CCF Works with Legislators to Introduce SAFE PLAY Act

The Children’s Cardiomyopathy Foundation (CCF) is taking a leadership role in working with U.S. Senator Robert Menendez (D-NJ) and Representative Bill Pascrell (NJ-09) on the Supporting Athletes, Families, and Educators to Protect the Lives of Athletic Youth (SAFE PLAY) Act. The bill was introduced on February 27 during National Heart Month and includes important provisions on protecting young athletes from sports medical emergencies, including sudden cardiac arrest, which is commonly associated with cardiomyopathy.

The SAFE PLAY Act focuses on various sports safety issues, such as heat exposure, CPR and AED training, concussion response, and energy drink consumption. It also encourages best practices on preventing, documenting, and addressing cardiac emergencies, and includes provisions for developing educational resources with the Centers for Disease Control and Prevention (CDC) to inform parents, schools, and health professionals about higher-risk heart conditions such as cardiomyopathy. Over the coming months, CCF will be reaching out to other Congressional members to ask them to cosponsor and support this important legislation. 

Read press release here.
CCF Highlights Heart Month With Awareness Campaign

February was National Heart Month, and CCF took part in the national initiative to raise awareness of heart disease and more specifically pediatric cardiomyopathy. 

As part of CCF's multifaceted awareness campaign, supporters across the county worked to educate the public about pediatric cardiomyopathy with emails and social media postings, presentations, webinars, and letters to Congressional members in Washington D.C. Over 500 people shared facts about cardiomyopathy and nearly 9,000 people viewed CCF posts.

To commemorate National Heart Month, families and friends wore red and handing out CCF valentines. In addition, 8 Bake for a Cure events were organized across the U.S. to encourage community involvement and raise awareness of pediatric cardiomyopathy.


View Heart Month page
Supporters Celebrate National Heart Month at 12th Annual Night for a Cure

On February 5, CCF held it's 12th annual charity poker tournament, Night for a Cure, at the Edison Ballroom in New York City. The event was attended by 235 guests from the  Tri-State area and raised over $240,685 for CCF's research and education initiatives. Attendees enjoyed cocktails, supper, blackjack, and poker at the art-deco inspired venue.

It was a lively evening with a spirited crowd. The first place winner, Matt Bagley, will be competing in July at the 51st Annual World Series of Poker Main Event in Las Vegas with a $10,000 buy-in courtesy of CCF. Other final table winners include: Won Choi, Adam Weger, Brett Nunziata, Mike Serio, Brett Fujita, Adam Eyman, Ian Sandler, John Horner, and Todd Rabideau. Prizes ranged from a trip for two to Las Vegas and a Mandarin Hotel spa day to concert, sports or theater tickets and dinner at exclusive New York City restaurants. Congratulations also goes to Abe Han who won the 50/50 raffle but generously donated his winnings back to CCF.

View Event Program
View Event Photos
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Children's Cardiomyopathy Foundation | P.O. Box 547, Tenafly, NJ 07670 | Tel: 866.808.CURE
www.childrenscardiomyopathy.org

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