evaluated different patterns of specific proteins in blood samples from children with DCM and compared them to adults with DCM to determine therapeutic targets for children in heart failure.

The AHA Scientific Sessions features lectures and discussions about basic, translational, clinical, and population science in the field of cardiovascular health and disease. It is the first time that this global meeting will be held virtually.

View Research Study

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